- provides a space devoted to the conceptual framework known as Hodges' model. Read about this resource for HEALTH, SOCIAL CARE, INFORMATICS and EDUCATION. The model can facilitate PERSON-CENTREDNESS, CURRICULUM DEVELOPMENT, HOLISTIC CARE and REFLECTION. Follow the development of a new website using Drupal as I finalise my research question with part 2 starting in 2016. See our bibliography, posts since 2006 and please get in touch [@h2cm]. Welcome.

Saturday, April 19, 2014

care.data: too much information?

individual
INTERPERSONAL : SCIENCES
humanistic ------------------------------------------- mechanistic
SOCIOLOGY : POLITICAL
group

individual - person
ethics
'personal'
My identity:
 lost in numbers Vs. specificity of patterns
*my attitude to my 'sensitive' information
health literacy
personal responsibility, self care, quantified self
my understanding of care.data
Trust



datasets, BIG data
hospital episodes, treatments
research
privacy research
 anonymising process for nhs data
*care.data is a natural step towards personalised medicine?
axon - neurobiology
Axon - data warehouse
statistics
service development and innovation

data security, law, information governance
NHS
commercial, contract
potential for abuse - assumptions
public mental health
public health
policy, consultation
policy communication
public engagement, primary care
informed consent, opt-out
data definitions, standards
ISO27001
population, insurance



Additional links:
Allyson Pollock - Protecting confidential patient information and promoting public health research. Three proposed amendments to the Care Bill

Building trust in the use of personal data for medical research, 1 April 2014, AMRC

Image source:
http://www.contactmusic.com/press/maximo-park-announce-new-album-too-much-information-released-3rd-february-2014

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