Presentation: 'An example of open research sharing Hodges’ Health Career Model'

From: Ulster University Open Research Conference 2026 

Simms, V., Jacobs, N., Magee, J., De Ornellas, K., Mollik, E., Kernohan, W. G., Leacock, J., Akter, J., Sempey, C., Beech, S. E., Naz Asif, R., Yap, L. K., & Miller, K. (2026, Jan 16). Ulster University Open Research Conference 2026: Conference Speaker Abstracts. Ulster University. Advance online publication. https://doi.org/10.21251/0d7780ce-ce97-468f-b5d5-69201ca90b20

Speaker: Professor George Kernohan 

School or Department: School of Nursing and Paramedic Science Ulster University 

Email: wg.kernohan AT ulster.ac.uk 

The area(s) of open research talk relates to: 
  Practice as research; Open data/ Open code 

Talk Title: An example of open research sharing Hodges’ Health Career Model 

Abstract: 

This paper examines a blog post [see below, pj], “Thinking about a comprehensive framework for dementia,” as a case study illustrating the integration of open research practices within dementia palliative care research. The post introduces the Hodges’ Health Career Model— a four-domain conceptual framework encompassing biomedical, psychological, social, and policy perspectives— to articulate the multidimensional nature of dementia and inform care planning. As an openly accessible research communication, the blog contributes to transparent and inclusive knowledge exchange beyond traditional academic channels. 

The blog exemplifies practice-as-research, translating conceptual development from theory into a form of scholarly exposition that invites engagement from practitioners, policymakers, carers, and people living with dementia. It forms part of a wider programme of work in which the research team openly documents methods, emerging findings, and reflections across scoping reviews, surveys, and service case studies hosted on the same platform. These materials complement peer-reviewed open access outputs, including open publications. 

The project demonstrates alignment with open research principles through prospective protocol registration: the scoping review protocol is publicly available on PROSPERO. The team’s prior work on blogging as a mechanism for knowledge mobilisation strengthens the methodological coherence of using this medium to disseminate conceptual frameworks and preliminary insights.

Although the blog does not itself provide underlying datasets or analytic code, it outlines methodological approaches that could facilitate future open data practices, particularly in qualitative and mixed-methods research. Overall, the case illustrates a pragmatic and pluralistic adoption of open research methods across dissemination, protocol transparency, and public engagement, offering a model for enhancing accessibility and reproducibility in dementia palliative care research.

.

Title: “Thinking about a comprehensive framework for dementia”

Author: Professor George Kernohan

Date: 7 November 2019

Link: https://pallcare4dementia.com/thinking-about-a-comprehensive-framework-for-dementia/

Workshop on Research Objects (RO2018)

2018-10-29 at IEEE eScience 2018, Amsterdam, The Netherlands
http://www.researchobject.org/ro2018/

## Timeline
...

## Research Objects

Scholarly Communication has evolved significantly in recent years, with an
increasing focus on Open Research, FAIR data sharing and community-developed
open source methods. A question remains on how to publish, archive and explore
digital research outputs.

A number of initiatives have begun to explore how to package and describe
research outputs, data, methods, workflows, provenance and structured metadata,
reusing existing Web standards and formats.

Such efforts aim to address the challenges of structuring multi-part research
outcomes with their context, handling distributed and living content and
porting and safely exchange what we collectively can call “Research Objects”
between platforms and between researchers.

## Call for Papers

In the workshop RO2018 we will explore recent advancements in Research Objects
and publishing of research data with peer-reviewed presentations, invited
talks, short demos, lightning talks and break-out sessions to further build
relationships across scientific domains and RO practitioners.

RO2018 welcomes submissions of academic abstracts (1-2 pages), data/software
articles (3-6 pages) and short research articles (4-8 pages) on cross-cutting
case studies or specific research on topics including, but not limited to:

  FAIR metrics; platforms, infrastructure and tools; lifecycles; access control
  and secure exchange; examples of exploitation and application; executable
  containers; metadata, packaging and formats; credit, attribution and peer
  review; dealing with scale and distribution; driving adoption within current
  scholarly communications and alignments with community efforts; and
  domain-specific and cross-domain Research Objects.

## Submitting

Submitted abstracts and articles can be in a range of open formats (e.g. HTML,
ePub) and are particularly encouraged to be submitted in a FAIR research data
packing format.

Accepted abstracts and articles will be included in the IEEE eScience 2018
proceedings. Submitted preprints will, upon acceptance, be made available as
Green Open Access on the RO2018 website with DOI links to the Zenodo record and
(eventually) the published IEEE proceeding article.

It is a requirement that at least one author of each accepted submission
attends the RO2018 workshop and at the IEEE eScience 2018 conference, where
registration fees applies.

Further details on submitting ...
...

Stian Soiland-Reyes (my source: by email)
The University of Manchester
http://www.esciencelab.org.uk/
http://orcid.org/0000-0001-9842-9718