Learning Health Systems: Volume 8, Issue 1 - January 2024

Learning Health Systems is an Open Access journal.

Volume 8, Issue 1 (January 2024)

All articles shown below are freely available and downloadable.

COMMENTARY

Socio‐technical infrastructure for a learning health system

 

Charles P. Friedman, Edwin A. Lomotan, Joshua E. Richardson, Jennifer L. Ridgeway

LEARNING FROM DATA

Privacy‐preserving record linkage across disparate institutions and datasets to enable a learning health system: The national COVID cohort collaborative (N3C) experience

 

Umberto Tachinardi, Shaun J. Grannis, Sam G. Michael, Leonie Misquitta, Jayme Dahlin, Usman Sheikh, Abel Kho, Jasmin Phua, Sara S. Rogovin, Benjamin Amor, Maya Choudhury, Philip Sparks, Amin Mannaa, Saad Ljazouli, Joel Saltz, Fred Prior, Ahmen Baghal, Kenneth Gersing, Peter J. Embi

RESEARCH REPORTS

Analysis of FRAME data (A‐FRAME): An analytic approach to assess the impact of adaptations on health services interventions and evaluations

 

Heather Z. Mui, Cati G. Brown-Johnson, Erika A. Saliba-Gustafsson, Anna Sophia Lessios, Mae Verano, Rachel Siden, Laura M. Holdsworth

 

Automated generation of comparator patients in the electronic medical record

 

Joseph Rigdon, Brian Ostasiewski, Kamah Woelfel, Kimberly D. Wiseman, Tim Hetherington, Stephen Downs, Marc Kowalkowski

 

Stakeholder perspectives on data sharing from pragmatic clinical trials: Unanticipated challenges for meeting emerging requirements

 

Stephanie R. Morain, Juli Bollinger, Kevin Weinfurt, Jeremy Sugarman

 

Learning healthcare systems in cardiology: A qualitative interview study on ethical dilemmas of a learning healthcare system

 

Sara Laurijssen, Rieke van der Graaf, Ewoud Schuit, Melina den Haan, Wouter van Dijk, Rolf Groenwold, Saskia le Sessie, Diederick Grobbee, Martine de Vries

 

Frameworks, guidelines, and tools to develop a learning health system for Indigenous health: An environmental scan for Canada

 

Emma Rice, Angela Mashford-Pringle, Jinfan Qiang, Lynn Henderson, Tammy MacLean, Justin Rhoden, Abigail Simms, Sterling Stutz

 

Predictive modeling for infectious diarrheal disease in pediatric populations: A systematic review

 

Billy Ogwel, Vincent Mzazi, Bryan O. Nyawanda, Gabriel Otieno, Richard Omore

TECHNICAL REPORT

Learning health system benefits: Development and initial validation of a framework

 

Lisa C. Welch, Sarah K. Brewer, Titus Schleyer, Denise Daudelin, Rechelle Paranal, Joe D. Hunt, Ann M. Dozier, Anna Perry, Alyssa B. Cabrera, Cheryl L. Gatto

BRIEF REPORTS

Exploring nationwide policy interventions to control COVID‐19 from the perspective of the rapid learning health system approach

 

Ayat Ahmadi, Leila Doshmangir, Reza Majdzadeh

 

Developing LHS scholars’ competency around reducing burnout and moral injury

 

Sirin Yilmaz, Michele LeClaire, Abbie Begnaud, Warren McKinney, Kasey R. Boehmer, Cory Schaffhausen, Mark Linzer

 

Assessment of learning health system science competency in the equity and justice domain

 

Patricia D. Franklin, Denise Drane

EXPERIENCE REPORTS

Training the next generation of delivery science researchers: 10‐year experience of a post‐doctoral research fellowship program within an integrated care system

 

Richard W Grant, Julie A Schmittdiel, Vincent X Liu, Karen R Estacio, Yi-Fen Irene Chen, Tracy A Lieu

 

Implementing the learning health system paradigm within academic health centers

 

Douglas Easterling, Anna Perry, David Miller

 

Learning from an equitable, data‐informed response to COVID‐19: Translating knowledge into future action and preparation

 

Morgen Stanzler, Johanna Figueroa, Andrew F. Beck, Marianne E. McPherson, Steve Miff, Heidi Penix, Jessica Little, Bhargavi Sampath, Pierre Barker, David M. Hartley

 

Conceptualizing and redefining successful patient engagement in patient advisory councils in learning health networks

 

Madeleine Huwe, Becky Woolf, Jennie David, Michael Seid, Shehzad Saeed, Peter Margolis, ImproveCareNow Pediatric IBD Learning Health System 

COMMENTARIES

Toward a common standard for data and specimen provenance in life sciences

 

Rudolf Wittner, Petr Holub, Cecilia Mascia, Francesca Frexia, Heimo Müller, Markus Plass, Clare Allocca, Fay Betsou, Tony Burdett, Ibon Cancio, Adriane Chapman, Martin Chapman, Mélanie Courtot, Vasa Curcin, Johann Eder, Mark Elliot, Katrina Exter, Carole Goble, Martin Golebiewski, Bron Kisler, Andreas Kremer, Simone Leo, Sheng Lin-Gibson, Anna Marsano, Marco Mattavelli, Josh Moore, Hiroki Nakae, Isabelle Perseil, Ayat Salman, James Sluka, Stian Soiland-Reyes, Caterina Strambio-De-Castillia, Michael Sussman, Jason R. Swedlow, Kurt Zatloukal, Jörg Geiger

 

Can we identify the prevalence of perinatal mental health using routinely collected health data?: A review of publicly available perinatal mental health data sources in England

 

Sarah Masefield, Kathryn Willan, Zoe Darwin, Sarah Blower, Chandani Nekitsing, Josie Dickerson

 

My source: Email request by -

Kathleen Young
Editorial Assistant, Learning Health Systems journal
Victor Vaughan
1111 East Catherine Street
Ann Arbor, MI 48109

At the Frontiers of Systemic Design - Relating Systems Thinking to Design (4)

RSD4 @ Banff Centre, Alberta   Sept 1-3, 2015

Submit Abstracts for Paper/Presentation or Workshops by March 15

As original members of the Design for Care book community I wanted to share with you the opportunity to participate in RSD, now in its fourth year and its first in North America. Last year we had 200 people in Oslo with speakers Ranulph Glanville, Hugh Dubberly and John Thackara. A day of workshops from leading practitioners in this field. Two days of engaging discussions with new thinking and case studies in systemic design, including a dedicated healthcare track.

For 3 years the Relating Systems Thinking and Design (RSD) symposium has convened scholars, design researchers, and serious practitioners to articulate and demonstrate the shared value of a transdisciplinary field with applications across all complex systems and services. We invite participation for RSD4 from all those working at the frontiers of systemic design – those leading real projects informed by systemic and complexity theories, and those researching systemic behaviours within real-world complexity, services and systems.

At the frontiers we are searching for those stories and experiments into new territory, stories of survival and sustainment, narratives of complexity unfolding into new terrains of application or discourse. We seek abstracts for presentations on real world projects that have led design into new fields, frontier domains, and both small steps or quantum leaps. These cases could demonstrate how systemic design has contributed to a case, how it adapts to the unique situation or how a case has employed systemic approaches.

Three types of contributions are suggested:

• Case studies of design-led projects involving clear systemic impacts and principles
• Research supporting systemic design applications and validating theoretical claims
• Workshops for collaborative discourse or sharing new methods and practices

Join us in Banff this year for this growing transdisciplinary symposium in the intimate and reflective space of the Banff Centre. Sponsored this year by the Alberta Government, the RSD4 Symposium is brought into being by co-chairs Alex Ryan (Gov of Alberta), Birger Sevaldson (Oslo School of Architecture and Design), Peter Jones (OCAD University, Toronto) and Jodi Forlizzi (Carnegie Mellon). www.systemic-design.net

Design for Care update: 
You received this email as a member of the original Design for Care community. If you'd like to stay in touch and hear about significant events from me every so often, stay subscribed.

If you don't yet have the book, please remember you have a 30% discount code of DFCFRIENDS only at Rosenfeld Media designforcare.com  Design for Care remains the only design practitioner reference in the healthcare domain, the only service and system design book in healthcare. There are texts on digital health and patient-centered care research, but this field is still very much in the early stages of development - but picking up quickly. The book continues to find new adopters and I'm finding myself at very different conferences than I used to be.

Feel free to contact me if you have questions about RSD, are interested in a presentation around the book's ideas, or are interested in our unique Master of Design programs at OCAD University.

PETER JONES, Ph.D.  @designforcare
Redesign Network and OCAD University
pjones AT ocadu.ca
Design Dialogues

Top 5 worst EMR myths: c/o Healthcare IT News

I came across this post by Molly Merrill, Associate Editor and thought I could add some comments.

I'm usually wary of posts of the list of ... and top 5, top 10 variety. You see much of social media is cordial - not the concentrate form - but the dilute as observed in many of the comments. Anyway ....

You can read the original full text for each of the five on Healthcare IT News, here are some additional thoughts:

1. EMRs are bad for “bedside manner".

They can be BAD it all depends on usability, engagement, attitude, requirement, the overall environment and the extent to which the EMR is considered in all its socio-technical glory. Whatever the research does show item #2 admits the qualitative differences that exist in the marketplace - some EMRs are easier-to-use. If we expand the engagement beyond the professionals then the bedside equation demands the patient is factored in.

With the right care philosophy and conceptual framework (#h2cm?) e-health records of all varieties (EHR, PHR, EMR, Summary ....) can also support a positive, person centered bedside manner - transforming it to one that chomps at the bit ;-) to become a community based manner.

2. You can't teach old doctors new tricks.

Continuing professional development (or its equivalent) dictates that older doctors and other senior members of the multidisciplinary health and social care team can (should and must!) learn new tricks right up to retirement. Lifelong learning applies to all.

3. Only hospitals use EMRs.

I've little experience here working in the community (and in mental health), but judging from the applications and the infrastructure that an older EMR may demand, I suspect that they are indeed hospital (organisational) centered. That clearly is changing as mobile, mhealth applications mature to meet the rigorous demands of this market.

4. Having my data stored in an EMR is a security risk.

The security of electronic records cannot be assured. Data on devices that is not encrypted - is an open door, especially when those devices are portable. (If the use of encryption leads to complacency then I am uneasy.) Disciplinary measures may follow, but they are not a remedy. The human link in the chain aside - electronic records can be security assured to international standards. Far better than paper records and the photographs (anybody?) of paper hospital files sitting at the side of a corridor and other horror stories.


(Former link: The New York Times, 21 August 2011, New Data Spill Shows Risk of Online Health Records)


5. EMRs are expensive.

There are beholders, stakeholders, budget holders and tax payers. Despite the need for research findings I like the reflection of reality in item 5 that presages new players using new architectures and approaches. I've always felt that standards are essential and yet how do they relate to the scope for innovations? What is the relationship and how does that impact the market and in turn costs?

I've come across an item in .Net magazine that relates to EMRs - indeed all health informatics - I'll post on this while in London and attending Drupalcon.

Image source:
http://www.computerweekly.com/blogs/cwdn/2010/08/carry-on-doctor-your-electronic-patient-records-are-secure.html