the What, When, Where, Why of online healthcare information exclusion

individual

|

INTERPERSONAL : SCIENCES

humanistic ----------------------------------------------- mechanistic

SOCIOLOGY : POLITICAL

|

group - population

Mental Health factors Lack of confidence in device usage Self-exclusion due to lack of motivation (sense of information overload, trust); or multiple illiteracies: 3Rs, health, IT, information. Articulation of MY  health information needs Health literacy (and others) still  emerging as a discipline Lack of time to focus on 'my' health due to other constraints  and social pressures: duties / work Ethics: Primacy of message? My health or forest logging,  over-fishing, selling x,y,z ?

Physical health factors  (mobility, senses, ableness ... Inverse Care Law) Geographic issues -  terrain remoteness   Non-existent or  poor broadband services No access to energy supply Quality and safety concerns Need for more research  - change studies, innovation. Media modalities: paper->digital, speech (theatre?)->digital ... Design, Usability Grammatical/reading age checks Individual's understanding  of the benefits of  online healthcare information.

No spare - individual - income  for online services due to  family welfare - food ... Languages not available Cultural factors, negative attitudes Personal space in group settings (privacy, concentration, engagement) Articulation of MY  family's health information needs   Availability of Community initiatives shared access schemes?

Policies / Funding  of telecoms infrastructure: community - industry - gov  collaboration & partnership* 'Market' conditions - governance Being 'permitted' to have access,  use of devices - girls/women. Being voluntarily displaced from local community by work (continuity) Government control of access to services -  political fire-walls ('noise'?) Use of pay-walls Incarceration Loss/Dispossession: Refugees - Disasters Deliberate publication of  fake-(health) news. Gov & Corp.  control of this and advertising.

Open to suggestions for any additions ...?


Prompt: HIFA message.

*See also previous post:
https://hodges-model.blogspot.com/2020/04/book-third-pillar.html

There's finding home and then there's Finding Home...

individual

|

INTERPERSONAL : SCIENCES

humanistic ----------------------------------------- mechanistic

SOCIOLOGY : POLITICAL

|

group - population

Home is where the heart is	Finding home
HOME

powerless power powerful

https://play.google.com/store/apps/details?id=org.unhcr.findinghome&hl=en

My source: Bloomberg

'Monitor Me' BBC 2 Horizon

This is an excellent TV program:

Dr Kevin Fong explores a medical revolution that promises to help us live longer, healthier lives. Inspired by the boom in health-related apps and gadgets, it's all about novel ways we can monitor ourselves around the clock. How we exercise, how we sleep, even how we sit.

Some doctors are now prescribing apps the way they once prescribed pills. Kevin meets the pioneers of this revolution. From the England Rugby 7s team, whose coach knows more about his players' health than a doctor would, to the most monitored man in the world who diagnosed a life threatening disease from his own data, without going to the doctor. (BBC 2 website)

ERCIM News No. 93 Special theme: "Mobile Computing"

Dear ERCIM News Reader,

ERCIM News No. 93 has just been published at
http://ercim-news.ercim.eu/en93

Special Theme: "Mobile Computing"
Guest editors: Edgar Weippl (SBA Research, AARIT, Austria) and Pietro Manzoni (Universitat Politècnica de Valéncia, SpaRCIM)
http://ercim-news.ercim.eu/en93/special


Keynote:  "Strategies of the European ICST Public Research Organisations towards Horizon 2020" by Domenico Laforenza
http://ercim-news.ercim.eu/en93/keynote

This issue for download in pdf:
http://ercim-news.ercim.eu/images/stories/EN93/EN93-web.pdf

Next issue: No. 94, July 2013 - Special Theme: "Intelligent Cars"

Thank you for your interest in ERCIM News.
Feel free to forward this message to others who might be interested.

Peter Kunz
ERCIM News central editor

------------------------------------------------------------------------
ERCIM "Alain Bensoussan" Fellowship Programme
ERCIM offers fellowships for PhD holders from all over the world. The next round is open!
Next deadline 30 April 2013
http://fellowship.ercim.eu/

The Bigger Picture - Hockney: Hodges' model 4 dynamic perspectives

In the decades to follow the patient, the carer, the health and social care professional must all be dynamic. All must be capable of movement - that is taking in several perspectives. As always composition is vital. So is choreography. As Hockney indicates the picture comprises both ordinary perspective and reverse perspective.


If static, found only for a moment: an assessment, plan, evaluation. A snapshot. Then moving a-gain.

Ever seeking the dynamic.
 
Acknowledgement: David Hockney


My source:
'The mass media has lost its perspective'.
David Hockney, The Financial Times, Page 11, October 27-28, 2012 

Image source:
http://www.tumblr.com/tagged/a-bigger-picture

Additional post:
http://hodges-model.blogspot.co.uk/2012/01/bigger-picture-david-hockney-ra.html

Leonardo: models, limbs and spirit

On the 3rd February I headed off to London for the weekend to visit the National Gallery with (two) tickets for the Leonardo exhibition. This was an amazing experience on the Saturday afternoon. The exhibition was small in terms of room sizes and across two floors, but it was very busy and warm even with timed ticketed entry. The show comprised much more than the main exhibits; the drawings, several inspired works by Leonardo's students and audio commentary adding context. Text descriptions and several quotations also proved informative:

A good painter has two main objects to paint, man and the intention of his soul. The former is easy, the latter hard as he has to represent it by the attitude and movement of the limbs.

Leonardo da Vinci

Previous post:

Nursing: Art and Science ... Fra Angelico to Leonardo



Catalogue image source:
http://www.nationalgallery.co.uk/products/leonardo_exhibition/leonardo_da_vinci_exhibition_catalogue/p_leonardoEC

Top 5 worst EMR myths: c/o Healthcare IT News

I came across this post by Molly Merrill, Associate Editor and thought I could add some comments.

I'm usually wary of posts of the list of ... and top 5, top 10 variety. You see much of social media is cordial - not the concentrate form - but the dilute as observed in many of the comments. Anyway ....

You can read the original full text for each of the five on Healthcare IT News, here are some additional thoughts:

1. EMRs are bad for “bedside manner".

They can be BAD it all depends on usability, engagement, attitude, requirement, the overall environment and the extent to which the EMR is considered in all its socio-technical glory. Whatever the research does show item #2 admits the qualitative differences that exist in the marketplace - some EMRs are easier-to-use. If we expand the engagement beyond the professionals then the bedside equation demands the patient is factored in.

With the right care philosophy and conceptual framework (#h2cm?) e-health records of all varieties (EHR, PHR, EMR, Summary ....) can also support a positive, person centered bedside manner - transforming it to one that chomps at the bit ;-) to become a community based manner.

2. You can't teach old doctors new tricks.

Continuing professional development (or its equivalent) dictates that older doctors and other senior members of the multidisciplinary health and social care team can (should and must!) learn new tricks right up to retirement. Lifelong learning applies to all.

3. Only hospitals use EMRs.

I've little experience here working in the community (and in mental health), but judging from the applications and the infrastructure that an older EMR may demand, I suspect that they are indeed hospital (organisational) centered. That clearly is changing as mobile, mhealth applications mature to meet the rigorous demands of this market.

4. Having my data stored in an EMR is a security risk.

The security of electronic records cannot be assured. Data on devices that is not encrypted - is an open door, especially when those devices are portable. (If the use of encryption leads to complacency then I am uneasy.) Disciplinary measures may follow, but they are not a remedy. The human link in the chain aside - electronic records can be security assured to international standards. Far better than paper records and the photographs (anybody?) of paper hospital files sitting at the side of a corridor and other horror stories.


(Former link: The New York Times, 21 August 2011, New Data Spill Shows Risk of Online Health Records)


5. EMRs are expensive.

There are beholders, stakeholders, budget holders and tax payers. Despite the need for research findings I like the reflection of reality in item 5 that presages new players using new architectures and approaches. I've always felt that standards are essential and yet how do they relate to the scope for innovations? What is the relationship and how does that impact the market and in turn costs?

I've come across an item in .Net magazine that relates to EMRs - indeed all health informatics - I'll post on this while in London and attending Drupalcon.

Image source:
http://www.computerweekly.com/blogs/cwdn/2010/08/carry-on-doctor-your-electronic-patient-records-are-secure.html

ERCIM News No. 84 Special theme "Intelligent and Cognitive Systems"

Dear ERCIM News Reader,

ERCIM News No. 84 has just been published at http://ercim-news.ercim.eu/

Special Theme:
"Intelligent and Cognitive Systems"
- coordinated by: Rüdiger Dillmann and Tamim Asfour, Institute for Anthropomatics, Institute of Technology Karlsruhe, and Antonis Argyros, FORTH-ICS

- featuring the keynote "Cognitive Systems and Robotics" in the ICT Programme of the European Commission, by Hans-Georg Stork, European Commission, Information Society and Media Directorate General, Unit E5 “Cognitive Systems,Interaction, Robotics.

Includes on p.20
Long-term Evaluation of a Mobile Remote Presence Robot for the Elderly
by Amedeo Cesta, Gabriella Cortellessa, Lorenza Tiberio

Next issue: April 2011 - Special Theme: "Unconventional Computing Paradigms"

Thank you for your interest in ERCIM News.

Feel free to forward this message to others who might be interested.
Best regards,
Peter Kunz
ERCIM News central editor

Drupalcon Paris 2009: my sessions plan

As followers of h2cm on Twitter will know at the moment I am in Paris attending the European Drupalcon for 2009. I can't believe that 12 months ago I was leaving Szeged after Drupalcon 2008. You on the other hand probably can't believe that there's still no new site for Hodges' model. Well I am in no real hurry and I am enjoying the journey - literally at present.

Today, for me and other 'non-coders' there is a drupalcamp with impromptu yet very interesting talks (e.g. Google Wave and a Ruby gem for Drupal!). Tomorrow things kick off proper and here are some of the sessions I plan to attend:

Dries - The State of Drupal

webchick - Drupal 7 Status Update and Next Steps

weitzman - Explore the glory of Drupal 7's improved render and theming systems

Crell - Views 2 for developers

Benjamin Melançon - Taxonomy Everywhere: D7 Core Overhaul and the Expanding Contrib Universe
or -
yoroy - Communicating design - Sketching your way to understanding

twom - Basics of making a mobile website with Drupal

or -

bjaspan - Intro to the Field API for Module Developers

or -

fago -Rules: How to leverage rule-based automation on your sites!

Just like other streamed conferences it is hard to decide what to follow and this is just one day!

Patiala Health Foundation Launches SevaMobile Trauma Initiative

FOR IMMEDIATE RELEASE: Organization focuses on ways to combat traffic and provide critical and emergency trauma care to those in need.

(Weirton, WV / Patiala Punjab India) - The Patiala Health Foundation, a registered 501-C3 non-profit based in the United States, has started its second phase of providing critical health care services to those in need. Today the organization is announcing the launch of three “SevaMobiles”, or charity vehicles, that will bring trauma care to injured people instead of waiting for them to get to hospitals.

The SevaMobile Initiative is a major innovation in Indian healthcare because it will shorten the time from emergency call to treatment by 50 percent. For many, these precious minutes can be the difference between life and death. Traffic in major metropolitan areas is a two-pronged danger in India. Firstly, many trauma deaths are caused by automobile accidents and secondly, the traffic itself slows down the ability for care professionals to reach victims and transport them to hospitals.

Trauma-related deaths occur every 1.9 minutes in India, according to a 2004 report in the Indian Journal of Critical Care Medicine [IJCCM]. With traffic increasing, trauma will move from its current ninth position to become India’s third leading cause of death by 2020. The 10 percent increase in deaths from injuries in Punjab between 1983 and 1992 demonstrates the urgent need for trauma facilities in the region.

The SevaMobile Initiative will consist of a fully functional mobile trauma unit that also provides emergency critical care on site. In addition to this ambulance, two SevaMobile motorcycles will also be able to navigate through traffic and narrow roads to provide first response immediate care and stabilization. This first level of care will allow for victims to be quickly treated while more comprehensive care, via an ambulance, is on its way. The service will be offered free to those who cannot afford medical services and will be funded by the Patiala Health Foundation.

"In our analysis of urban healthcare, we found that there were many efforts underway to build new structures and hospitals, but there was still a real need to reach victims faster," said Patiala Health Foundation's Dr. Amrik S. Chattha. "We believe the SevaMobile Initiative will be a major innovation, impacting the lives of people by treating them quickly and more efficiently. We also believe that pre-hospital care, such as that offered by the SevaMobile, should be a right to all injured victims."

The organization is currently planning to partner with public and private hospitals in the area to transport patients to larger treatments centers. Patients who cannot afford the medical fees will be treated free of charge courtesy of the Patiala Health Foundation. Those who can afford the service will pay for their care, enabling the program to partially fund itself, while also creating a longer sustainability of operations.

"We want to help those in need, but also build a system that supports itself," noted Dr. Harish Sood, another Patiala Health Foundation board member who is spearheading the SevaMobile effort on the ground in India with a collection of local trustees. Additionally, fifteen retired alumni of Patiala Medical College are volunteering their services and time to assist with the project.

SevaMobiles are planning to commence operations this winter. The project is funded by the Patiala Health Foundation whose funds have been raised by Indian-Americans across the United States through six benefit events in Ohio, California, North Carolina, New York and, most recently, Virginia. The organization is also actively looking for additional donors, corporate partners and grant giving organizations interested in improving health care for low-income citizens within India.

For more information on the Patiala Health Foundation please contact:

Patiala Health Foundation at 304-723-4151 or amrikchattha AT yahoo.com.

Image source (Courtesy of Getty Images)
http://www.vscconsulting.com/dev/clients/MediaCenters/8/Ambulance%20Image_motorcycle.jpg

My source: Vijay Chattha, PHF PR Contact

Additional links:

Ideas Factory posts

DoH (2005). Taking healthcare to the patient: Transforming NHS ambulance services.

iPhone™, Open Handset Alliance™ - Android™

With the iPhone now available here in the UK, the mobile market is bound to change and quickly - the latest and greatest never last long.

"Unlimited data" sounds great, but the usual fair use caveats apply.

Elsewhere, Google has announced the Android Developer Challenge, supporting OHA ...

Welcome to the Open Handset Alliance™, a group of more than 30 technology and mobile companies who have come together to accelerate innovation in mobile and offer consumers a richer, less expensive, and better mobile experience. Together we have developed Android™, the first complete, open, and free mobile platform.

We are committed to commercially deploy handsets and services using the Android Platform in the second half of 2008. An early look at the Android Software Development Kit (SDK) is now available.

On the OHA site -

Participate in the Android Developer Challenge, which will give away $10 million to developers who build apps on the platform.

Better watch that market space!