News on two papers: Deprivation of Liberty Safeguards & Threshold Concepts

 - plus of course Hodges' model

While I could find out (here on W2tQ!?), I can't remember exactly when I started a writing project about threshold concepts, deprivation of liberty safeguards in the context of residential care and nursing homes. It was at least 2013, and may date back to 2011. Well, whenever it was: what a palaver! 

One paper, rejected, the advice was to split the work and create two. The two papers were then also rejected. My writing is always off-piste as it were, on-off too; and then ironically COVID-19 may have helped too? Afterwards, I started to pick it up again - the same title but parts 1 & 2. I never heard from one journal, so quickly moved on. Each time, the work improved thanks to two reviewers and their feedback. All the time my thought about Hodges' model has itself changed: I like to think progressed. With further revision, I finally had two standalone papers.

The important thing is the news received this week: Re. ...

'"A Conceptual Mapping Exercise of Deprivation of Liberty Safeguards in Residential & Community Care using Hodges’ Model and Threshold Concepts". I am pleased to be able to tell you that has been accepted for publication in Journal of Evaluation in Clinical Practice.'

A further paper (part 1 originally) same journal, to be referenced in the above, needs some minor revisions.

I am worried about another paper, with a similar history, that I can now turn my attention to (this itself speaks volumes!). I can see I need to alter the emphasis, balance of Hodges' model, diagrams, psychological therapies and case formulation. A co-author would help, but of course everyone's busy.

So if you're writing and struggling: do keep going!

The QUALCARE Scale - in Hodges' model

 Clearing yet another piece of notepaper from the 1990s, when I wrote (from the abstract):

"The QUALCARE Scale is an observational rating scale designed to quantify the quality of family caregiving to home-dwelling elders in six areas: physical, medical management, psychosocial, environmental, human rights and financial."

 (extra note - 53 item Likert scale format.)

INDIVIDUAL

|

 INTERPERSONAL    :     SCIENCES               

HUMANISTIC --------------------------------------  MECHANISTIC      

SOCIOLOGY  :   POLITICAL 

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GROUP

PSYCHO-	PHYSICAL ENVIRONMENT MEDICAL MANAGEMENT
-SOCIAL ENVIRONMENT	(MANAGEMENT) HUMAN RIGHTS FINANCIAL

 

Phillips LR, Morrison EF, Chae YM. The QUALCARE Scale: testing of a measurement instrument for clinical practice. Int J Nurs Stud. 1990;27(1):77-91. doi: 10.1016/0020-7489(90)90025-e. PMID: 2312237.

I had encountered Hodges' model in 1987-88 [ Manchester Polytechnic College, now Manchester Metropolitan University, CPN(Cert.) course ], but the initial (and thus far only) website appeared in 1998 (-2015):

https://web.archive.org/web/19990501185433/http://www.p-jones.demon.co.uk/index.htm

Social care [ Not... ]

 INDIVIDUAL
|

   INTERPERSONAL    :     SCIENCES               

HUMANISTIC --------------------------------------  MECHANISTIC      

SOCIOLOGY  :   POLITICAL 

|

GROUP

	"No minister, a “protective ring” was not thrown around care homes"

 

McKee M. No minister, a “protective ring” was not thrown around care homes BMJ 2022; 377, :o1116 doi:10.1136/bmj.o1116

Book: Labours of Love

individual

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INTERPERSONAL : SCIENCES

humanistic ----------------------------------------------- mechanistic

SOCIOLOGY : POLITICAL

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group - population

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|

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Labours of Love

"Good care shown to us in our most vulnerable moments can serve 'as an epiphany, not necessarily leading to new knowledge, but to recognition of the importance of something already known.	"The Lancet projects that the number of over-85s requiring 24-hour care will double by 2035."
Bad care, in contrast, can dehumanise us ... 'our sense of dignity is precarious'."	Economic precarity "the invisible heart" "in contrast to Adam Smith's "'invisible hand'"

 

See also previously on  W2tQ:

https://hodges-model.blogspot.com/search/label/social%20care

My source:

Urwin, R. (2020) Crying out for change, The Sunday Times, Culture, 27 September, pp.28-29.

Inverse Care Law ... at Social Care's Door

Since 2015 I've had four 'conversations' with the doctors at A&E upon mum's attendance and subsequent admission on a couple of occasions. Initially, I was surprised if not shocked by the speed with which the 'conversation' followed on treatment, the extent of this and the question of resus. The further interactions were still emotionally jarring, even when expected and telegraphed. I also understand: to an extent. Repeated chest infection or urine infection had resulted in confusion, delirium that varied. on one occasion, at the nursing home there was also suddenly talk of a diagnosis of dementia, which prompted social services to wonder, like family and staff, where exactly this diagnosis had come from and investigate. (Another post?)

Mum has been very poorly, most recently in November. What surprised and shocked was the 'conversation' at the end of the bed when I knew mum - with mental capacity at that time was most likely listening. The primacy of person-centredness seemed to be by-passed. I suggested the doctor ask mum since once hydrated she would be fine. There has been a sense of a script being followed with some pressure - urgency behind it, if not a 'prescription'. I empathised with the doctors, often FY1 FY2; such matters are never easy. Now amid COVID-19 there is alarm as social care are challenged with taking on a new role, for which they are ill-equipped. 

In health care you are always conscious of the inverse care law, it seems there is another care law in operation that gives cause to worry for those who cannot advocate for themselves or have no independent advocate. Perhaps there is another inverse law that runs concurrently concerning ethics. Triage, is real. Objectively, as a nurse you think "Am I being selfish?". But, as eldest son - absolutely not. These conversations, and the future aside, the doctors and team as a whole have worked (absolute) wonders for which mum and the family will always be grateful.

Be Well, Be Safe All.

 

individual

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INTERPERSONAL : SCIENCES

humanistic ----------------------------------------------- mechanistic

SOCIOLOGY : POLITICAL

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group - population

"There should be no wrong door and every  service should reverse the ...	... Inverse Care Law, which simply states those people in need of health and social care the most  get them the least."
https://www.smithsltd.co.uk/doors/composite	By MrPanyGoff - Own work, CC BY-SA 3.0, https://commons.wikimedia.org/w/index.php?curid=19702555

A comment at The King’s Fund, by Lord Victor Adebowale.

Partnership Working, Time to Talk, Drink and Drugs News, October 2018, pp.10-11
https://drinkanddrugsnews.com/wp-content/uploads/2018/10/DDN-October-2018.pdf

If anyone has a photo of a red door at a care or nursing home that I can display above please let me know.

ERCIM News No. 114 Special Theme "Human-Robot Interaction"

ERCIM News 114

Dear ERCIM News Reader,

ERCIM News No. 114 has just been published at https://ercim-news.ercim.eu/

featuring the Special Theme"Human-Robot Interaction", coordinated by Serena Ivaldi (Inria) and Maria Pateraki (ICS-FORTH)

The section "Research and Innovation" reports on news about research activities and innovative developments from European research institutes.

This issue is also available for download in pdf and ePUB

Thank you for your interest in ERCIM News. Feel free to forward this message to anyone who might be interested.

Includes:

"Assistive robots and healthcare applications within the context of HRI are discussed in Cesta et al. (page 18), Hindriks et al. (page 20) and Efthimiou et al. (page 21). Cesta et al. present a cognitive architecture combining human perception and AI techniques to infer knowledge about the status of a user and the environment and plan personalised assistive robot actions for elderly people. Hindriks et al. report on their first experiments on a social robot that supports collection of patient data in a hospital, to reduce the workload of nurses. Efthimiou et al. are developing a multimodal user-centred HRI solution that encourages trust and acceptance of assistive robots for elderly people." p.7.

p. 35 Corpus Conversion Service: A Machine Learning Platform to Ingest Documents at Scale
by Michele Dolfi, Christoph Auer, Peter W J Staar and Costas Bekas (IBM Research Zurich)

Next issue:
No. 115  July 2018
Special Theme: "Digital Twins"

IxD&A Interaction Design and Architecture(s) Journal: TEL + 'Designing Self-Care For Everyday Life'

The Design of TeL with Evidence and Users

N. 23, Winter 2014

Special issue on:

The Design of TeL with Evidence and Users

- which includes:

Focus Section on 'Designing Self-Care For Everyday Life'

Ivo Maathuis, Valerie M Jones, Nelly Oudshoorn
Telecare and self-management: a guideline for anticipating future care in scenario-based design, pp. 142-159

Koen van Turnhout, Jasper Jeurens, Martin Verhey, Pascal Wientjes, René Bakker
The Healthy Elderly: Case Studies in Persuasive Design, pp. 160-172

Juan Jimenez Garcia, Natalia Romero, David Keyson, Paul Havinga, Reflective Healthcare Systems: micro-Cycle of Self-Reflection to empower users, pp. 173-190.

ERCIM News No. 84 Special theme "Intelligent and Cognitive Systems"

Dear ERCIM News Reader,

ERCIM News No. 84 has just been published at http://ercim-news.ercim.eu/

Special Theme:
"Intelligent and Cognitive Systems"
- coordinated by: Rüdiger Dillmann and Tamim Asfour, Institute for Anthropomatics, Institute of Technology Karlsruhe, and Antonis Argyros, FORTH-ICS

- featuring the keynote "Cognitive Systems and Robotics" in the ICT Programme of the European Commission, by Hans-Georg Stork, European Commission, Information Society and Media Directorate General, Unit E5 “Cognitive Systems,Interaction, Robotics.

Includes on p.20
Long-term Evaluation of a Mobile Remote Presence Robot for the Elderly
by Amedeo Cesta, Gabriella Cortellessa, Lorenza Tiberio

Next issue: April 2011 - Special Theme: "Unconventional Computing Paradigms"

Thank you for your interest in ERCIM News.

Feel free to forward this message to others who might be interested.
Best regards,
Peter Kunz
ERCIM News central editor

Romeo and Juliet – the care home version

Octogenarian versions of Shakespeare's lovers to feature in Bristol production

Directed By Tom Morris

Fresh from co-directing the West End hit, War Horse, and Tom Stoppard and Andre Previn's orchestral experiment Every Good Boy Deserves Favour at the National Theatre, Tom Morris' own theatrical exploration of Bristol Old Vic begins with a project that has been twelve years in the making: Juliet and Her Romeo, the story of a flourishing love affair in one generation, crushed by the financial and political concerns of another.

Developed since 1997 in collaboration with Minder producer Sean O'Connor, the production uses Shakespeare's text, but casts our lovers in their 80s, with their anxious children, not their parents, seeking to prevent an imprudent and costly match.
With Sian Phillips as Juliet and Michael Byrne as Romeo, this production invites a generation of actors of global stature to play great Shakespearean roles which they never thought they'd play again. Tim Barlow, Terry Taplin and Michael Medwin return to Bristol Old Vic as Tybalt, Benvolio and Paris. Dudley Sutton makes his debut on the Bristol Old Vic stage as Mercutio.
What family has not wrestled with the question of how we care for our parents as they become older and frailer? Who will love them? Who will support them? Who will pay for their care?
And with that care, what controls should we apply? If we have taken power of attorney, what about the freedom to fall in love, to give gifts, to marry unwisely?
As Ben Power's recent two-handed exploration of passionate love remembered in old age demonstrated, Shakespeare's text is a powerful love story for any generation.
Signed, Captioned and Audio Described Performances.
Signed performance: Sat 10 April 2.30pm
Captioned performance: Sat 17 April 2.30pm
Audio described performance: Sat 24 April 2.30pm
Additional link:
BBC Culture Show