Hodges' Model: Welcome to the QUAD: carers

Hodges' model is a conceptual framework to support reflection and critical thinking. Situated, the model can help integrate all disciplines (academic and professional). Amid news items, are posts that illustrate the scope and application of the model. A bibliography and A4 template are provided in the sidebar. Welcome to the QUAD ...

Showing posts with label carers. Show all posts
Showing posts with label carers. Show all posts

Thursday, June 11, 2026

NHS Corridor Care – Urgent and Emergency Care Daily Situation Reports

If politicians & policymakers regularly 'walked'
 all the corridors of Hodges' model -
 they would see the false economy 
of their combined incremental works.

Incremental? Yes, in first being a 'temporary measure', then having a deleterious impact as the duration per patient and number of patients on corridors increased.

Now to the situation when the standard of care is unsafe, sub-standard, and denigrates the NHS as a social institution.

The fact of insufficient beds and its effect on care (pathways) and patient (and family) experiences severely affects staff morale, as they recognise subtle abuse, a precursor to structural and attitudinal changes that foster, encourage and establish institutionalised harm.

Staff also realise that they risk being de-skilled, 're-educated' -
becoming less compassionate ... (a 'lesser Nurse') as corridor care 
and its consequences are normalised.

Ignoring demographic trends and without an alternative concerted 
preventive/health education and health promoting plan, this is the result 
of the health and social care funding and policy
of successive governments, enacted by NHS management.

NHS England: Corridor Care – Urgent and Emergency Care Daily Situation Reports
https://www.england.nhs.uk/statistics/statistical-work-areas/corridor-care-urgent-and-emergency-care-daily-situation-reports/

Friday, February 27, 2026

Rare Disease Day 2026 Official Video

28 February is 
Rare Disease Day


'Raising awareness and generating change for the 300 million people worldwide living with a rare disease, their families and carers.'

Manchester, UK https://www.rarediseaseday.org/event/light-up-for-rare-2/

Continued ... https://www.rarediseaseday.org/

Monday, February 16, 2026

The UK Dementia Awards 2026

Dear CHAIN member,

We would like to draw your attention to the following opportunity. Please pass on as appropriate. Thank you.

Dementia Community

The UK Dementia Awards 2026

The awards are judged by a panel of dementia experts, including people with lived experience, ensuring that every nomination is seen, valued, and understood.

Whether nominating a colleague, a team, a service, or someone whose quiet dedication deserves the spotlight, this is the chance to say: you matter, and your work matters too.

Friday 27 February 2026, 5pm: Nominations Close.

For more details please see: https://journalofdementiacare.co.uk/awards/listings
Regards,

Irina Johnston

CHAIN Administrative Assistant

 

If you wish to publicise information on the CHAIN Network please email your request to: enquiries AT chain-network.org.uk

 

CHAIN - Contact, Help, Advice and Information Network – is an online international network for people working in health and social care. For more information on CHAIN and joining the network please visit website: www.chain-network.org.uk

 

Follow CHAIN on X: @CHAIN_Network ; Connect with CHAIN on LinkedIn

Previously: 'dementia' : 'carer'

Thursday, November 13, 2025

Friday, August 22, 2025

Paper - (finally!) "A generic model and conceptual framework to prime curiosity across health and social care ..."

 It has been over a decade but at last the second* paper has been published in Journal of Evaluation in Clinical Practice:

Jones, P. (2025), A Generic Model and Conceptual Framework to Prime Curiosity Across Health and Social Care Disciplines to Facilitate Lifelong Learning. Journal of Evaluation in Clinical Practice, 31: e70252. https://doi.org/10.1111/jep.70252

ABSTRACT 

Rationale: The Corona virus pandemic highlighted the importance in continuity of the physical and emotional labour across all care sectors. Synergy between healthcare in hospitals, and community services must be allied with social care; and be central to integrated and efficient policy and service delivery. Services were found wanting in the pandemic and in recurring winter crises. The politics of funding for care delivered in rest and nursing homes remains contested, awaiting long‐promised governmental action. The workforce is recognised as dedicated, skilled, compassionate and yet under‐valued and under‐paid; managers face ongoing recruitment challenges, with a national shortage of staff, and high turnover of personnel. A National Care Service is awaited in England and Wales. 

Aims and Objectives: This study explores the ongoing care crisis, using the educational lens of threshold concepts, projected, analysed and synthesised of a generic conceptual framework, known as Hodges' model. Readers will understand Hodges' model and threshold concepts being equipped to explain both. 

Methods: The study is descriptive and uses a conceptual mapping approach supported by discussion and literature. Additional resources and avenues for ongoing study are also provided. 

Conclusion: In conclusion, Hodges' model is a pragmatic, practice‐based tool, that can support and sustain curiosity for workforce learning and development. 

Acknowledgements I would like to thank Messrs Mark Bird and Matthew Graham and the journal's reviewers for comments on drafts of this study; and acknowledge the effort of Dr Michael T. Flanagan in creating the informative threshold concepts resource (referred to above). 


https://onlinelibrary.wiley.com/share/author/IRPNBR2KHJNYJK8XUAW6?target=10.1111/jep.70252

*This paper was originally the first of a two-part work. Feedback from reviewers suggested the papers be standalone. United now, in one journal.

Many thanks to the reviewers, editor, editorial and publications team at JECP.

This paper has been added to bibliography in the blog's sidebar.

Friday, June 27, 2025

Politicians! Please leave it to the Public ...

Individual
|
      INTERPERSONAL    :     SCIENCES               
HUMANISTIC  --------------------------------------  MECHANISTIC      
 SOCIOLOGY  :    POLITICAL 
|
Group


'Kick' - a verb, more often it seems, a noun.


Health
and
Social Care?
Gent kicking a can
Wall poster/photo Corfu Town
... to kick
the can
down the road!

Tuesday, December 24, 2024

Young Carers Choir - 'Love is Enough'

'Young carers face many challenges throughout the year and Christmas can be an especially tough time.

When their friends are having fun, young carers’ responsibilities don’t stop. That’s why we’re delighted Sir Ed Davey and the Bath Philharmonia’s Young Carers Choir have come together to record for a wonderful Christmas song – Love is Enough. 

The song, in support of young carers through Carers Trust and the Bath Philharmonia, has been written by young carers and shines a light on their lives.' 

continued ... 

Wednesday, March 13, 2024

UK Higher Education Survey of Carers

From: Marie Moreau <marie_moreau AT HOTMAIL.COM>
Subject: UK HE survey of carers

Dear Colleagues

I am sharing this final call as we will be closing our survey of carers in UK HE at the end of the month.

Many thanks to those of you who have replied.

To be eligible, you need to be employed by a UK-based university and to be a carer (broadly understood, including as a parent, for a friend, a relative etc.). Here’s the link:

https://angliaruskin.onlinesurveys.ac.uk/national-carers-survey-uk

The outcomes will help us to better understand the experiences of carers in higher education and to provide recommendations to the sector.

We have received ethical approval for this project and are happy to address any question.

Warm wishes

Marie-Pierre Moreau
ARU, Cambridge, UK


My source (with some editing):
This message was issued to members of www.jiscmail.ac.uk/FREEDOM-OF-INFORMATION, a mailing list hosted by www.jiscmail.ac.uk, terms & conditions are available at https://www.jiscmail.ac.uk/policyandsecurity/

Monday, July 18, 2022

The QUALCARE Scale - in Hodges' model

 Clearing yet another piece of notepaper from the 1990s, when I wrote (from the abstract):

"The QUALCARE Scale is an observational rating scale designed to quantify the quality of family caregiving to home-dwelling elders in six areas: physical, medical management, psychosocial, environmental, human rights and financial."

 (extra note - 53 item Likert scale format.)

INDIVIDUAL
|
 INTERPERSONAL    :     SCIENCES               
HUMANISTIC --------------------------------------  MECHANISTIC      
SOCIOLOGY  :   POLITICAL 
|
GROUP




PSYCHO-


PHYSICAL

ENVIRONMENT

MEDICAL MANAGEMENT
-SOCIAL

ENVIRONMENT



(MANAGEMENT)

HUMAN RIGHTS

FINANCIAL

 

Phillips LR, Morrison EF, Chae YM. The QUALCARE Scale: testing of a measurement instrument for clinical practice. Int J Nurs Stud. 1990;27(1):77-91. doi: 10.1016/0020-7489(90)90025-e. PMID: 2312237.

I had encountered Hodges' model in 1987-88 [ Manchester Polytechnic College, now Manchester Metropolitan University, CPN(Cert.) course ], but the initial (and thus far only) website appeared in 1998 (-2015):

https://web.archive.org/web/19990501185433/http://www.p-jones.demon.co.uk/index.htm

Sunday, May 01, 2022

APPGs - All Party Parliamentary Groups (Revisited: One-By-One ...?)

Previously in "How many APPGs does your Garden Grow?", I wondered about the number and variety of APPGs related to health and social care. How do they integrate their work, the inputs, outputs and impact on legislation, policy, safety, standards, delivery of care and sustainability in the future? 

A selection of APPGs includes:

APPG on 22q11 Syndrome
APPG on Access to Medicines and Medical Devices

APPG on Acquired Brain Injury

APPG on Adult Social Care

APPG on Ageing and Older People
APPG on Air Pollution
APPG on Allergy
APPG on Antibiotics
APPG on Arts, Health and Wellbeing 

APPG on Autism
APPG on
Axial Spondyloarthritis
APPG on Baby Loss
APPG on Beauty, Aesthetics and Wellbeing
APPG on Black Maternal Health
APPG on
Bladder and Bowel Continence Care
APPG on Blood Cancer
APPG on Brain Tumours
APPG on Breast Cancer

APPG on Bullying
APPG on Cancers
APPG on Carbon Monoxide
APPG on Cardiac Risk in the Young

APPG on Carers
APPG on Cerebral Palsy
APPG on Childhood Trauma
APPG on Children of Alcoholics
APPG on Children who Need Palliative Care
APPG on Children, Teenagers and Young Adults with Cancer

APPG on Cleaning and Hygiene
APPG on Complex Need and Dual Diagnosis
APPG on Coronavirus
APPG on Dementia and Adult Social Care
APPG on Dementia
APPG on Dentistry and Oral Health

APPG on Disability
APPG on Down Syndrome
APPG on
Dyslexia and Other Specific Learning Difficulties
APPG on Eating Disorders
APPG on Extreme Poverty
APPG on Eye Health and Visual Impairment
APPG on Food and Health
[
APPG on Further Education and Lifelong Learning]
APPG on Gaps in Support
APPG on Global Health
APPG on Health
APPG on Health and the Natural Environment
APPG on Health in all Policies
APPG on Health Infrastructure
APPG on HIV and AIDS
APPG on Learning Disability
APPG on Multiple Sclerosis
APPG on PANS and PANDAS
APPG on Parkinson's
APPG on Terminal Illness
APPG on
Water, Sanitation and Hygiene
[APPG on Whistleblowing]
APPG on Yoga in Society

APPG on Young People's Health

There is a 'full' register at:

https://publications.parliament.uk/pa/cm/cmallparty/220323/register-220323.pdf

Revisiting the previous post and its list of APPGs, extended above, you can see some obvious potential sources of influence for several APPGs.

Scanning the register with the list of APPG by countries, I was disappointed not to see Earth, or Gaia listed. But then they are probably not recognised as 'political' entities? Which is the ongoing challenge in the climate crisis (recognition of ecocide?). 

What about, more reasonably 'Global Health'? This was not listed as a country, but further reading is rewarded. There it is - 'Global Health':

https://globalhealth.inparliament.uk/

[ The link in the register is currently broken. ]

I should have remembered this APPG having posted before:

https://hodges-model.blogspot.com/2016/10/triple-impact-nursing.html

On the radio this past week I heard mention of Transparency International and published recommendations to control lobbying, prevent corruption and malign influences of sponsorship.

See also:

"APPGs scandal: MP reveals how lobby firm tried to use her to influence Parliament"

https://www.opendemocracy.net/en/dark-money-investigations/appgs-scandal-mp-reveals-lobby-firm-tried-influence-parliament-alison-thewliss-snp/

This post also helps inform a paper on Hodges' model, Early Intervention in Psychoses and research.

There are so many APPGs related to health, and associated with the purposes of Hodges' model.

One discovery - I must follow the APPG on Health Infrastructure.

Thursday, February 03, 2022

Lewy Body Society - funding opportunity

Dear CHAIN member,

We would like to draw your attention to the following funding opportunity. Please pass on as appropriate. Thank you.
 ------------

Lewy Body Society

We are pleased to announce that the call for applications to our 2022 grant round is now open.

We welcome applications for projects that will increase our understanding of Lewy body dementia as well as improving care for people living with this condition and their families and carers.

Deadline for applications: Thursday 14h April 2022 at 12 noon

Decisions and Start Dates: Most funding decisions will likely be communicated in October 2022.

For more details please see: https://www.lewybody.org/research/lbs-research-strategy/

Regards,

Irina Johnston

CHAIN Administrative Assistant

My source:

CHAIN - Contact, Help, Advice and Information Network – is an online international network for people working in health and social care. For more information on CHAIN and joining the network please visit website: www.chain-network.org.uk

@CHAIN_Network

 

Friday, June 25, 2021

Book: Mind, State and Society

Social History of Psychiatry and Mental Health in Britain 1960–2010

open access
 
individual
|
INTERPERSONAL : SCIENCES
humanistic ----------------------------------------------- mechanistic
SOCIOLOGY : POLITICAL
|
group
MIND

SOCIETY



STATE


Thanks to George Ikkos:

https://twitter.com/gikkos1/status/1406329440540499972?s=20

Friday, April 16, 2021

Tracking the Alzheimer's-Down syndrome connection

individual
|
INTERPERSONAL : SCIENCES
humanistic ----------------------------------------------- mechanistic
SOCIOLOGY : POLITICAL
|
group

Communication, speech
self expression
personhood
identity
memory
personality
mood
Extend meaningful quality of life
Age 40
most people with Down syndrome develop beta amyloid plaques in the brain — a key characteristic of Alzheimer’s disease. Scientists believe this is because they have an extra copy of chromosome 21, which carries an amyloid-producing gene.Major international research effort, (ages 25+) plus siblings over five years.
Multisite Alzheimer’s Biomarkers Consortium — Down Syndrome (ABC-DS) study
Biomarkers, genetic background, environmental, metabolic and other physiological factors

Intergenerational angst
if parent/family member a primary carer?
Help families prepare for what’s going to happen potentially with their loved one

Funded by a $109 million grant
from the National Institutes of Health

 My source:

 Learn more about the study at mind.uci.edu/adrc/about

 

Sunday, November 17, 2019

Patient-centred + Treatment = Self Care Week

This week 18-24th November is Self Care Week

http://www.scie.eu/scwe/


Hodges' model might tend to have us equate 'self care' with the humanistic half of the model. As Self Care Week begins I could not help but suggest on twitter that what self care means to me is 4-fold care (or 5-fold taking in the spiritual also).

Then, continuing to read Kinchin more on threshold concepts, care and caring:
"In the case of 'caring' within the clinical sciences (e.g. Clouder, 2005), the concept may link the salient points of the personal perspective (patient-centred discourse) with the biomedical (treatment) discourse (Figure 32).

Here 'care' is seen to occupy the space that links caring as a therapeutic intervention (to the left) and caring as the nurse-patient interpersonal relationship (to the right), as described by Morse et al. (1990). This positioning enables the carer and the patient to be active partners in linking the chains of clinical practice with the networks of understanding that relate to the patient's wider needs. The key factor within this model is the 'care' that includes consultation with the patient and carer that allows them to relate the two halves of the model - something that is required for learner agency (Kinchin & Wilkinson, 2016)." p.90.

The halves referred to in Figure 32 are those within Hodges' model, merely switched left-right. I will add a photograph soon.

Self care must encompass ALL of Hodges' model.


INDIVIDUAL
|
INTER-PERSONAL : SCIENCES
HUMANISTIC -------------------------------------------------- MECHANISTIC
SOCIOLOGY : POLITICAL
|
GROUP

The patient (questions)
Capacity, Motivation, Ability -
Knowledge and Skills to Self Care

Medical science
Clinical medicine

Carers


Consultation
Choices, Engagement



Clouder, L. (2005) Caring as a ‘threshold concept’: transforming students in higher education into health(care) professionals, Teaching in Higher Education, 10:4,505-517,DOI: 10.1080/13562510500239141

Kinchin, I. M., & Wilkinson, I. (2016) A single-case study of carer agency. Journal of Nursing Education and Practice, 6, 34–45.

Morse, J.M., Solberg, S.M., Neander, W.L., Bottorff, J.L., Johnson, J.L. (1990) Concepts of caring and caring as a concept. Advances in Nursing Science. Sep;13(1):1-14.

Kinchin, I.M. (2016) Visualising Powerful Knowledge to Develop the Expert Student: A Knowledge Structures Perspective on Teaching and Learning at University, Rotterdam: Sense Publishing. p.90.

Wednesday, October 30, 2019

The Rosamund Snow Scholarship for Patient-Led Research

INDIVIDUAL
|
INTERPERSONAL : SCIENCES
HUMANISTIC ----------------------------------------------- MECHANISTIC
SOCIOLOGY : POLITICAL
|
GROUP
(real) Subjective?

Rosamund

Patient / Carer's experience


(real) Qualitative?
Subjective ------ Research ------ Objective

Disciplinary - Professional
 language and jargon

Change

Qualitative ------ Research ------- Quantitative
Snow, PhD

"The Sociology of health and illness"

Patient-Led Research

Co-Production of Research

'What happens when patients know more than their doctor?'

Medical sociology

Unequal power dynamics
of the
clinical consultation

The politics of self-management

Challenges of advocacy

Scholarship

Funding

The Rosamund Snow Scholarship for Patient-Led Research
"Rosamund Snow, who died in February 2017, had type 1 diabetes. After completing a Master’s degree in Social Sciences at King’s College London, she went on to study for a PhD in the patient experience of diabetes. She became a respected academic at the University of Oxford, undertaking research and teaching medical students about the importance of the patient perspective. She believed passionately in patients working alongside clinicians to produce research and teaching that is informed by the (often under-valued) expertise in what it is like to live with an illness. She used her own expertise from experience to question and challenge norms of medical practice, always striving to improve patient care. After her death, Rosamund’s family generously donated funding to Green Templeton College at the University of Oxford, to allow others to be trained to continue the work she started." [ Source: #RSSPLR ]

My source: with thanks @trishagreenhalgh