11th Living Knowledge Conference 2026 – Call for proposal now open

Dear all,

we are excited to announce the Call for Proposals for the -

11th Living Knowledge Conference

in Gdańsk, Poland, from July 7-10, 2026!

Taking place in the birth of the Solidarity Movement, the theme of the conference is "Research and Solidarity" which will appeal to everyone interested in supporting, facilitating, or doing community-driven, collaborative research, thereby fostering a ‘community of practice’ that welcomes both old and new friends.

We look forward to hearing from both experienced and new, early-career researchers and practitioners working with community-based research, engaged research, or citizen science.

Deadline for submissions is Dec. 15 / Jan. 10 for poster submission.

Conference Info:

📅 Key Dates & Deadlines
📢 Call for Proposal
💻 Session Formats

More information about the venue and registration will be announced soon.

Attached please find a communication kit that can help to amplify this Call For Proposals. Please share with your networks, community partners, students and faculty.

With thanks,

The Living Knowledge Conference team

Postdoc “Citizen Science” (V25.0121) at Univ of Groningen

We're hiring:

Postdoc in Citizen Science at the University of Groningen

Are you passionate about public engagement with science and citizen science? Do you want to develop and work on projects that connect academia with society and make a real impact? We have an exciting Postdoc position available in our Citizen Science team!
Please note: You should be able to speak Dutch...

📅 Apply by March 23, 2025
🔗 Learn more & apply here: https://lnkd.in/emsFzdgJ

Feel free to share in your network.

Cheers,

Henk

Dr. Henk A.J. Mulder
Master Science Education and Communication &
Bèta Wetenschapswinkel (Science Shop @ Science LinX),
Rijksuniversiteit Groningen (University of Groningen)
Dr. Henk A.J. Mulder
Energy Academy/IREES
kamer/room 5158.0222
Nijenborgh 6
9747 AG Groningen
The Netherlands

h.a.j.mulder AT rug.nl
http://www.rug.nl/staff/h.a.j.mulder/
http://www.rug.nl/society-business/science-shops/
http://www.rug.nl/masters/educatie-en-communicatie-in-de-wiskunde-en-natuurwetenschappen/

Individual

|

      INTERPERSONAL    :     SCIENCES               

HUMANISTIC  --------------------------------------  MECHANISTIC      

 SOCIOLOGY  :    POLITICAL 

|

Group

my ACADEMIC CAREER my LANGUAGE SKILLS my LIFE EXPERIENCE my PASSIONS	SCIENCES - ENGINEERING 'LIVED EXPERIENCE' Enthusiast-Expert [patient, swimmer, x,y,z ...] local, regional, national, international
PUBLIC UNDERSTANDING OF SCIENCE PUBLIC ENGAGEMENT COMMUNITY ISSUES/AWARENESS COMMUNICATION	CITIZENS EVIDENCE-BASED POLICY PUBLIC PRIORITIES POLICY PRIORITIES

n.b. No endorsement of Hodges' model should be construed from inclusion of #h2cm above.

Raymond Williams Foundation - TARGETED GRANTS OFFER

 Dear Friends of RWF,

Can I remind you of our targeted grant scheme. Perhaps you could help us by sharing this with your network.

 

Best wishes 

Bob Foster

 

Applications are now open for five targeted grants of up to £1000 to support self-organised adult learning activities or events. Proposals should aim to enable the development and running of self-organised adult learning events or activities which have a progressive, social justice, environmental, or cultural purpose. Priority will be given to applicants on low incomes/universal credit, younger people (under 25's) and black and brown people.

DEADLINE FOR APPLICATIONS: Midnight 1 October 2023

Go to https://www.raymondwilliamsfoundation.org.uk/grants for application form

Bob Foster
RWF Treasurer

My source: PIPs

Share your thoughts: Health Research & Community/Public Engagement

Dear HIFA Community,

As part of a multi-country scoping study commissioned by Wellcome Trust 

https://www.linkedin.com/company/wellcome-trust/

Pivot Collective: https://www.linkedin.com/company/pivotcollective/

- is conducting a rapid survey to better understand community/public engagement and knowledge exchange in health research.

*The Ask:* Provide your insights, thoughts and perspectives - click the survey here: 

https://lnkd.in/dgR6Wak3

This should take 15-30 minutes to complete, and data will be anonymised.

Please complete the survey by Wednesday 17 May 2023.

Thank you!

As background, this survey is part of a larger project that aims to identify more effective routes for communities to be involved in research, with *an ultimate goal of understanding how communities can play a genuinely meaningful, inclusive, and reciprocal role in the research ecosystem.

The project is led by Pivot Collective: https://www.linkedin.com/company/pivotcollective/ in partnership with - 

Eh!woza: https://www.linkedin.com/company/eh-woza
citiesRISE: https://www.linkedin.com/company/cities-rise
Restless Development: https://www.linkedin.com/company/restless-development
Vocal, Praxis, and Fiocruz.

If you'd like to learn more, please don't hesitate to reach out.
We are grateful for your time and insights, and would love to talk.

Best wishes,
Claire B. Cole

Co Director Pivot Collective Consulting +1 917.523.6523
claire AT pivotcollective.org
pivotcollective.org
27 Palmer Road, Muizenberg, 7945 

https://www.facebook.com/PivotCollective/
https://www.linkedin.com/company/30643635
https://www.instagram.com/pivot_collective/

HIFA profile: Claire Cole is Co-Director and Senior Technical Advisor at Pivot Collective USA. Research interests: Participatory and applied research; Sexual and reproductive health and rights; Adolescent health and development; HIV and AIDS; Marginalized and underserved populations; Adaptive management and adaptive implementation; Responsive health systems; Resilience; Implementation science.

My source:
You are receiving this message because you are a member of the community -
HIFA - Healthcare Information For All.

[The CINet] Individual-Level Solutions Have Led Policy Astray

"So, what do you think?

In their journal paper "The I-Frame and the S-Frame: How Focusing on the Individual-Level Solutions Has Led Behavioral Public Policy Astray" (summary here with links to abstract and full paper), two previously self-described members of the behavioural science academic community change their view.

'An influential line of thinking in behavioral science, to which the two authors have long subscribed, is that many of society’s most pressing problems can be addressed cheaply and effectively at the level of the individual, without modifying the system in which individuals operate. Along with, we suspect, many colleagues in both academic and policy communities, we now believe this was a mistake..'

The reasons for this about-face are based around the following:

'Results from [i-frame: individual-focused] interventions have been disappointingly modest.'

'The fact that corporations have spent billions of dollars promoting i-frame interventions in the belief that such interventions will fail should make behavioral scientists uneasy.'"

...

https://www.comminit.com/global/content/cinet-individual-level-solutions-have-led-policy-astray 

 

I don't want this to sound like "Told you so!" but I'm not surprised, even as the literature and media often wax lyrical about 'synergy', constantly about 'integration' and more recently 'population health'.

I appreciate too that having a (cognitive) model is just the beginning. I really admire the practitioners in The Communication Initiative Network and other groups who grapple with funding, policy, recruitment, communication, change and outcomes around the globe.

As efforts continue across health, social care and education ... never under-estimate the relevance of conceptual tools, especially the power of not just one lever - but at least two:

Hodges' Health Career - Care Domains - Model

See also: I-dentity: How the Individual-Group runs...

APPGs - All Party Parliamentary Groups (Revisited: One-By-One ...?)

Previously in "How many APPGs does your Garden Grow?", I wondered about the number and variety of APPGs related to health and social care. How do they integrate their work, the inputs, outputs and impact on legislation, policy, safety, standards, delivery of care and sustainability in the future? 

A selection of APPGs includes:

APPG on 22q11 Syndrome
APPG on Access to Medicines and Medical Devices
APPG on Acquired Brain Injury
APPG on Adult Social Care
APPG on Ageing and Older People
APPG on Air Pollution
APPG on Allergy
APPG on Antibiotics
APPG on Arts, Health and Wellbeing 
APPG on Autism
APPG on Axial Spondyloarthritis
APPG on Baby Loss
APPG on Beauty, Aesthetics and Wellbeing
APPG on Black Maternal Health
APPG on Bladder and Bowel Continence Care
APPG on Blood Cancer
APPG on Brain Tumours
APPG on Breast Cancer
APPG on Bullying
APPG on Cancers
APPG on Carbon Monoxide
APPG on Cardiac Risk in the Young
APPG on Carers
APPG on Cerebral Palsy
APPG on Childhood Trauma
APPG on Children of Alcoholics
APPG on Children who Need Palliative Care
APPG on Children, Teenagers and Young Adults with Cancer
APPG on Cleaning and Hygiene
APPG on Complex Need and Dual Diagnosis
APPG on Coronavirus
APPG on Dementia and Adult Social Care
APPG on Dementia
APPG on Dentistry and Oral Health
APPG on Disability
APPG on Down Syndrome
APPG on Dyslexia and Other Specific Learning Difficulties
APPG on Eating Disorders
APPG on Extreme Poverty
APPG on Eye Health and Visual Impairment
APPG on Food and Health
[APPG on Further Education and Lifelong Learning]
APPG on Gaps in Support
APPG on Global Health
APPG on Health
APPG on Health and the Natural Environment
APPG on Health in all Policies
APPG on Health Infrastructure
APPG on HIV and AIDS
APPG on Learning Disability
APPG on Multiple Sclerosis
APPG on PANS and PANDAS
APPG on Parkinson's
APPG on Terminal Illness
APPG on Water, Sanitation and Hygiene
[APPG on Whistleblowing]
APPG on Yoga in Society
APPG on Young People's Health

There is a 'full' register at:

https://publications.parliament.uk/pa/cm/cmallparty/220323/register-220323.pdf

Revisiting the previous post and its list of APPGs, extended above, you can see some obvious potential sources of influence for several APPGs.

Scanning the register with the list of APPG by countries, I was disappointed not to see Earth, or Gaia listed. But then they are probably not recognised as 'political' entities? Which is the ongoing challenge in the climate crisis (recognition of ecocide?). 

What about, more reasonably 'Global Health'? This was not listed as a country, but further reading is rewarded. There it is - 'Global Health':

https://globalhealth.inparliament.uk/

[ The link in the register is currently broken. ]

I should have remembered this APPG having posted before:

https://hodges-model.blogspot.com/2016/10/triple-impact-nursing.html

On the radio this past week I heard mention of Transparency International and published recommendations to control lobbying, prevent corruption and malign influences of sponsorship.

See also:

"APPGs scandal: MP reveals how lobby firm tried to use her to influence Parliament"

https://www.opendemocracy.net/en/dark-money-investigations/appgs-scandal-mp-reveals-lobby-firm-tried-influence-parliament-alison-thewliss-snp/

This post also helps inform a paper on Hodges' model, Early Intervention in Psychoses and research.

There are so many APPGs related to health, and associated with the purposes of Hodges' model.

One discovery - I must follow the APPG on Health Infrastructure.

Workshop - Patient access to medical records: the patient's view

You may be interested in this online meeting/workshop for 3-5pm May 12th 

Patient access to medical records: the patient's view

It is open to all, free of course, and registration is here:

https://www.eventbrite.co.uk/e/patient-access-to-medical-records-the-patients-view-tickets-144456929565

The aim of the meeting is to add another little push towards getting this higher priority in the UK.  The assumption for the session is that most if not all who turn up will already be convinced of the benefits - but nevertheless it is useful to (re)hear some of those benefits from patients, and maybe one or two of the frustrations, and then get discussion from those present as to how it can be given higher priority by CCGs, Trusts, politicians, etc.

The meeting will be on Zoom and the provisional timetable is:

3:00-3.10            Ray Jones - Introduction (aim of the workshop, a little background, and welcome)

Short presentations taking questions and comments by the typed chat room

3:10-3.30            Liz Salmi - US experience of Open Notes

3.30-3.40            Jene Jinatun - experience 1 from Haughton Thornnley Medical Centre

3.40-3.50            Cheryl Ashton - experience 2 from Haughton Thornley Medical Centre

3.50-4.00            Fran Husson - experience of Patient Knows Best (London)

4.00-4.05            Nik Seth - comparing Patient Access in Estonia with the UK

4.05-4.10            Mar Soler-Lopez - comparing Patient Access in Madrid with the UK

4.15-4.45            Break out room discussion: how can patient groups help bring about better availability and uptake of patient access?

4.45-5.00            Feedback- 1 or 2 points from each group.

5pm                    Close

Please do register and come if you can, and please pass on to anyone and everyone. In particular if you have contacts in the media please invite them - given the need for patients to take control of their health information this should be topical and normally the media likes to take a 'personal story' approach.

Thanks

Ray

Ray Jones

Professor of Health Informatics, School of Nursing and Midwifery

Co-Facilitator for Centre for Health Technology

Research Gate

Email: ray.jones AT plymouth.ac.uk

University of Plymouth, Faculty of Health, PL4 8AA

__________

Source:

HIFA: Healthcare Information For All: www.hifa.org

Tides: Tackling Inequalities and Discrimination Experiences in health Services

individual
|

INTERPERSONAL : SCIENCES

humanistic ----------------------------------------------- mechanistic

SOCIOLOGY : POLITICAL

|

group
 

 

"What is the TIDES study?

The Tackling Inequalities and Discrimination Experiences in health Services (TIDES) study investigates how discrimination experienced by both patients and healthcare practitioners may generate and perpetuate inequalities in health and health service use. The TIDES study is funded by the Wellcome Trust and the Economic and Social Research Council (ESRC)."

My source:

https://twitter.com/tides_study/status/1387089743742177289?s=20

NMC: A consultation on draft standards for community and public health nursing

individual

|

INTERPERSONAL : SCIENCES

humanistic ----------------------------------------------- mechanistic

SOCIOLOGY : POLITICAL

|

group

What do you think ...	... as a Professional?
... as a member of the Public?	"We are reviewing post-registration standards and we want to hear from you! Find out more and tell us what you think of the draft standards. The consultation will be open until 2 August 2021 #FutureCommunityNurse

My source: Twitter

The Healthy Brains Global Initiative: Mental Health Care NOT only by the Quarter II

individual

|

INTERPERSONAL : SCIENCES

humanistic ----------------------------------------------- mechanistic

SOCIOLOGY : POLITICAL

|

group - population

The Healthy Brains  Global Initiative	Tuberculosis, Malaria, HIV Aids Cancer, Infectious disease, Heart disease
The impacts of mental illness in societies	"25 per cent of people worldwide experience mental illnness" HBGI funding of $10 Billion direct & indirect costs of mental illness = $3 trillion a year $6 trillion by 2030 GeoPsychiatry, PsychoPolitics, SocioPolitical

 

Clive Cookson, Global drive aims to fight mental illness, FTWeekend, 10-11 October 2020, p.4.

 

Plus c/o HIFA: 

Today 10 October is World Mental Health Day.

The current issue of The Lancet carries a lead editorial on this subject: 

 CITATION: Mental health: time to invest in quality Editorial| volume 396, issue 10257, p1045, october 10, 2020 The Lancet Published: October 10, 2020 DOI: https://doi.org/10.1016/S0140-6736(20)32110-3 

EXTRACTS The theme of this year's World Mental Health Day, on Oct 10, is increased investment in mental health. Why invest, and why now? The answer is simple. At the best of times, good mental health is needed for a society to thrive. During a pandemic, good mental health is more important than ever. Without a focus on mental health, any response to COVID-19 will be deficient, reducing individual and societal resilience, and impeding social, economic, and cultural recovery... Investment must be about more than just money if mental health services are to be made fit to address the challenges of the COVID-19 and post-COVID-19 era and to become resilient against future public health crises. There must be an investment of thought, time, and a commitment to change.

COMMENT (NPW): I would like to invite HIFA members to share their experience on mental health services in your country. What changes have you seen during the pandemic in terms of demand and provision? What approaches have worked well, or not so well, in dealing with these challenges? 

Best wishes, Neil

 Let's build a future where people are no longer dying for lack of healthcare information - Join HIFA: www.hifa.org

Journal of Community Informatics - new submissions:

Dear CI colleagues,

After a brief pause and transition in editorial leadership, the Journal of Community Informatics is once again accepting new submissions here:

http://ci-journal.net/index.php/ciej/information/authors  

It is my honor to lead the Journal as the third Editior-In-Chief since the journal was launched by Michael Gurstein with its first issue published in 2004. I want to thank Eduardo Villanueva-Mansilla for his leadership over these past years. I also want to thank Tom Denison who has joined Eduardo as the Journal’s Associate Editors.

I am also excited to announce our esteemed Editorial Board with both new and returning members: http://ci-journal.net/index.php/ciej/editorialBoard

We are preparing our next issue to be published in Sept/Oct. 2020.  We look forward to receiving your submissions in the months and years ahead.

Warm regards,

Colin

—
Colin Rhinesmith (pronouns: he/him)
Associate Professor and Director
Community Informatics Lab
School of Library and Information Science
Simmons University
web: http://crhinesmith.com

Editor-In-Chief
Journal of Community Informatics
http://ci-journal.net/index.php/ciej

 

Sticking with 'nudge' - behaviour and economics ...

individual

|

INTERPERSONAL : SCIENCES

humanistic ----------------------------------------------- mechanistic

SOCIOLOGY : POLITICAL

|

group - population

psychological realism cognition

neoclassical model "The most well-known critique of behavioural economics comes from a psychologist, Gerd Gigerenzer of the Max Planck Institute for Human Development. Gigerenzer argues that it is pointless to keep adding frills to a mathematical account of human behaviour that, in the end, has nothing to do with real cognitive processes. ... He [Laibson] concedes that Gigerenzer has a point but adds: 'Gerd's models of heuristic decision-making are great in the specific domains for which they are designed but they are not general models of behaviour.'" "There is a tendency to propose some new theory to explain each new fact. The world doesn't need a thousand different theories to explain a thousand different facts. At some point there needs to be a discipline of trying to explain many facts with one theory." [David K Levine, Is Behavioural Economics Doomed?, 2012]

social proof Source: Financial Times

behavioural  economics "The challenge for behavioural economics is to elaborate on the neoclassical model to deliver psychological realism without collapsing into a mess of special cases. Some say that the most successful special case comes from Harvard's David Laibson. It is a mathematical tweak designed to represent the particular brand of short-termism that leads us to sign up for the gym yet somehow never quite get around to exercising. It's called "hyperbolic discounting", a name that refers to a mathematical curve, and which says much about the way behavioural economists represent human psychology."

Harford, T. (2014) Nudge or fudge? Life&Arts, Financial Times, 22-23 March. pp.1-2.

Clearly indoors, clearing papers ...

HelpForce the Domains for Change in Social Care

There are many lessons to be found - and as governments continue to learn - trip over, in the ongoing COVID-19 pandemic.

The government made a call for volunteers:

https://www.england.nhs.uk/2020/03/your-nhs-needs-you-nhs-call-for-volunteer-army/

 and the public has responded with 750,000 respondents:

https://www.goodsamapp.org/NHS

While of little consequence in the larger world, for me this crisis continues to reveal how the axes of Hodges' model encompass far more than their respective labels might indicate.

Taking the vertical axis:  INDIVIDUAL to GROUP (population) nations have had to resort to law to direct, instruct, force their citizens to stay at home.

Health policy, public health and economics specialists have long sought a means to influence people's behaviour. Nudge theory has joined the basic motivators of carrot and stick.

In the UK the call for volunteers has a long history.

Tom Hughes-Hallet, Your NHS Needs You, The Sunday Times, 26 August 2018, p.22.

HelpForce

individual

|

INTERPERSONAL : SCIENCES

humanistic ----------------------------------------------- mechanistic

SOCIOLOGY : POLITICAL

|

group - population

An individual's behaviour ...

... and the impact of the same.

THE BIG SOCIETY

"The Big Society was a political ideology developed in the early 21st century. The idea proposed "integrating the free market with a theory of social solidarity based on hierarchy and voluntarism". Conceptually it "draws on a mix of conservative communitarianism and libertarian paternalism". Its roots "can be traced back to the 1990s, and to early attempts to develop a non-Thatcherite, or post-Thatcherite, brand of UK conservatism" such as David Willetts' Civic Conservatism and the revival of Red Toryism. Some commentators have seen the Big Society as invoking Edmund Burke's idea of civil society, putting it into the sphere of one-nation conservatism.   The term Big Society was originated by Steve Hilton, director of strategy for the Conservative Party, and the idea became particularly associated with the party's leader David Cameron who was a strong advocate for it. The idea formed the flagship policy of the 2010 UK Conservative Party general election manifesto and was part of the subsequent legislative programme of the Conservative–Liberal Democrat coalition agreement. The stated aim was to create a climate that empowered local people and communities, building a "big society" that would take power away from politicians and give it to people." WikiPedia

Clearly, there is a macro form of nudge and hopefully this will result in social care being given the attention (funding) it desperately needs, recognising the value and values inherent in the sector.

Also in the Sunday Times article 'The NHS in numbers':
9m - Increase in UK population of pensioners in next 40 years

1942 - When William Beveridge's blueprint for postwar welfare state was published

10,000 - Volunteers supporting 4,000 staff at Marie Curie cancer care charity.

Tom Hughes-Hallet, Your NHS Needs You, The Sunday Times, 26 August 2018, p.22.


https://en.wikipedia.org/wiki/Big_Society