Building and Restoring Trust in Science and Health Information across Patient, Community and Population Settings
Message(s) to
HIFA alerting to, and response to a Call for Papers:
----- Forwarded message -----
From: Neil Pakenham-Walsh <neil.pakenham-walsh@ghi-net.org>
To: HIFA - Healthcare Information For All <hifa@hifaforums.org>
Sent: Friday, 16 December 2022 at 12:11:19 GMT
Subject:
[hifa] Call for papers: Building and restoring trust in science and
health information across patient, community and population Settings
I am forwarding this from our colleagues at Infodemic Management News, WHO.
Opportunities
for action
Call for papers: Building and restoring trust in science and health
information across patient, community and population Settings
The
Journal of Communication in Healthcare: Strategies, Media, and
Engagement in Global Health seeks to solicit diverse perspectives and
build a robust evidence base for a special issue on trust and
misinformation as part of the journal’s Science of Trust Initiative.
This special issue will explore topics across different health
communication areas aimed at addressing issues fuelled by misinformation
such as mistrust, social discrimination, and pervasive stigma. There
is specific interest in submissions related to the science of trust that
focus on interdisciplinary collaborations to promote social, policy,
and/or behavioral change, address key root causes of health inequities,
and can help forge the path forward for building and fostering trust. A
good opportunity to showcase your latest achievements or research in
infodemic management!
To read the call for papers and submit,
it’s here. The deadline is 26 February 2022.
Dr Neil Pakenham-Walsh, HIFA Coordinator
Healthcare Information For All
Global Healthcare Information Network
Working in Official Relations with the World Health Organization
20,000 members, 400 supporting organisations, 180 countries, 6 forums, 4 languages
www.hifa.org neil AT hifa.org
----- Forwarded message -----
From: Neil Pakenham-Walsh <neil.pakenham-walsh@ghi-net.org>
To: HIFA - Healthcare Information For All <hifa@hifaforums.org>
Sent: Friday, 30 December 2022 at 10:06:18 GMT
Subject:
[hifa] Call for papers: Building and restoring trust in science and
health information across patient, community and population settings (4)
Dear Najeeb, Meena and all,
Najeeb:
"I think this is a golden opportunity for HIFA to publish an article
(possibly written by a number of key people in HIFA) and provide a
leading statement that emphasizes the role of communication (good
quality information) in healthcare for all."
https://www.hifa.org/dgroups-rss/call-papers-building-and-restoring-trust-science-and-health-information-across-patient
Meena: "Very nice idea Najeeb and happy to be part of this project."
https://www.hifa.org/dgroups-rss/call-papers-building-and-restoring-trust-science-and-health-information-3-hifa-paper
Yes
indeed, the call for papers is specifically about 'Building and
restoring trust in science and health information'. HIFA is uniquely
positioned to explore this issue through dynamic multidisciplinary
discussion.
My initial thought is that this could be done within
the framework of our current collaboration with WHO and specifically the
consultation we are planning for 2023: 'To identify best practices,
opportunities and challenges from relevant health related stakeholders,
towards pursuing universal access to reliable healthcare information'.
https://www.hifa.org/projects/hifa-who-collaboration-plan Lack of trust
is a huge challenge and it requires engagement from all stakeholders.
I would like to invite HIFA members and supporting organisations to comment and suggest next steps.
Best wishes, Neil
Dr Neil Pakenham-Walsh
----- Forwarded message -----
From: Najeeb Al-Shorbaji, Jordan <shorbajin@gmail.com>
To: HIFA - Healthcare Information For All <hifa@hifaforums.org>
Sent: Saturday, 31 December 2022 at 22:12:50 GMT
Subject:
[hifa] Call for papers: Building and restoring trust in science and
health information across patient, community and population settings (5)
HIFA-WHO Collaboration
Dear Neil and all members of HIFA family
Happy
New Year. The suggestion to invite comments from HIFA members is a
logical one and fully supported. HIFA current collaboration with WHO
should really be highlighted in this piece especially that WHO and HIFA
have both a mission to make high quality information available and
accessible by the world. Good quality, timely and accurate health
information provided to people is the best prevention, protection and
leads to good treatment of diseases. Hopefully this will make heath
goals much more attainable. Lets go for it friends.
With kind regards.
Najeeb Al-Shorbaji, PhD, IAHSI
... Website: www.shorbaji.net
Director, Knowledge, Ethics and Research WHO/HQ (Retired)
e-Marefa Advisor
President, Jordan Library and Information Association
President, eHealth Development Association, Jordan
President, Middle East and North Africa Association of Health Informatics
IMIA Vice-President for MEDINFO 2023
Visiting Professor, Ain Shams University, Egypt
Member of the International Academy of Pubic Health Scientific Council
ORCID ID 0000-0003-3843-8430
----- Forwarded message -----
From: Peter Jones, UK <hifa@hifaforums.org>
To: HIFA - Healthcare Information For All <hifa@hifaforums.org>
Sent: Sunday, 1 January 2023 at 15:45:42 GMT
Subject:
[hifa] Call for papers: Building and restoring trust in science and
health information across patient, community and population settings (6)
Hodges' model and information disorder
As highlighted before on HIFA over many years, Hodges' model can inform such a call for papers and project.
In
several ways, including but not limited to - critique and
representation of data, information, knowledge, wisdom (literacies -
across all academic and professional disciplines):
Jones, P. (1996) Humans, Information, and Science, Journal of Advanced Nursing, 24(3),591-598.
Jones, P. (1996) An overarching theory of health communication? Health Informatics Journal,2,1,28-34.
Additional citation: IRMS Bulletin - November 2022
https://hodges-model.blogspot.com/2022/12/irms-230-h2cm-literacies.htm
"I
am indebted to Peter Jones, who shared Hodges’ Health Career Model with
the 2022 IRMS conference in Glasgow. Although originally used in a
healthcare setting, this simple, two-axis intellectual model can be
readily used to analyse any complex interaction between the individual
and their environment – in this case, information literacies.
The
diagram shows a number of distinct yet overlapping literacies that were
potentially in play in our problem example, although there are likely
to be many more – even emotional literacy played a part, with the
frustrations of the young people in question causing them to dismiss
potential solutions before they had been tried or even considered.
Likewise, socio-political and socio-economic literacies may have been a
factor – if you are unaware that something exists in the world due to
blind-spots in your own cultural background then you cannot even begin
to look for it."
Jon Fryer, "Information Literacies - Learning, to
thrive in a digital age". IRMS Bulletin, Issue 230, November 2022. cc c
(A membership journal)
During the summer and the "Communicating
health research" thread on HIFA, I thought about 'information disorder'
and the infodemic:
https://rm.coe.int/information-disorder-toward-an-interdisciplinary-framework-for-researc/168076277c [*see note below]
I recalled this quote too - amid 'information overload'.
“Where is the wisdom we have lost in knowledge? Where is the knowledge we have lost in information?”
― T.S. Eliot, The Rock
As the evidence-base 'accumulates' there may be a questions about the life-cycle of research?
From
implementation science to deimplementation:
Patey et al. Implementation Science (2018) 13:134
https://doi.org/10.1186/s13012-018-0826-6
As an 'ecosystem' is it imperative that one (or more) part of 'data,
information KNOWLEDGE wisdom' must wither on the academic (vine)
database - reduced citation hence salience?
The aims and scope of a paper may also encompass the public's understanding of science.
Frameworks and models of care/selfcare are needed that can simultaneously:
"...
differentiate between science writing for the public and writing across
communities of scientific practice. Described by its editors as an
interdisciplinary journal, they argue it is a ‘transdisciplinary
journal’"
from -Baram-Tsabari, Ayelet, Orli Wolfson, Roy Yosef,
Noam Chapnik, Adi Brill, and Elad Segev. Jargon Use in Public
Understanding of Science Papers over Three Decades. Public Understanding
of Science, 29(6) (August 2020): 644–54.
https://doi.org/10.1177/0963662520940501.
Hodges' model being situated can be used in contexts that are inter- multi- transdisciplinary and interprofessional (education).
If
I can assist I'd be pleased to proof read, critique drafts, provide a
figure / table using Hodges' model to illustrate the conceptual scope
and associations of the work.
I may have also referred to
agnotology - the study of ignorance, this should (must?) be a concurrent
factor in research of literacy.
If anyone has time to please read and comment on a near complete draft
paper on: COVID-19, technology, society, Hodges' model, fake news
misinformation dis- mal- also I'd be very grateful.
[ Since this message was posted to HIFA, I greatly appreciate an offer to read the draft, which should be complete mid-end of February ]
Happy New Year to all - wherever celebrated.
Peter Jones
Community Mental Health Nurse and Researcher
Warrington Recovery Team, NW England
http://twitter.com/h2cm
The call for papers link again:
https://think.taylorandfrancis.com/special_issues/science-trust-initiative/?utm_source=TFO&utm_medium=cms&utm_campaign=JPG15743
[*Note from HIFA moderator (NPW): Many thanks Peter, this publication
looks interesting. The first paragraph of the executive summary sets the
scene: 'This report is an attempt to comprehensively examine
information disorder and its related challenges, such as filter bubbles
and echo chambers. While the historical impact of rumours and fabricated
content have been well documented, we argue that contemporary social
technology means that we are witnessing something new: information
pollution at a global scale; a complex web of motivations for creating,
disseminating and consuming these ‘polluted’ messages; a myriad of
content types and techniques for amplifying content; innumerable
platforms hosting and reproducing this content; and breakneck speeds of
communication between trusted peers.' I have invited the authors to join
us.]
orcid.org/0000-0002-0192-8965
