Agnotology - (a) space for ignorance?

 Chapter 1 of Agnotology (Proctor, 2008) begins with two quotations:

“We are often unaware of the scope and structure of our ignorance. Ignorance
is not just a blank space on a person's mental map. It has contours and coher-
ence, and for all I know rules of operation as well. So as a corollary to writing
about what we know, maybe we should add getting familiar with our ignorance.”
Thomas Pynchon, 1984

“Doubt is our product.”
Brown & Williamson Tobacco Company, internal memo, 1969

The discovery of this book and its title, was quite an event.

Proctor, Robert N. and Schiebinger, Londa (Eds.). AGNOTOLOGY The Making And Unmaking Of Ignorance. (2008): Stanford University Press, Stanford, California.

 

 

Previously on W2tQ:

'ignorance'

'smoking'

Knowledge - Ignorance: Political leaders always seek an informed citizenry. Discuss?

c/o 'The war on knowledge' Simon Schama 
Life&Arts :: FTWeekend

individual

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INTERPERSONAL : SCIENCES

humanistic ------------------------------- mechanistic

SOCIOLOGY : POLITICAL

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group

'As the Founders saw it, the great driver of freedom was knowledge. Two decades before independence, the lawyer and essayist William Livingston insisted in a journal called The Independent Reflector that "knowledge among a people makes them free, enterprising and dauntless; but Ignorance enslaves, emasculates and depresses them". Are you an 'Independent Reflector'? MIND

'In 1779, Thomas Jefferson (who would make sure that his role as "Father of the University of Virginia would be inscribed on his tombstone) championed a Bill for the More General Diffusion of Knowledge. Its purpose would be to "illuminate ... the minds of the people at large" - excluding of course, women and the enslaved - "and more especially to give them knowledge of those facts . .. [that] they may be enabled to know ambition under all its shapes." The 1780 Constitution of the Commonwealth of Massachusetts, primarily drafted by Adams, committed itself to "The Encouragement of Literature" so that "Harvard-College in Cambridge" would be the institution through which the diffusion of "wisdom and knowledge" would ensure health of the body politic.' BODY

PUBLIC 'The informed citizenry' Public understanding of the sciences.

POLITIC 'As Richard D Brown's important history The Strength of a People: The Idea of an Informed Citizenry in America, 1650-1870 points out, all of America's first four presidents (including James Madison) assumed that the security of the republic depended on the "equation of virtue and knowledge". A century later, Calvin Coolidge might assert that "the chief business of the American people is business", but a rich stream of ideas flowing from the learned optimism of the Founders, through the creation of land-grant colleges and the "brain trust" administrations of Franklin Roosevelt, assumed that professors were not the "enemy" but a resource that was indispensable for the good of the nation. The true enemy of American democracy was not professors, but ignorance.'

My source:

Simon Schama. 'The war on knowledge', Life&Arts, FTWeekend, 26-27 April, 2025, pp.1-2.

Previously: 'knowledge' : 'ignorance' : 'political'

World Mental Health Day: Forms of Esteem ...

Tua Tagovailoa
Miami Dolphins, Quarterback

 INDIVIDUAL

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 INTERPERSONAL    :     SCIENCES               

HUMANISTIC --------------------------------------  MECHANISTIC      

SOCIOLOGY  :   POLITICAL 

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GROUP

psychological trauma (or^, personal trauma) personal choice Identity Memory Motivation My.. 'Skill-set' SELF-ESTEEM Expectations: *on the field *off the field	physical trauma "Chronic Traumatic Encephalopathy" motor impairment "He lost consciousness as he instinctively assumed the "fencing position" position and his fingers curled and tightened." "Bennet Omalu, the neuropathologist who discovered CTE in American football players, watched the Dolphins v Bengals game in horror. He messaged Tagovailoa, saying: .."
social (family) trauma my children's names "[ Bennet Omalu ]... If you love your life, if you love your family, your kids - if you have kids, it's time to gallantly walk away. Go find something else to do. Tua, my brother. I love you. I love you as much as I love my son. Stop playing. Stop. Hang your helmet and gallantly walk away." 'pluralistic ignorance'	'Plausible ignorance' Informed consent MENTAL CAPACITY High risk - High reward "Think of what is still happening in the NFL, of what is happening in rugby, and soon you reach the conclusion that players need to be protected from themselves. Something their sports are absolutely not doing." p.24. PARITY OF ESTEEM

David Walsh, Latest NFL concussion scandal is a sickening indictment of ... Sport, The Sunday Times, October 9th, 2022, p.24. (Paper copy.)

Mr Walsh also refers to - Head On: Rugby, Dementia and Me (BBC 2 TV)

^ Person-centred?

Draft paper: Abstract - "Society, Technology and COVID19 in Hodges' model"

"Society, Technology and COVID19 in Hodges' model"

Abstract

 

This descriptive paper explores technology, society and the COVID pandemic, curated through a generic conceptual framework: Hodges' model. Developed in health and education, the model provides an underlying structure and four care, or knowledge domains. Each domain can represent part of what would formally and globally be recognised as curricula. Of four prompts leading to the model's creation, one was to facilitate reflection and critical thinking. The COVID-19 pandemic makes Hodges' model an ideal tool to expatiate its socio-political and individual mental health impacts and technoscientific reponse. This will be demonstrated by using the model to reflect and critique the paper’s themes, exposing conceptual content, dependencies, relationships, stand-points, issues and opportunities. The pandemic has crystalised the irony of the 'information age' and a concurrent gift of an 'infodemic'. In response the paper's focus is the experiential impact of misinformation, fake news, ignorance, and literacies.

To begin, Hodges' model is introduced, then COVID, followed by society and technology in combination, an approach based on previous work that Hodges' model affords. Incorporated in Hodges' model, the political domain invites and facilitates dialectic critique. The model is situated, a product of the combination of structure and potential content. The awareness of various polarities, dualities, and dichotomies inculcates recognition of the 'middle' in whatever context the model is applied. This endows Hodges' model with a substrate inherently suited to deliberation and argumentation, namely, for example, subjective-objective, qualitative-quantitative, person-population, arts-sciences, demand-supply and dependent-independent dualities. The application of the model is explained with several examples, to reveal the convention for committing the model to paper. As will be evident, the author is located in the United Kingdom, but continues to seek - as with this work - a global perspective.


Keywords: COVID; technology; society; conceptual framework; Hodges’ model; ignorance

Awaiting news!

Report: "Memes, Magnets and Microchips: Narrative dynamics around COVID-19 vaccines"

     Self - INDIVIDUAL - Person

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 INTERPERSONAL    :     SCIENCES               

HUMANISTIC -----------------------------------  MECHANISTIC      

SOCIOLOGY  :   POLITICAL 

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Community - GROUP - Population   

MEMES	magnets and microchips
[ ... MEMES - MEMES - MEMES ... ]	misinformation ignorance disinformation

 

See also:

https://hodges-model.blogspot.com/search?q=ignorance

My source: HIFA

https://news.stanford.edu/2022/02/24/curbing-spread-covid-19-vaccine-related-mis-disinformation/

image: @uwcip

Are you planning a health* study in 2025?

New Year - new project perhaps?

*nursing, mental health, theory, practice, management, workforce, medicine, allied health professions, social work, psychology, labs, diagnosis, palliative, end of life, diseases, public health, public MENTAL health, -isms, prevention, protection, education, learning disability, parity in care, informatics, information, literacIES, AI, arts, policy, leadership, migration, history, future, women, children, men, LGBTQ+, ethics, rights, health economics, social care, systems, services, climate change, refugees, conflict, law, leadership, resources, commerce, fraud, self-care, UN, WHO, UNESCO, regional, national, global, or planetary ..., ...

Is there a 'space' for Hodges' model in your study?

IF NOT, IMHO YOUR STUDY MAY BE INCOMPLETE!

Is this statement ...?

INDIVIDUAL

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   INTERPERSONAL : SCIENCES              

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utter nonsense and arrogance a psychological threat^ it's either a great joke, or a grand delusion look - get real, we can't cover all the bases calling attention to the high-degree of subjectivism in academia and health research no, actually it is blatant evidence of bias and a lack of objectivity! Who is Hodges? shamefully egotistical our project does not need to consider: reflection - reflective practice critical thinking holistic - integrated care: parity of esteem person-centredness the curricula (however 'expressed') methods - methodology - philosophy a sign we've found the true 'meta-' tool (Yes, this is interesting!)

to the Nth degree! a physical threat^ a fact - when critiqued using Hodges' model limited apprehension of 'HEALTH'.. sheer ignorance proof of an incomplete (grey) literature search proof that 'not invented here' prevails identification of relations and relationships is catered for, as are ... safety, situational awareness, scoping, mapping, evaluation, analysis, synthesis, diagrams - graphical approaches, project mangement potentially supporting inter- multi- transdisciplinarity a sign that ('fashion') science, evidence have moved on: get over it!

a soul in search of a community of practice? demonstrating much effort is falling on deaf ears? time to listen, with all that's going in the world Hodges, did you say? Sorry not here!

not commissioned/funded by a 'us'.  what? No Doctorate? Go away: please! who does that person think they are!    fao project/research management group/committee?

Brian E. Hodges (1942-2022) RIP

"Hi! I'm new to Hodges' model - and this blog - what's it about?"

^No threat is implied, on the contrary frustration ... If Hodges' model may be of use, please do get in touch. Thanks to all for your visits and best wishes with your respective projects, studies and careers.

AI, Nursing, Safety and presentation - 1st Aug 2-3pm

Hodges' model was not created primarily as a safety tool. It cannot claim to achieve or adhere to an ISO standard. ISO 45001 - health and safety management standard, for example. There is however a relation to clinical risk across healthcare professions, disciplines and clinical fields, including community and public (mental) health. To which of course we must now add planetary health. That said, the question of ISO safety and quality standards for Hodges' model has not been assessed. What exactly would certification entail? Would this process be appropriate for what is a generic - foundational tool?

What this means, however, is that as a situated model for reflection, reflective practice and critical thinking Hodges' model constitutes a deliberative step in the right (formal) direction. As noted previously, in template form, Hodges' model acknowledges the initial personal, professional and organisational standards that (must) shape our clinical encounters. That is, if assessed (as students - and our peers clearly are, and you would expect to be), unconditional positive regard would be observed, supported by the required standards of professional behaviour. 

There is another step here. The ethical and legal edict of 'do no harm' must also be central to care delivery, outcomes and evaluation. So from the outset, implicit in Hodges' model is the (NON-LEGAL) statement:

You, the practitioner - agent (student - and your mentor/supervisor) will not knowingly, or through professional ignorance, or neglect  cause physical, psychological, social (cultural), political (power), or spiritual harm to the patient - subject (or their carer - guardian/proxy).

There is no escape from AI and Large Language Models as I noticed in FTWeekend:

'Jilin University Hospital in the eastern city of Changchun has rolled out a diagnostic tool it claims can produce treatment plans through DeepSeek consulting the hospital's database, medical guidelines and drug efficacy results. Jinxin Women and Children's Hospital in south-western China said it had a tool for patients to track their ovulation cycles, with test results combined with the hospital's patient data to produce personalised fertility plans.

One doctor at public hospital in Hubei province in central China said the institution's leadership had issued a directive that DeepSeek should be used as a third-party arbiter if two doctors have differing views on treatment.

 
There have been rollouts in public hospitals in Chengdu, Hangzhou and Wuhan for less complex applications, such as digital nurses directing patients to the right consulting room or explaining complicated medical reports.

 
Several industry insiders warned against taking all the announcements at face value, as some companies were trying to capture investor enthusiasm around DeepSeek without meaningfully deploying its models. Meanwhile, government bodies are also under political pressure to be seen as aligned with China's AI darling.

 
The SOE tech supplier said "much work still needs to be done to make these models useful" for more complex work such as medical diagnosis. "It must be trained on enough medical data to produce good results. This will take time and needs collaboration from leading AI companies. It is not something hospitals can buld on their own."

Another doctor described a move to deploy DeepSeek last week at a hospital in eastern Zhejiang as a "publicity stunt".

Even if some announcements should be treated with scepticism, experts say the willingness to test out its models still marks a step change.'

Edited for formatting, some text is emphasised. A vast array of conditions can be substituted (parametrised) for 'fertility'. While nursing is mentioned there is little on testing, but for 'plans' we can read nursing assessment, plans, and evaluations. 

Returning to safety. Following an online chat yesterday, I've an online presentation to the Patient Safety Management Network [Patient Safety Hub] pencilled in for 1st August 2-3pm. Comprised of 40 minutes with questions following - I will, as discussed - focus upon:

• Introduction to the model
• How it can be applied in different situations – safety/risk/improvement
• Examples of its use

This is progress - a step to develop Hodges' model and reveal the limits of the bio-psycho-social model.

^soe - state-owned enterprises.

Olcott, E., Ding, W. AI challenger DeepSeek spreads rapidly across China with the blessing of Beijing, FTWeekend, 1-2 March, 2025. p.13.

Op-Ed: Why dignified menstruation matters?

"reproductive health rights are human rights"

individual

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INTERPERSONAL : SCIENCES

humanistic ----------------------------------------------- mechanistic

SOCIOLOGY : POLITICAL

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group - population

self self-esteem  self-respect dignity FEMINITY awareness ignorance concepts personal beliefs  anxiety fear stress vulnerability  risk mental health trauma - abuse impact on education self-care self-efficacy health literacy  psychological privacy (this is my period - not my shame ...)

A matter of  human biology:  anatomy & physiology globally? Bangladesh, Nepal, India, other low and middle income countries  in South Asia menstruation, menstrual period adolescence, women of reproductive age wrong information life threatening ... menstrual hygiene  menstrual health management disaster response natural disaster, floods, cyclones, conflict, refugees cyclone shelters lighting physical security  physical access to toilets traditional materials - cloth physical privacy

even if it's yours? intergenerational factors... "When I was a girl..." Women's menstruation menstrual period  cultural and social beliefs Health literacy Health promotion negligence and whisper womanhood: dignity and respect public discussion  stereotype, ideas, taboos, stigma shame age old superstitions  life threatening harmful practices imposed to them by the family members, neighbours and the community [ Community care?! ] positive role models positive support of husbands and families social privacy

Human Rights Declaration United Nations in 1948 'dignified menstruation' UN Water water, sanitation and hygiene (WASH) Disaster relief: 1. Male perspective; 2. Cultural taboo; 3. Menstrual health not in plans? power control  budgetary planning Public Health Policy Toilet facilities Provision of toilets Toilet-sewage infrastructure political privacy (do not compromise my privacy  by compromising my rights)

"All the stakeholders should explore all-inclusive 

and 

most comprehensive integrated approach 

to ensure dignified menstruation."

The Daily Observer, Why dignified menstruation matters? by PARVEZ BABUL

My source: HIFA

... and previously on W2tQ

Book - Free and Equal: What Would a Fair Society Look Like

INDIVIDUAL

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HUMANISTIC --------------------------------------  MECHANISTIC      

SOCIOLOGY  :   POLITICAL 

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GROUP

psychology Subjective experience: of freedom and being equal self-interest "Rawls transformed political philosophy, Chandler says. But his thought can be used to transform and reimagine 'progressive politics for the twenty-first century', too. After a half-decade of populist insurgency, the democratic world is at a 'crossroads', he contends, and we are in desperate need of new ideas to renovate a tattered social contract. That's where Rawls comes in." Derbyshire, p.9.

"Imagine being asked to cut a cake into five slices without knowing which slice you'll end up with. Rational self-interest dictates you'd cut slices of roughly equal size. Similarly, the participants in Rawl's thought experiment, behind the veil of ignorance, choose two fundamental principles of justice: a 'basic liberties principle', which says that every one has an equal claim to a suite of fundamental rights and liberties, obviously a precondition of liberal democracy; and a 'difference principle', according to which social and economic inequalities can only be justified to the extent that they benefit the worst off." p.9 trickle-down   ||  'drip'

Society Social Justice Fairness Social contract

economics    ||  'pricing'  Free and Equal

Derbyshire, J. (2023) Justice, fairness and why Rawls still matters today. FT Weekend, Life&Arts, Books, 22-23 April. p.9.

Chandler, D. (2023) Free and Equal: What Would a Fair Society Look Like? London: Penguin.

c/o Eliot Higgins: 'Moment of truth' or 'Movement to Critical Thinking'?

   moment

a : tendency or measure of tendency to produce motion especially about a point or axis

b : the product of quantity (such as a force) and the distance to a particular axis or point

https://www.merriam-webster.com/dictionary/moment

Here on W2tQ in posts applying Hodges' model I have tended to equate the subjective and the objective with the humanistic and mechanistic domains respectively. Of course, these mappings - conceptual placements are idealised. In reality there is a great deal of overlap. 

"Social media platforms such as X, once celebrated as democratising forces, are under even more scrutiny. The challenge isn't just rogue posts or unchecked algorithms. It reflects a deeper malaise, rooted in societal distrust, exacerbated by business models and perpetuated by reactive policies. The ramifications of disinformation spill on the streets with tangible, often devastating real-world consequences. 

These processes were already underway in 2014, when I founded the open-source investigative group Bellingcat." p.1. 

"The delicate balance between combating misinformation and ensuring digital freedoms remains elusive. ...

Addressing the root causes of disinformation requires a grassroots approach. Education stands at the forefront of this strategy. The idea is simple yet transformative: integrate open-source investigative and critical thinking into the curriculum. Equip the youth with the skills to navigate the labyrinthine digital realm, to question, analyse and verify before accepting or sharing information. ...

The potential of such a grassroots movement doesn't stop at school gates. Envision a world where universities become hubs of open source investigation, with national and international networks of students sharing methodologies, tools and insights. As these students move into their professional lives, they carry forward not just skills but a mindset - one that values critical thinking over blind acceptance." p.2.

Higgins, E. Moment of truth, Life&Arts, FT Weekend, 16-17 December 2023, pp.1-2.
 

 Individual

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    INTERPERSONAL    :     SCIENCES               

HUMANISTIC --------------------------------------  MECHANISTIC      

SOCIOLOGY  :   POLITICAL 

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Group

mental well-being critical thinking education - learning subjective PSYCHO-	physical well-being fact (checking) digital media literacy objective
social well-being society social impacts of info disorder	-POLITICAL political well-being policy - regulation political impacts of info disorder

https://thestudentview.org/

https://citizenevidence.org/

Access to education to combat information disorder, through digital media literacy is essential. There are now many claimed forms of literacy, and informatics. Engaging students must not just rest with  universities and graduate level education; especially as the 'professions' are set to change and new ones arise.

Previous posts 'information disorder' , 'ignorance'.

Naivety [I] ever unfolding : ever present - SCIENCES

naivety [naɪˈiːvtɪ], naiveté, naïveté [ˌnɑːiːvˈteɪ]n pl -ties, -tés

1. the state or quality of being naive; ingenuousness; simplicity

2. a naive act or statement

My source:
http://www.thefreedictionary.com/naivety

There are times when we are all naive. It can be so embarrassing! When you realise, or more severely are made aware by others the abrupt learning is suddenly resolved. Within the bounds of the health career model, naivety can be found and is expressed in so many ways.

Hodges' model may appear naive in its simplicity, but behind that simplicity there are several assumptions. When you act as scribe, reader or doer you exercise the model's structure. You potentially demonstrate several levels of literacy.

If the health career model can represent most 'everything', then naivety should be no problem. So, if we visit each of the care domains in turn what can we find?

SCIENCES

I came across a post: 'We are all naive scientists' on The Financial Philosopher blog which includes this quote:

"It is clear, then, that the idea of a fixed method, or a fixed theory of rationality, rests on too naive a view of man and his social surroundings." ~ Paul Feyerabend

Regularly, I ask myself if I am naive in this particular domain. Am I right to assume that there are questions in nursing that can be answered (or at least reflected upon) using Hodges' model? Furthermore, can this use, this application be demonstrated in a scientific (evidenced) way?

Does experience of programming in BBC Basic as an enthusiast really help equip me now to get to grips with PHP, using Drupal and even Ruby?

Is information (and informatics) really the all encompassing Swiss army knife of a concept I take it to be?

The most extreme naivety here is not mine, however; it is as Feyerabend suggests the one that is in diagonal opposition. It is the scientific naivety of the masses in the social domain. Is this ignorance? In some cases, yes. But the tabloid (gutter) press shouts aloud when science gets it wrong; or, more accurately industrial processes based on science totally mess up.

The masses are not divorced from science. True, there was (still is?) a promised intimate relationship borne of equality and egalitarian ideals (education), but this naivety matures in real (social) time also known as life-chances. Its cost is not just red-faced, but illiteracy and exclusion at a time when literacy, inclusion and engagement are paramount.

Book Review: ii Mathematics and Art: A Cultural History

Last time I suggested that philosophy is missing from the title. Architecture is another very welcome theme in the book, the significance of perspective to art being obvious, but not the only focus. As mentioned the preface is an invitation to dive in. The oldest star atlas (xi), Chinese, sets the scientific and global tone to follow. My interest in diagrams, was quickly awoken as there are many in this book. I recalled the lunar cycle depicted on cave walls and bone. The first diagrams from prehistory. The preface works brilliantly as an introduction, such that I couldn't wait for chapter 7: "Scientists describe such symmetries using the mathematics of group theory" (xv).

Mathematics + Art

For young scholars the book plays the role of sign-posting schools and history of thoughts and ideas. [Paraphrasing..] Adorno and Horkheimer ... wrote the first in-depth analysis of the loss of confidence in enlightenment ideals, a condition that came to be called postmodernism (xviii). There's an observation of artists being inspired by mathematics, but not mathematicians drawing upon art - with some rare exceptions. When possible, Gamwell's approach to the personality and intellectual environment of mathematicians and artists is psychological (noting key traumas), at others the author adopts a more sociological and cultural stance. The prose throughout is clear and flows very well, even with some inevitable and necessary cross-referencing.

Chapter 1 Arithmetic and Geometry brings home the relationships and dependencies between maths, arts, belief and changes in our understanding of the Universe. When I learned in my teens of the destruction of the Library of Alexandria, which Ptolemy would have visited, (p.30) I was shocked and still am at this loss. Sadly a loss that is not just an ancient phenomenon.* Interested in astronomy, the loss of Hipparchus's globes and co-ordinate system is a further blow. A cross-cultural perspective is maintained throughout the book, with Islamic mathematics, South America and Asia. Do you know the difference between philosophy and mathematics? There is an opinion here. From the Greeks - Neoplatonism, early Christian and medieval thought and the 'liberal arts', I knew the modern book version of the 'Quad-rivium' on my shelf was of significance:

"In the late Roman and early Christian era, scholars continued to study the ancient texts based on a curriculum - arithmetic geometry, music, and astronomy (the quadrivium, Latin combination of quadri and via meaning "the place where four roads meet") - first described by the Pythagoreans and adopted by Plato for his Academy." (p.37)

An original purpose for Hodges' model, remains curriculum planning and development, the definition of the core disciplines of learning has always been a roll call of sorts. The book can serve all, but younger scholars especially, as it sets out the formulation of scholastic traditions which have a chapter each:

1. logicism (chapter 5): Realism - St Augustine - Platonic realm
2. intuitionism (chapter 6) - Conceptualism - Peter Abel - distinct objects only in the mind
3. formalism - (chapter 4) Nominalism - William of Okham - mere signs or names (p.37)

Even today we must ponder on the status of the seven liberal arts, the quadrivium plus the trivium of grammar, rhetoric and logic. To classics scholars this will be introductory, but invaluable grounding for many learners - young and more senior.

There is an account of eastern and western cultures and the relative development of mathematics. The sciences and theology feature markedly as human reason made progress - increasing certainty only to suffer from doubt with new discoveries. The 'via negativa' (Latin for "negative way", p.47) reminded me of two books on ignorance I purchased in London. I arrived there March 12th and soon thought; "What on Earth (as a nurse too) am I doing here?" Especially, being in the basement for Jazz Live at Pizza Express, Soho. These are indeed uncertain and challenging times.

You may have noticed I have not mentioned the art thus far. Well there is plenty. By page 47 we are up to plate 1.52 'The Cloud of Unknowing' 1998 by Roman Verostko.

Post iii soon.

*In lockdown I followed a conversation on the destruction of libraries from the digital Hay Festival:

https://www.crowdcast.io/e/hayfestival_event32

(This does require a subscription to Hay Player.)
 

Call for Papers: The Science of Trust Initiative -

Building and Restoring Trust in Science and Health Information across Patient, Community and Population Settings

 

Message(s) to HIFA alerting to, and response to a Call for Papers:

 

----- Forwarded message -----

From: Neil Pakenham-Walsh <neil.pakenham-walsh@ghi-net.org>

To: HIFA - Healthcare Information For All <hifa@hifaforums.org>

Sent: Friday, 16 December 2022 at 12:11:19 GMT

Subject: [hifa] Call for papers: Building and restoring trust in science and health information across patient, community and population Settings

I am forwarding this from our colleagues at Infodemic Management News, WHO.

Opportunities for action Call for papers: Building and restoring trust in science and health information across patient, community and population Settings

The Journal of Communication in Healthcare: Strategies, Media, and Engagement in Global Health seeks to solicit diverse perspectives and build a robust evidence base for a special issue on trust and misinformation as part of the journal’s Science of Trust Initiative. This special issue will explore topics across different health communication areas aimed at addressing issues fuelled by misinformation such as mistrust, social discrimination, and pervasive stigma. There is specific interest in submissions related to the science of trust that focus on interdisciplinary collaborations to promote social, policy, and/or behavioral change, address key root causes of health inequities, and can help forge the path forward for building and fostering trust. A good opportunity to showcase your latest achievements or research in infodemic management!

To read the call for papers and submit, it’s here. The deadline is 26 February 2022.

Dr Neil Pakenham-Walsh, HIFA Coordinator Healthcare Information For All Global Healthcare Information Network Working in Official Relations with the World Health Organization 20,000 members, 400 supporting organisations, 180 countries, 6 forums, 4 languages www.hifa.org neil AT hifa.org

----- Forwarded message -----

From: Neil Pakenham-Walsh <neil.pakenham-walsh@ghi-net.org>

To: HIFA - Healthcare Information For All <hifa@hifaforums.org>

Sent: Friday, 30 December 2022 at 10:06:18 GMT

Subject: [hifa] Call for papers: Building and restoring trust in science and health information across patient, community and population settings (4)

Dear Najeeb, Meena and all,

Najeeb: "I think this is a golden opportunity for HIFA to publish an article (possibly written by a number of key people in HIFA) and provide a leading statement that emphasizes the role of communication (good quality information) in healthcare for all." https://www.hifa.org/dgroups-rss/call-papers-building-and-restoring-trust-science-and-health-information-across-patient

Meena: "Very nice idea Najeeb and happy to be part of this project." https://www.hifa.org/dgroups-rss/call-papers-building-and-restoring-trust-science-and-health-information-3-hifa-paper

Yes indeed, the call for papers is specifically about 'Building and restoring trust in science and health information'. HIFA is uniquely positioned to explore this issue through dynamic multidisciplinary discussion.

My initial thought is that this could be done within the framework of our current collaboration with WHO and specifically the consultation we are planning for 2023: 'To identify best practices, opportunities and challenges from relevant health related stakeholders, towards pursuing universal access to reliable healthcare information'. https://www.hifa.org/projects/hifa-who-collaboration-plan Lack of trust is a huge challenge and it requires engagement from all stakeholders.

I would like to invite HIFA members and supporting organisations to comment and suggest next steps.

Best wishes, Neil

Dr Neil Pakenham-Walsh

----- Forwarded message -----

From: Najeeb Al-Shorbaji, Jordan <shorbajin@gmail.com>

To: HIFA - Healthcare Information For All <hifa@hifaforums.org>

Sent: Saturday, 31 December 2022 at 22:12:50 GMT

Subject: [hifa] Call for papers: Building and restoring trust in science and health information across patient, community and population settings (5) HIFA-WHO Collaboration

Dear Neil and all members of HIFA family

Happy New Year. The suggestion to invite comments from HIFA members is a logical one and fully supported. HIFA current collaboration with WHO should really be highlighted in this piece especially that WHO and HIFA have both a mission to make high quality information available and accessible by the world. Good quality, timely and accurate health information provided to people is the best prevention, protection and leads to good treatment of diseases. Hopefully this will make heath goals much more attainable. Lets go for it friends.

With kind regards.

Najeeb Al-Shorbaji, PhD, IAHSI

... Website: www.shorbaji.net Director, Knowledge, Ethics and Research WHO/HQ (Retired) e-Marefa Advisor President, Jordan Library and Information Association President, eHealth Development Association, Jordan President, Middle East and North Africa Association of Health Informatics IMIA Vice-President for MEDINFO 2023 Visiting Professor, Ain Shams University, Egypt Member of the International Academy of Pubic Health Scientific Council ORCID ID 0000-0003-3843-8430

----- Forwarded message -----

From: Peter Jones, UK <hifa@hifaforums.org>

To: HIFA - Healthcare Information For All <hifa@hifaforums.org>

Sent: Sunday, 1 January 2023 at 15:45:42 GMT

Subject: [hifa] Call for papers: Building and restoring trust in science and health information across patient, community and population settings (6) Hodges' model and information disorder

As highlighted before on HIFA over many years, Hodges' model can inform such a call for papers and project.

In several ways, including but not limited to - critique and representation of data, information, knowledge, wisdom (literacies - across all academic and professional disciplines):

Jones, P. (1996) Humans, Information, and Science, Journal of Advanced Nursing, 24(3),591-598.
Jones, P. (1996) An overarching theory of health communication? Health Informatics Journal,2,1,28-34.

Additional citation: IRMS Bulletin - November 2022
https://hodges-model.blogspot.com/2022/12/irms-230-h2cm-literacies.htm

"I am indebted to Peter Jones, who shared Hodges’ Health Career Model with the 2022 IRMS conference in Glasgow. Although originally used in a healthcare setting, this simple, two-axis intellectual model can be readily used to analyse any complex interaction between the individual and their environment – in this case, information literacies.

The diagram shows a number of distinct yet overlapping literacies that were potentially in play in our problem example, although there are likely to be many more – even emotional literacy played a part, with the frustrations of the young people in question causing them to dismiss potential solutions before they had been tried or even considered. Likewise, socio-political and socio-economic literacies may have been a factor – if you are unaware that something exists in the world due to blind-spots in your own cultural background then you cannot even begin to look for it."

Jon Fryer, "Information Literacies - Learning, to thrive in a digital age". IRMS Bulletin, Issue 230, November 2022. cc c (A membership journal)

During the summer and the "Communicating health research" thread on HIFA, I thought about 'information disorder' and the infodemic:

https://rm.coe.int/information-disorder-toward-an-interdisciplinary-framework-for-researc/168076277c [*see note below] I recalled this quote too - amid 'information overload'.

“Where is the wisdom we have lost in knowledge? Where is the knowledge we have lost in information?” ― T.S. Eliot, The Rock

As the evidence-base 'accumulates' there may be a questions about the life-cycle of research?

From implementation science to deimplementation: Patey et al. Implementation Science (2018) 13:134 https://doi.org/10.1186/s13012-018-0826-6

As an 'ecosystem' is it imperative that one (or more) part of 'data, information KNOWLEDGE wisdom' must wither on the academic (vine) database - reduced citation hence salience?

The aims and scope of a paper may also encompass the public's understanding of science. Frameworks and models of care/selfcare are needed that can simultaneously:

"... differentiate between science writing for the public and writing across communities of scientific practice. Described by its editors as an interdisciplinary journal, they argue it is a ‘transdisciplinary journal’"

from -Baram-Tsabari, Ayelet, Orli Wolfson, Roy Yosef, Noam Chapnik, Adi Brill, and Elad Segev. Jargon Use in Public Understanding of Science Papers over Three Decades. Public Understanding of Science, 29(6) (August 2020): 644–54. https://doi.org/10.1177/0963662520940501.

Hodges' model being situated can be used in contexts that are inter- multi- transdisciplinary and interprofessional (education).

If I can assist I'd be pleased to proof read, critique drafts, provide a figure / table using Hodges' model to illustrate the conceptual scope and associations of the work.

I may have also referred to agnotology - the study of ignorance, this should (must?) be a concurrent factor in research of literacy. If anyone has time to please read and comment on a near complete draft paper on: COVID-19, technology, society, Hodges' model, fake news misinformation dis- mal- also I'd be very grateful.

[ Since this message was posted to HIFA, I greatly appreciate an offer to read the draft, which should be complete mid-end of February ]

Happy New Year to all - wherever celebrated.

Peter Jones
Community Mental Health Nurse and Researcher
Warrington Recovery Team, NW England
http://twitter.com/h2cm

The call for papers link again:
https://think.taylorandfrancis.com/special_issues/science-trust-initiative/?utm_source=TFO&utm_medium=cms&utm_campaign=JPG15743

[*Note from HIFA moderator (NPW): Many thanks Peter, this publication looks interesting. The first paragraph of the executive summary sets the scene: 'This report is an attempt to comprehensively examine information disorder and its related challenges, such as filter bubbles and echo chambers. While the historical impact of rumours and fabricated content have been well documented, we argue that contemporary social technology means that we are witnessing something new: information pollution at a global scale; a complex web of motivations for creating, disseminating and consuming these ‘polluted’ messages; a myriad of content types and techniques for amplifying content; innumerable platforms hosting and reproducing this content; and breakneck speeds of communication between trusted peers.' I have invited the authors to join us.]