Call for Papers: The Science of Trust Initiative -
Building and Restoring Trust in Science and Health Information across Patient, Community and Population Settings
I am forwarding this from our colleagues at Infodemic Management News, WHO.
Opportunities for action Call for papers: Building and restoring trust in science and health information across patient, community and population Settings
The Journal of Communication in Healthcare: Strategies, Media, and Engagement in Global Health seeks to solicit diverse perspectives and build a robust evidence base for a special issue on trust and misinformation as part of the journal’s Science of Trust Initiative. This special issue will explore topics across different health communication areas aimed at addressing issues fuelled by misinformation such as mistrust, social discrimination, and pervasive stigma. There is specific interest in submissions related to the science of trust that focus on interdisciplinary collaborations to promote social, policy, and/or behavioral change, address key root causes of health inequities, and can help forge the path forward for building and fostering trust. A good opportunity to showcase your latest achievements or research in infodemic management!
To read the call for papers and submit,
it’s here. The deadline is 26 February 2022.
Dr Neil Pakenham-Walsh, HIFA Coordinator Healthcare Information For All Global Healthcare Information Network Working in Official Relations with the World Health Organization 20,000 members, 400 supporting organisations, 180 countries, 6 forums, 4 languages www.hifa.org neil AT hifa.org
Dear Najeeb, Meena and all,
Najeeb: "I think this is a golden opportunity for HIFA to publish an article (possibly written by a number of key people in HIFA) and provide a leading statement that emphasizes the role of communication (good quality information) in healthcare for all." https://www.hifa.org/dgroups-rss/call-papers-building-and-restoring-trust-science-and-health-information-across-patient
Meena: "Very nice idea Najeeb and happy to be part of this project." https://www.hifa.org/dgroups-rss/call-papers-building-and-restoring-trust-science-and-health-information-3-hifa-paper
Yes indeed, the call for papers is specifically about 'Building and restoring trust in science and health information'. HIFA is uniquely positioned to explore this issue through dynamic multidisciplinary discussion.
My initial thought is that this could be done within the framework of our current collaboration with WHO and specifically the consultation we are planning for 2023: 'To identify best practices, opportunities and challenges from relevant health related stakeholders, towards pursuing universal access to reliable healthcare information'. https://www.hifa.org/projects/hifa-who-collaboration-plan Lack of trust is a huge challenge and it requires engagement from all stakeholders.I would like to invite HIFA members and supporting organisations to comment and suggest next steps.
Best wishes, Neil
Dr Neil Pakenham-Walsh
Dear Neil and all members of HIFA family
Happy New Year. The suggestion to invite comments from HIFA members is a logical one and fully supported. HIFA current collaboration with WHO should really be highlighted in this piece especially that WHO and HIFA have both a mission to make high quality information available and accessible by the world. Good quality, timely and accurate health information provided to people is the best prevention, protection and leads to good treatment of diseases. Hopefully this will make heath goals much more attainable. Lets go for it friends.
With kind regards.
Najeeb Al-Shorbaji, PhD, IAHSI
... Website: www.shorbaji.net
Director, Knowledge, Ethics and Research WHO/HQ (Retired)
e-Marefa Advisor
President, Jordan Library and Information Association
President, eHealth Development Association, Jordan
President, Middle East and North Africa Association of Health Informatics
IMIA Vice-President for MEDINFO 2023
Visiting Professor, Ain Shams University, Egypt
Member of the International Academy of Pubic Health Scientific Council
ORCID ID 0000-0003-3843-8430
As highlighted before on HIFA over many years, Hodges' model can inform such a call for papers and project.
In several ways, including but not limited to - critique and representation of data, information, knowledge, wisdom (literacies - across all academic and professional disciplines):
Jones, P. (1996) Humans, Information, and Science, Journal of Advanced Nursing, 24(3),591-598.
Jones, P. (1996) An overarching theory of health communication? Health Informatics Journal,2,1,28-34.
Additional citation: IRMS Bulletin - November 2022
https://hodges-model.blogspot.com/2022/12/irms-230-h2cm-literacies.htm
"I am indebted to Peter Jones, who shared Hodges’ Health Career Model with the 2022 IRMS conference in Glasgow. Although originally used in a healthcare setting, this simple, two-axis intellectual model can be readily used to analyse any complex interaction between the individual and their environment – in this case, information literacies.
The diagram shows a number of distinct yet overlapping literacies that were potentially in play in our problem example, although there are likely to be many more – even emotional literacy played a part, with the frustrations of the young people in question causing them to dismiss potential solutions before they had been tried or even considered. Likewise, socio-political and socio-economic literacies may have been a factor – if you are unaware that something exists in the world due to blind-spots in your own cultural background then you cannot even begin to look for it."
Jon Fryer, "Information Literacies - Learning, to thrive in a digital age". IRMS Bulletin, Issue 230, November 2022. cc c (A membership journal)
During the summer and the "Communicating health research" thread on HIFA, I thought about 'information disorder' and the infodemic:
https://rm.coe.int/information-disorder-toward-an-interdisciplinary-framework-for-researc/168076277c [*see note below] I recalled this quote too - amid 'information overload'.
“Where is the wisdom we have lost in knowledge? Where is the knowledge we have lost in information?” ― T.S. Eliot, The Rock
As the evidence-base 'accumulates' there may be a questions about the life-cycle of research?
From
implementation science to deimplementation:
Patey et al. Implementation Science (2018) 13:134
https://doi.org/10.1186/s13012-018-0826-6
As an 'ecosystem' is it imperative that one (or more) part of 'data,
information KNOWLEDGE wisdom' must wither on the academic (vine)
database - reduced citation hence salience?
The aims and scope of a paper may also encompass the public's understanding of science. Frameworks and models of care/selfcare are needed that can simultaneously:
"... differentiate between science writing for the public and writing across communities of scientific practice. Described by its editors as an interdisciplinary journal, they argue it is a ‘transdisciplinary journal’"
from -Baram-Tsabari, Ayelet, Orli Wolfson, Roy Yosef, Noam Chapnik, Adi Brill, and Elad Segev. Jargon Use in Public Understanding of Science Papers over Three Decades. Public Understanding of Science, 29(6) (August 2020): 644–54. https://doi.org/10.1177/0963662520940501.
Hodges' model being situated can be used in contexts that are inter- multi- transdisciplinary and interprofessional (education).
If I can assist I'd be pleased to proof read, critique drafts, provide a figure / table using Hodges' model to illustrate the conceptual scope and associations of the work.
I may have also referred to agnotology - the study of ignorance, this should (must?) be a concurrent factor in research of literacy. If anyone has time to please read and comment on a near complete draft paper on: COVID-19, technology, society, Hodges' model, fake news misinformation dis- mal- also I'd be very grateful.
[ Since this message was posted to HIFA, I greatly appreciate an offer to read the draft, which should be complete mid-end of February ]
Happy New Year to all - wherever celebrated.
Peter Jones
Community Mental Health Nurse and Researcher
Warrington Recovery Team, NW England
http://twitter.com/h2cm
The call for papers link again:
https://think.taylorandfrancis.com/special_issues/science-trust-initiative/?utm_source=TFO&utm_medium=cms&utm_campaign=JPG15743
[*Note from HIFA moderator (NPW): Many thanks Peter, this publication
looks interesting. The first paragraph of the executive summary sets the
scene: 'This report is an attempt to comprehensively examine
information disorder and its related challenges, such as filter bubbles
and echo chambers. While the historical impact of rumours and fabricated
content have been well documented, we argue that contemporary social
technology means that we are witnessing something new: information
pollution at a global scale; a complex web of motivations for creating,
disseminating and consuming these ‘polluted’ messages; a myriad of
content types and techniques for amplifying content; innumerable
platforms hosting and reproducing this content; and breakneck speeds of
communication between trusted peers.' I have invited the authors to join
us.]