Call for Papers: The Science of Trust Initiative -

Building and Restoring Trust in Science and Health Information across Patient, Community and Population Settings

 

Message(s) to HIFA alerting to, and response to a Call for Papers:

 

----- Forwarded message -----

From: Neil Pakenham-Walsh <neil.pakenham-walsh@ghi-net.org>

To: HIFA - Healthcare Information For All <hifa@hifaforums.org>

Sent: Friday, 16 December 2022 at 12:11:19 GMT

Subject: [hifa] Call for papers: Building and restoring trust in science and health information across patient, community and population Settings

I am forwarding this from our colleagues at Infodemic Management News, WHO.

Opportunities for action Call for papers: Building and restoring trust in science and health information across patient, community and population Settings

The Journal of Communication in Healthcare: Strategies, Media, and Engagement in Global Health seeks to solicit diverse perspectives and build a robust evidence base for a special issue on trust and misinformation as part of the journal’s Science of Trust Initiative. This special issue will explore topics across different health communication areas aimed at addressing issues fuelled by misinformation such as mistrust, social discrimination, and pervasive stigma. There is specific interest in submissions related to the science of trust that focus on interdisciplinary collaborations to promote social, policy, and/or behavioral change, address key root causes of health inequities, and can help forge the path forward for building and fostering trust. A good opportunity to showcase your latest achievements or research in infodemic management!

To read the call for papers and submit, it’s here. The deadline is 26 February 2022.

Dr Neil Pakenham-Walsh, HIFA Coordinator Healthcare Information For All Global Healthcare Information Network Working in Official Relations with the World Health Organization 20,000 members, 400 supporting organisations, 180 countries, 6 forums, 4 languages www.hifa.org neil AT hifa.org

----- Forwarded message -----

From: Neil Pakenham-Walsh <neil.pakenham-walsh@ghi-net.org>

To: HIFA - Healthcare Information For All <hifa@hifaforums.org>

Sent: Friday, 30 December 2022 at 10:06:18 GMT

Subject: [hifa] Call for papers: Building and restoring trust in science and health information across patient, community and population settings (4)

Dear Najeeb, Meena and all,

Najeeb: "I think this is a golden opportunity for HIFA to publish an article (possibly written by a number of key people in HIFA) and provide a leading statement that emphasizes the role of communication (good quality information) in healthcare for all." https://www.hifa.org/dgroups-rss/call-papers-building-and-restoring-trust-science-and-health-information-across-patient

Meena: "Very nice idea Najeeb and happy to be part of this project." https://www.hifa.org/dgroups-rss/call-papers-building-and-restoring-trust-science-and-health-information-3-hifa-paper

Yes indeed, the call for papers is specifically about 'Building and restoring trust in science and health information'. HIFA is uniquely positioned to explore this issue through dynamic multidisciplinary discussion.

My initial thought is that this could be done within the framework of our current collaboration with WHO and specifically the consultation we are planning for 2023: 'To identify best practices, opportunities and challenges from relevant health related stakeholders, towards pursuing universal access to reliable healthcare information'. https://www.hifa.org/projects/hifa-who-collaboration-plan Lack of trust is a huge challenge and it requires engagement from all stakeholders.

I would like to invite HIFA members and supporting organisations to comment and suggest next steps.

Best wishes, Neil

Dr Neil Pakenham-Walsh

----- Forwarded message -----

From: Najeeb Al-Shorbaji, Jordan <shorbajin@gmail.com>

To: HIFA - Healthcare Information For All <hifa@hifaforums.org>

Sent: Saturday, 31 December 2022 at 22:12:50 GMT

Subject: [hifa] Call for papers: Building and restoring trust in science and health information across patient, community and population settings (5) HIFA-WHO Collaboration

Dear Neil and all members of HIFA family

Happy New Year. The suggestion to invite comments from HIFA members is a logical one and fully supported. HIFA current collaboration with WHO should really be highlighted in this piece especially that WHO and HIFA have both a mission to make high quality information available and accessible by the world. Good quality, timely and accurate health information provided to people is the best prevention, protection and leads to good treatment of diseases. Hopefully this will make heath goals much more attainable. Lets go for it friends.

With kind regards.

Najeeb Al-Shorbaji, PhD, IAHSI

... Website: www.shorbaji.net Director, Knowledge, Ethics and Research WHO/HQ (Retired) e-Marefa Advisor President, Jordan Library and Information Association President, eHealth Development Association, Jordan President, Middle East and North Africa Association of Health Informatics IMIA Vice-President for MEDINFO 2023 Visiting Professor, Ain Shams University, Egypt Member of the International Academy of Pubic Health Scientific Council ORCID ID 0000-0003-3843-8430

----- Forwarded message -----

From: Peter Jones, UK <hifa@hifaforums.org>

To: HIFA - Healthcare Information For All <hifa@hifaforums.org>

Sent: Sunday, 1 January 2023 at 15:45:42 GMT

Subject: [hifa] Call for papers: Building and restoring trust in science and health information across patient, community and population settings (6) Hodges' model and information disorder

As highlighted before on HIFA over many years, Hodges' model can inform such a call for papers and project.

In several ways, including but not limited to - critique and representation of data, information, knowledge, wisdom (literacies - across all academic and professional disciplines):

Jones, P. (1996) Humans, Information, and Science, Journal of Advanced Nursing, 24(3),591-598.
Jones, P. (1996) An overarching theory of health communication? Health Informatics Journal,2,1,28-34.

Additional citation: IRMS Bulletin - November 2022
https://hodges-model.blogspot.com/2022/12/irms-230-h2cm-literacies.htm

"I am indebted to Peter Jones, who shared Hodges’ Health Career Model with the 2022 IRMS conference in Glasgow. Although originally used in a healthcare setting, this simple, two-axis intellectual model can be readily used to analyse any complex interaction between the individual and their environment – in this case, information literacies.

The diagram shows a number of distinct yet overlapping literacies that were potentially in play in our problem example, although there are likely to be many more – even emotional literacy played a part, with the frustrations of the young people in question causing them to dismiss potential solutions before they had been tried or even considered. Likewise, socio-political and socio-economic literacies may have been a factor – if you are unaware that something exists in the world due to blind-spots in your own cultural background then you cannot even begin to look for it."

Jon Fryer, "Information Literacies - Learning, to thrive in a digital age". IRMS Bulletin, Issue 230, November 2022. cc c (A membership journal)

During the summer and the "Communicating health research" thread on HIFA, I thought about 'information disorder' and the infodemic:

https://rm.coe.int/information-disorder-toward-an-interdisciplinary-framework-for-researc/168076277c [*see note below] I recalled this quote too - amid 'information overload'.

“Where is the wisdom we have lost in knowledge? Where is the knowledge we have lost in information?” ― T.S. Eliot, The Rock

As the evidence-base 'accumulates' there may be a questions about the life-cycle of research?

From implementation science to deimplementation: Patey et al. Implementation Science (2018) 13:134 https://doi.org/10.1186/s13012-018-0826-6

As an 'ecosystem' is it imperative that one (or more) part of 'data, information KNOWLEDGE wisdom' must wither on the academic (vine) database - reduced citation hence salience?

The aims and scope of a paper may also encompass the public's understanding of science. Frameworks and models of care/selfcare are needed that can simultaneously:

"... differentiate between science writing for the public and writing across communities of scientific practice. Described by its editors as an interdisciplinary journal, they argue it is a ‘transdisciplinary journal’"

from -Baram-Tsabari, Ayelet, Orli Wolfson, Roy Yosef, Noam Chapnik, Adi Brill, and Elad Segev. Jargon Use in Public Understanding of Science Papers over Three Decades. Public Understanding of Science, 29(6) (August 2020): 644–54. https://doi.org/10.1177/0963662520940501.

Hodges' model being situated can be used in contexts that are inter- multi- transdisciplinary and interprofessional (education).

If I can assist I'd be pleased to proof read, critique drafts, provide a figure / table using Hodges' model to illustrate the conceptual scope and associations of the work.

I may have also referred to agnotology - the study of ignorance, this should (must?) be a concurrent factor in research of literacy. If anyone has time to please read and comment on a near complete draft paper on: COVID-19, technology, society, Hodges' model, fake news misinformation dis- mal- also I'd be very grateful.

[ Since this message was posted to HIFA, I greatly appreciate an offer to read the draft, which should be complete mid-end of February ]

Happy New Year to all - wherever celebrated.

Peter Jones
Community Mental Health Nurse and Researcher
Warrington Recovery Team, NW England
http://twitter.com/h2cm

The call for papers link again:
https://think.taylorandfrancis.com/special_issues/science-trust-initiative/?utm_source=TFO&utm_medium=cms&utm_campaign=JPG15743

[*Note from HIFA moderator (NPW): Many thanks Peter, this publication looks interesting. The first paragraph of the executive summary sets the scene: 'This report is an attempt to comprehensively examine information disorder and its related challenges, such as filter bubbles and echo chambers. While the historical impact of rumours and fabricated content have been well documented, we argue that contemporary social technology means that we are witnessing something new: information pollution at a global scale; a complex web of motivations for creating, disseminating and consuming these ‘polluted’ messages; a myriad of content types and techniques for amplifying content; innumerable platforms hosting and reproducing this content; and breakneck speeds of communication between trusted peers.' I have invited the authors to join us.]

"Information Disorder:" c/o Wardle and Derakhshan (2017) The transmission of ritual ...

INDIVIDUAL

|

 INTERPERSONAL    :     SCIENCES               

HUMANISTIC -----------------------------------  MECHANISTIC    

SOCIOLOGY  :   POLITICAL 

|

GROUP

	“The transmission view of communication is the commonest in our culture — perhaps in all industrial cultures... It is defined by terms such as ‘imparting,’ ‘sending,’ ‘transmitting,’ or ‘giving information to others.’ ...
... The ‘ritual view of communication’, by contrast, is not about “the act of imparting information but the representation of shared beliefs.” pp.14-15.

 

Wardle, Claire, and Hossein Derakhshan. 2017. “Information Disorder: Toward an Interdisciplinary Framework for Research and Policy Making.” 162317GBR. Council of Europe. https://edoc.coe.int/en/media/7495-information-disorder-toward-an-interdisciplinary-framework-for-research-and-policy-making.html.

Previously:

WHO: Infodemic Management News Flash Thursday 4 November 2021 #25

 

c/o Eliot Higgins: 'Moment of truth' or 'Movement to Critical Thinking'?

   moment

a : tendency or measure of tendency to produce motion especially about a point or axis

b : the product of quantity (such as a force) and the distance to a particular axis or point

https://www.merriam-webster.com/dictionary/moment

Here on W2tQ in posts applying Hodges' model I have tended to equate the subjective and the objective with the humanistic and mechanistic domains respectively. Of course, these mappings - conceptual placements are idealised. In reality there is a great deal of overlap. 

"Social media platforms such as X, once celebrated as democratising forces, are under even more scrutiny. The challenge isn't just rogue posts or unchecked algorithms. It reflects a deeper malaise, rooted in societal distrust, exacerbated by business models and perpetuated by reactive policies. The ramifications of disinformation spill on the streets with tangible, often devastating real-world consequences. 

These processes were already underway in 2014, when I founded the open-source investigative group Bellingcat." p.1. 

"The delicate balance between combating misinformation and ensuring digital freedoms remains elusive. ...

Addressing the root causes of disinformation requires a grassroots approach. Education stands at the forefront of this strategy. The idea is simple yet transformative: integrate open-source investigative and critical thinking into the curriculum. Equip the youth with the skills to navigate the labyrinthine digital realm, to question, analyse and verify before accepting or sharing information. ...

The potential of such a grassroots movement doesn't stop at school gates. Envision a world where universities become hubs of open source investigation, with national and international networks of students sharing methodologies, tools and insights. As these students move into their professional lives, they carry forward not just skills but a mindset - one that values critical thinking over blind acceptance." p.2.

Higgins, E. Moment of truth, Life&Arts, FT Weekend, 16-17 December 2023, pp.1-2.
 

 Individual

  |

    INTERPERSONAL    :     SCIENCES               

HUMANISTIC --------------------------------------  MECHANISTIC      

SOCIOLOGY  :   POLITICAL 

|

Group

mental well-being critical thinking education - learning subjective PSYCHO-	physical well-being fact (checking) digital media literacy objective
social well-being society social impacts of info disorder	-POLITICAL political well-being policy - regulation political impacts of info disorder

https://thestudentview.org/

https://citizenevidence.org/

Access to education to combat information disorder, through digital media literacy is essential. There are now many claimed forms of literacy, and informatics. Engaging students must not just rest with  universities and graduate level education; especially as the 'professions' are set to change and new ones arise.

Previous posts 'information disorder' , 'ignorance'.

Infracare - Hodges' Health Career - Care Domains - Model

Trying to sort papers again, I'd saved the article by Floridi (below) the title having caught my attention.

If Hodges' model has a meta-function, there is also a role in the infrastructure of care.

There is an opportunity for me to do the proverbial '360' exercise, visit each of the care domains in turn and literally throw in the kitchen sink:

Individual

|

      INTERPERSONAL    :     SCIENCES               

HUMANISTIC  --------------------------------------  MECHANISTIC      

 SOCIOLOGY  :    POLITICAL 

|

Group

I see you! Who you are.  person-centred  care  IDENTITY (identities) A model of care - A theory of (health) communication Information theoretic, information disorder   and relational studies	person-centred care  I see you! Who you are. identity - (IDENTITIES) - addressing Parity of Esteem in - - Practice & Research Information theoretic, information disorder   and relational studies
NHS and Social  Care Community Care as a resource Self care education and health promotion built in to education system Value Social Capital	Law and Justice to protect and secure Peoples & Populations Policy - National & Global that supports health and health promotion Declared integrated care care philosophy Adopted generic model for self, national and global and planetary health

Infraethics, Luciano Floridi. January 2013. The Philosophers Magazine. DOI: 10.5840/tpm20136010

"In HIFA - let's save a space to make sense of mountains of data"

Dear All, (HIFA mail list)

While rather expansive in scope not just reaching to the arts but also referencing nature and mountains, the following blog post may be of interest:

"Health & Care results in mountains of data: c/o Burke & Cao 2024"

https://hodges-model.blogspot.com/2024/08/nan-shepherd-.html

While the focus and purposes for HIFA are clear, in practice 'information' (data, facts, knowledge, wisdom) must always be contextualised, situated, and (potentially) justified.

In addition to relying on the sciences, medicine, nursing and healing practices are also characterised as arts.

See also, the digital humanities and more specifically - 'Intima: A Journal of Narrative Medicine' https://www.theintima.org/

There have been many posts about records recently, but of course it what goes into the record that is critical.

Salience, what we pay attention to is key.*

The record is critical if something goes wrong and a professional finds themselves in a Coroner's court, and/or disciplinary hearing. The previous posts also discuss the patient's access to their medical record.

I'm not sure if the point has been made but even before 'health literacy' is taken into account, given access a patient may identify many mistakes/errors within the record on many details including demographics and procedures, treatments, diagnoses applied. (There are studies confirming the same - a benefit of IT systems.)

In mental health service - England the care programme approach (CPA) has ended - been retired. Some argue this has been done 'quietly'.

While the emphasis on documentation since 1990s has been onerous for some practitioners in the need for a 'comprehensive' record, the principles of CPA are well-based in practice: Patients (families) are entitled to - 1. A care assessment 2. A care plan 3. A named care-coordinator - keyworker 4. A review 6 monthly; annually as a minimum

For more than a year 1995.., I worked full and p/t as CPA co-ordinator for Chorley and South Ribble Health Authority; and produced a report highlighting the potential benefits of information technology in data gathering and processing and information reporting. (A conference was also organised with 60+ delegates, and 10 software vendors demonstrating their wares.)

The news drove the development and introduction of CPA during the late 1980s, with often stigmatising headlines for many people affected with mental illness - including psychosis it must be added. Recent events are troubling for society and services now, and in terms of history repeating itself:

"On average over a hundred people in Britain a year are killed by someone with serious mental illness. On the day the NHS is Nottingham is found to have missed opportunities to stop Valdo Calocane killing 3 people we ask why lessons aren’t being learned." 'X' https://x.com/BeckyJohnsonSky/status/1823459379846271002

"Between May 2020 and February 2022, eight risk assessments were completed for Calocane by the trust, which the CQC said appear to have been carried out for each of his admissions to hospital and updated at other times during his care. The regulator said that while some risks were highlighted, other assessments “minimised or omitted key details”. https://careappointments.com/care-news/england/211213/cqc-review-of-nottingham-killers-care-finds-key-risk-details-minimised-or-omitted/

The state of mental health services in the UK is much debated and here too 'information' is critical, especially 'seeing' the person and the nuances of interpersonal communication skills. These are often encountered through non-verbal communication and 'clinical intuition' which must be related to professional experience.

So information must simultaneously be recognised as a mechanistic and humanistic melange of processes, purposes, practices and policies (4P's in Hodges' model).

As highlighted before we can also contrast HIFA's and practitioners efforts to combat the severe implications and risks of 'information disorder'. And yet, also recognise how the arts, innovation and creativity also contribute to interpersonal engagement, therapeutic goals, case formulation, health and other literacies using *metaphor* and *analogies* - as per Nan Shepherd's musings explored in the blog post by -

Burke, R., Cao, E. To Care for a Mountain - What medical practitioners can learn from Nan Shepherd. Oxford Review of Books, Summer 2024, Volume 8, Issue 2. p.14. In association with Stanford. (open access)

Patient, public and practitioner safety is always the aim & objective.

Further reading & notes: https://www.cqc.org.uk/publications/nottinghamshire-healthcare-nhsft-special-review-part2/risk-assessment

Whiting, D., Gulati, G., Geddes, J.R., Dean, K. and Fazel, S. (2024), Violence in schizophrenia: triangulating the evidence on perpetration risk. World Psychiatry, 23: 158-160. https://doi.org/10.1002/wps.21171

*I hope to contribute to a 'philosophy of attention' research project, my contribution will draw on clinical experience above and apply Hodges' model to explore and debate ... 'attention', starting in 2025 to c.2030.

Regards to all, Peter Jones

Information design: Tufte & Raskin

Art & Science

"Every major field of human activity is a mix of art and science. Theoretical physicists and professional mathematicians speak of the aesthetics of their work and are driven by concerns about elegance and beauty. Is a painter any less an artist for knowing perspective, understanding Josef Alber's elegant experiments and demonstrations about color, or being aware of chemical incompatibilities between various kinds of paint?

Designing the presentation of information, by the same token, partakes of the nature of both art and science. Edward Tufte's books reflect such a blend of knowledge. In one of them he outlines his five principles for designing graphics (1983: 105):" p.346.

[see below ...]

"The first four principles are (mostly) science-based. But the last, "revise and edit," tells us not only to check repeatedly that the first four conditions are met, but also apply our aesthetic judgement to the final work." p.347.

 INDIVIDUAL

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  INTERPERSONAL    :     SCIENCES               

HUMANISTIC --------------------------------------  MECHANISTIC   

SOCIOLOGY  :   POLITICAL 

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GROUP

5.revise and edit	above all else show the data maximize the data-ink ratio erase non-data ink erase redundant data ink *
5.revise and edit	5.revise and edit

N.B. Take note of the potential significance of 'revise and edit' in the Political domain, and its consequences socially and personally (and spiritually within the 5th domain). 

*In terms of #5 revise and edit, and as I work to complete a draft paper on:

Reflecting Society, Technology, COVID19 and Information Disorder within Hodges' Model

- the ability to create and generate deep fakes using technology and generative AI, presents a major SOCIO-POLITICAL challenge. When public trust in media is fractured then everything can be denied - 'The Liar's Dividend' (Gregory, 2022).

Gregory, S. (2022). Deepfakes, misinformation and disinformation and authenticity infrastructure responses: Impacts on frontline witnessing, distant witnessing, and civic journalism. Journalism, 23(3), 708–729. https://doi.org/10.1177/14648849211060644

Raskin, J. (2000). Presenting Information. In R. Jacobson (Ed.), Information Design (pp. 341-348). Cambridge, MA: The MIT Press. 

See also: (The link below may time out, but 'Try again' works here.)

https://web.archive.org/web/20010710223205/http://www.jefraskin.com/forjef2/jefweb-compiled/published/NursingTheoryForSite.html

'Finding the Signal through the Noise' - WHO EARS

It is deprived communities who desperately want to do their best for family, but struggle to have access to and make sense of many sources of information. News and information not just through 'traditional' channels, but social media. Trying to be objective, non-judgemental it can still be surprising how TVs and smartphones are the key personal and furniture items.

Outside of London, Liverpool has a low uptake of immunisation against measles:

Liverpool, now has cases and a child's death from measles:

https://liverpool.gov.uk/council/public-health-liverpool/measles-on-the-increase/

https://www.liverpoolecho.co.uk/news/liverpool-news/alder-heys-plea-after-child-32050189

Located in-between, I often visit Manchester and Liverpool. I wonder now if I should visit Liverpool less. My daughter and her partner expecting their second child have a decision to make next year.

I noticed on X a reference to 'social listening'. This was missed while drafting a paper on COVID, technology, social media and information disorder. More positively, work on 'infodemic' was captured and posted. 

Blowing the dust of another draft, I will reassess this stream of work and seek specific literature, especially contributions to improved outcomes - public (mental) health.

McGowan B. S. (2022). World Health Organization's Early AI-supported Response with Social Listening Platform. Journal of the Medical Library Association : JMLA, 110(2), 273–275. https://doi.org/10.5195/jmla.2022.1398

See also:

Fryer, Jon. “Information Literacies – Learning, to Thrive in a Digital Age” IRMS Bulletin 230 (2022): 16-21.

Jones, P. (1996) Humans, Information, and Science, Journal of Advanced Nursing, 24(3),591-598.

Article 10 of the European Convention on Human Rights: receive and impart information and ideas

Article 10 of the European Convention on Human Rights provides the right to freedom of expression, subject to certain restrictions that are "in accordance with law" and "necessary in a democratic society". This right includes the freedom to hold opinions, and to receive and impart information and ideas.

“

Article 10 – Freedom of expression 1. Everyone has the right to freedom of expression. This right shall include freedom to hold opinions and to receive and impart information and ideas without interference by public authority and regardless of frontiers. This article shall not prevent States from requiring the licensing of broadcasting, television or cinema enterprises. 2. The exercise of these freedoms, since it carries with it duties and responsibilities, may be subject to such formalities, conditions, restrictions or penalties as are prescribed by law and are necessary in a democratic society, in the interests of national security, territorial integrity or public safety, for the prevention of disorder or crime, for the protection of health or morals, for the protection of the reputation or rights of others, for preventing the disclosure of information received in confidence, or for maintaining the authority and impartiality of the judiciary.

”

Well there is clearly one -

purpose
	Political

- in blogging. Many small voices can make a difference.

It is sobering to realise the responsibility; the responsibility that pertains not only when we receive, but also impart information and ideas. Hodges' model can be concerned with both.

Care is needed when ideas have political weight and a health impact; even though when in the guise of public (mental) health such information and ideas apparently lack inertia. You have to wonder about striking the balance. Forget physics - it's the masses that suffer here.

	physic(s)
sick society

For how many decades have the health professions given the government(s) advice on alcohol?

For how long has the negative influence of advertising on children been questioned?

Always the balance.

So hard to find - like Political balls.

My source (and emphasis): Wikipedia
http://en.wikipedia.org/wiki/Article_10_of_the_European_Convention_on_Human_Rights

viii Book: Bill Ross - 'Order and the Virtual'

 'The Philosophy and Science of Deleuzian Cosmology'

So much of what we experience is nuanced. What was conscious thought, becomes tacit knowledge and unconscious. Is that consciousness nullified as Ross writes on page 76? I wrote a note 'reflection as hesitation'; also prompted to think about intution (p.83) and our word uses in 'retardation' (which here is no problem at all - in physics and complex sciences/systems. Again the 'principle of least action' arises (p.82). With more physics and cosmology to follow, it helps a little that 'manifold' has landed begging to be understood across the contexts. Bill Ross notes how Delueze and Michel Serres used the game metaphor [Game analogy #1]. Again, lifting this to a scribble 'Health-Illness is quite a game'! This will be the subject of a post soon. In England at least the law and manifold on health (being productive) and illness has been utterly disrupted. The game-table has been kicked over, by those in society who still able? New spaces, and canvases are needed. Kantian thought and interpretations are added to Leibniz. A heady mix but clearly essential as Bill Ross's critique is developed. 

 

The book was a must-read, as in the contents: Complexity (with a presentation next month), cosmology, Serres, and Claude Shannon. In Game Analogy #2, "Communication is understood here to encompass much more than meaningful exchange; all phenomena 'communicate'". p.85. I couldn't agree more with with these 'games', this thought being 'situated within the purchase of information theory' (p.86). Bizarrely (or not), in the same year two papers:

Jones, P. (1996) Humans, Information, and Science, Journal of Advanced Nursing, 24(3),591-598.

Jones, P. (1996) An overarching theory of health communication? Health Informatics Journal,2,1,28-34. 

Ross explains the global view of Michel Serres when it comes to 'information'. This entranced me, and I only scratched the skin:

Jones, P. (2008) Exploring Serres’ Atlas, Hodges’ Knowledge Domains and the Fusion of Informatics and Cultural Horizons, IN Kidd, T., Chen, I. (Eds.) Social Information Technology Connecting Society and Cultural Issues, Idea Group Publishing, Inc. Chap. 7, pp. 96-109.

Here there's a pointer to the cosmology to follow - Ross is true to the title. I have let most of the Astronomy Yearbooks go, but retain a few. Not just for key birth-years, but articles that are well written and researched historical snapshots. Here, Bill Ross discusses the game of Cepheid variables and their significance in mapping the universe. Truly, fascinating. Weaver's three levels of salient action are listed. Threads are tied too, with conclusions offered. These rules are reappraised, physics ever present. In light of one of the above papers I should revisit Serres, and Leibniz; the search for 'overarching explanatory power' (p.91) is ongoing. This game draws on Serres invitation to imagine a diagram, a network of nodes, channels, and propositions. This tabular formulation and its relations for me, spans the history of economics (Quesnay's tableau), the current state of economics (human values), and next (mathematical?) steps for Hodges' model. So many questions here: surely node  can't be an axis? I felt like Hansel, picking up sweets, Cartesian lines, scalene forms, thresholds, coming across hoops to jump through through to terminal equilibri. As you walk the sound of the thalweg, downstream... where Bergson features once again.

 

Reading Ross, over several months coincided with several key themes gaining in personal coherence. Bayesian ideas as might be applied to Hodges' model, even if in a naïve way (c/o feedback on draft notes). The remainder of chapter 3 includes time (thought), percept (space), to close with Deleuze's Ideal Game. I looked up Cortázarian Hopscotch https://en.wikipedia.org/wiki/Hopscotch_(Cort%C3%A1zar_novel), as the preface is titled. Ross reflects on the Ideal Game (does it exist, for Deleuze, only in thought?), and the distinction between 'domestic' chance (Baysian) and radical contingency belonging to the clinamen. In response to 'physical action and and the thought being on the same continuum', don't ask (please!), but I scribbled: 'corridor care' - a dangerous game, far from ideal. Plus, bird's using quantum entanglement to navigate. 'Kant's chaotic manifold', I will also investigate for next month(?).

Chapter 4 'Order as Complexity' proved most relevant. Every page is touched by graphite.

Deleuze has a 'blind spot' (p.111), something that Hodges' model seeks to ameloirate. But then of course at the model's center (nexus - as noted) that decussation of the axes invites a darkness of its own. If Hodges' model assists forethought and foresight  While inviting complexity, this interdisciplinary palette can also facilitate trandiscipinary sense-making. 'Magnitudes of intensity' reminded me of logarithmic thresholds within our perceptual apparatus. This is like reading Serres. A flow of punctum, simultaneity, delay (again) but its contribution to causal series, and Aionic time. I was taken (frequently)  to plane, person, personhood, chronicity, scales, local to global to glocal.

'BwO' (p.117)? That's 'body without organs: DELEUZE, GUATTARI a thousand plateaus - capitalism and s c h i z o p h r e n i a'.

There is a 'corner' amid those thousand plateaus. n.b. to self - 'triangulation always needs one other'. I cannot resolve the frameworks as yet, scientific - otherwise or otherwhere; but you can take flight from here. Physics takes it place as 'complexity begets complexity'. Bill Ross utilises well-recognized sources, Penrose, Kauffman, Kolmogorov and Bohm.

As with the frameworks internal and external complexity must be untangled 1-4 (p.124?). I can laugh now, did I really try to marry up Order  - Disorder :: Simple - Complex (complicated?) to the domains of Hodges' model? So often reading philosophy, you feel an imposter playing games with words, as in: 'different similarities' and 'similar differences' (p.125). But of course, this is serious scholarship. Especially, when it involves lines, a rough circle, segments and dimensions: disorder becomes different degrees of order. Page 126 delivers Deleuze in spades, Ross pulls his thoughts together. It is fitting for me that Ross closes chapter 4 with a nod to transdisciplinarity.

Chapter 5 deals with symmetry and disymmetry; indifference and difference; limits and non-locality. There is an argument to follow (p.133). With 'group theory' mentioned on p.131, I've a lot of things to 'look up' [topology too]. Despite appearances I recognise the lack of symmetry in Hodges' model. This is what the situation does (practice) and means (theory): 'There is no reason under the sun which can rely on perfect symmetry' (p.135).  Where do/can we locate 'spooky action at a distance' in Hodges' model (p.140)? 

The Higgs role! Who knew? 'the speed of light. It represents a retardation.' Thanks Bill Ross, fascinating pp. 135-174. Plus, axes too. Note to self: when we die do we 'simply' set sail on the Dirac Sea? Attending the Bill Ross Memorial Workshop – BSP Special Event 2025 last September:

https://hodges-model.blogspot.com/2025/09/bill-ross-memorial-workshop.html

the esteem .. and love .. that Bill Ross engendered in the people that knew him. The preface refers to chats in university cafes. How I wish. I wonder what Bill would have made of Hodges' model and the ongoing project here? Vitally, I get a distinct sense that he would have found time to listen ... 

'Bill Ross (1964 – 2022) had interests ranging widely across contemporary philosophy and culture, with a particular interest in the relations between science and philosophy. As managing editor, he was the driving force behind Clinamen Press, which in the early 2000s published new works by contemporary philosophers, and English translation of important works by continental philosophers such as Henri Bergson, Gaston Bachelard and Michel Serres. He completed his PhD in philosophy at Staffordshire University, where he taught on the MA in the Philosophy of Nature, Information, and Technology. Bill had a lifelong passion for the connections between science and philosophy, on which he had published several important articles. Bill was working on a monograph on the philosophy and science of Deleuzian cosmology, which was has been posthumously published by Edinburgh University Press. This event is to celebrate Bill’s book and his life, and to allow his friends, his colleagues, and anyone interested in his work or the topics and issues addressed by his work to continue the conversation that Bill’s work inspires.'

https://www.thebsp.org.uk/bill-ross-memorial-workshop-deleuzian-cosmologies/

 

Many thanks again to Edinburgh University Press for my copy - a keeper! Bill Ross RIP.

 

Bill Ross (2024) Order and the Virtual: The Philosophy and Science of Deleuzian Cosmology. Edinburgh: Edinburgh University Press.
https://edinburghuniversitypress.com/book-order-and-the-virtual.html

"How much empathy should doctors have?" c/o BBC Radio 4 'All In The Mind'

In ongoing reading and writing, I'm developing examples of care situations and contexts that extend across the domains of Hodges' model, candidates include:

1. Eating Disorder
2. Sense-Making in light of information disorder
3. Public Understanding of Science
4. Empathy and Rapport in healthcare disciplines

#4 has loomed large for quite a while. The contrast between being humanistic and mechanistic: warmth, engaged, attending, person-centred  and subjective; set apart from being objective, logical, cold, precise, mechanical, efficient, and accurate. These terms and more also indicate the scope (vertical and horizontal) of Hodges' model. In my nurse training, I remember that first intramuscular injection, and how my mentor - supervisor explained how, as a prescribed treatment - remember the patient needs it. The 'political' dimensions of this - informed consent, capacity, personal - professional ethics, mental health, and mental health act, add obvious complexity and critique to this example. 

 

In #4 I've the more general medical example of the surgeon and empathy. Then, this past week 'All In the Mind' devoted an informative feature on the topic (available for 12 months):

"A good bedside manner is a wanted quality in healthcare professionals. But as is performing procedures that can be painful or uncomfortable. As medical students train to become doctors, they can experience changes in their levels of empathy; the ability to resonate with how others feel. Learning long lists of diagnoses and pathologies, the human body starts to resemble more of a machine. But how detrimental is this? Claudia Hammond asks Jeremy Howick, director of the Stoneygate Centre for empathic healthcare at the University of Leicester, who is training healthcare professionals to express more patient empathy to improve health outcomes and reduce burnout. Lasana Harris, professor of social neuroscience at UCL, describes how too much empathy might be a cause of burnout, and medics should toggle empathy on and off depending on context. Medical students from the University of Bristol express how they feel empathy should come into their future roles. "

'Welcome to the QUAD' includes many previous posts on empathy, rapport.

Below, I have mapped key concepts and programme content to Hodges' model:

INDIVIDUAL
|
INTERPERSONAL    :     SCIENCES              
HUMANISTIC --------------------------------------  MECHANISTIC
SOCIOLOGY :   POLITICAL
|
GROUP

Empathy (regulation) and Rapport Therapeutic alliance Risk of burnout Emotional curiosity	Research - BioMedical Model [machine] First injection - 'invasive' procedure . . . Doing Surgery - cutting a person Body posture - Sitting down with person - patient
Social Neuroscience Language, presence Pre-op contact with nurses Restore 'humanity' Reassure	Lived experience - Staying in hospital a night. 'Being a patient?' Accountability - Responsibility Time and Resources to do the job. [PJ]

Call For Papers: Special Track on AI for Tackling Dis/Misinformation during Pandemics

Call For Papers: Special Track on AI for Tackling Dis/Misinformation during Pandemics In conjunction with the ACM International Conference on Information Technology for Social Good (GoodIT 2021)

The GoodIT conference is sponsored by ACM SIGCAS, the Association for
Computing Machinery's Special Interest Group on Computers & Society.

The conference focuses on the application of IT technologies to social good.

The Special Track on AI for Tackling Dis/Misinformation during Pandemics focuses on new data technologies based on artificial intelligence, data governance, machine learning, natural language
processing, and social network analysis to aid experts in analyzing large volumes of social media data in order to detect fake news, misinformation, and disinformation. A number of open challenges need
more investigation from the research community, such as recent trends in composing information disorder by combining false and real content, the mechanisms that drive fake content diffusion during pandemics, how to differentiate fake content from personal viewpoints, why people tend to believe fake content and make decisions based on it during pandemics, and what are the different motivations behind the dissemination of fake content. Fact-checking and claim verification are two important strategies that are worth incorporating in the automated tackling and curtailment of fake content during and after pandemics.

************ Key Dates ************

Papers Submission Due:      May 1, 2021

Authors Notifications:        June 22, 2021

Final Manuscript Due:        July 10, 2021

GoodIT 2021:                    September 09-11, 2021

************ Important Links ************

Special Track Website: https://aitdmp.conceptechint.net

Submission Link: https://goodit2021.hotcrp.com/

************ Submission Guidelines  ************

All submissions will be reviewed using a single-blind review process.

The identity of referees will not be revealed to authors, but authors can keep their names on the submitted papers, on figures, bibliography, etc.

Papers should not exceed 6 pages (US letter size) double column including figures, tables, and references in standard ACM format. Papers must be submitted electronically in printable PDF form.

Templates for the standard ACM format can be found here:

https://www.acm.org/publications/proceedings-template No changes to margins, spacing, or font sizes are allowed from those specified by the style files. Papers violating the formatting guidelines will be

returned without review.

ACM has partnered with Overleaf, a free cloud-based, collaborative authoring tool, to provide an ACM LaTeX authoring template. The ACM LaTeX template on Overleaf platform is available to all ACM authors at: www.overleaf.com/gallery/tagged/acm-official

Accepted papers will be included in the ACM Digital Library. 

Special  issues associated with the conference are being organized.

************ Topics ************

Papers on practical as well as on theoretical topics and problems in various topics related to rumors, fake news, misinformation, and disinformation during and after pandemics, are invited, with special emphasis on novel techniques and tools for automated tackling and curtailment of fake content during and after pandemics. Topics include(but are not limited to):

• AI approaches for the detection of online influence and manipulation
• AI approaches to identify misinformation and disinformation campaigns
• AI approaches for spotting misinformation and disinformation spreaders.
• Social media mining for automated detection of misinformation propagation and disinformation circulation
• AI approaches for automated identification and verification of claims
• AI approaches for intention detection for misinformation and disinformation contents
• AI approaches for credibility assessment of Social media sources
• AI approaches for fake news curtailment, filtering and prevention.
• AI approaches for analysis/detection of distributed and multi-platform misinformation and disinformation disseminations
• AI approaches for predicting the Impact of misinformation and disinformation during pandemics
• New datasets and evaluation methodologies to aid in automated detection and analysis of misinformation and disinformation content in social media channels

**********The Conference Sponsored by**********

Association for Computing Machinery's Special Interest Group on Computers & Society http://www.sigcas.org/

This workshop is supported by the Association of Cyber Forensics and Threat Investigators (www.acfti.org) and the Industrial Cybersecurity Center (www.cci-es.org).

########################################################################

This message was issued to members of www.jiscmail.ac.uk/SOCIOTECH, a mailing list hosted by www.jiscmail.ac.uk

Thanks to Andrew Zayine.

Book TSR ii - Mental illness/health: History, process and progress

As posted yesterday through a book review, I developed an awareness for the role of process much earlier than previously thought. It wasn't Enid Mumford's work on the benefits of a socio-technical approach to successful deployment of information systems. I only discovered this well after the advent of home computing with the ZX81 and BBC micro 1981-1995.

It was 1978-79 to be more exact; on an admission ward during my three year student Registered Mental Nursing course at Winwick Hospital. On first recollection, I thought it was a clinic, with patients coming in for Clomipramine (Anafranil) infusion on to the ward. As students on placement we were allocated to support the clinic, completing regular observations, including pulse and blood pressure. Clearly, it was a long time ago. There is a paper (paywall), quite a significant one for me:

O’Flanagan PM. A Clomipramine (Anafranil) Infusion Unit. Journal of International Medical Research. 1973;1(5):375-381. doi:10.1177/030006057300100519 

I remember this Consultant's name being mentioned, but this was before my time(?). From the paper's first - accessible - page I can see the patients involved were actually in-patients. Which given the procedures, safety, observation makes better sense. There is reference to a film, in a hospital newsletter 'The Standard':

'Anafranil Film

In response to the interest shown in the film on Anafranil Infusion, Dr. P. O'Flanagan was present in the In-Service Training Room on Monday, October 29th for a second showing of the film, and to answer any questions from the audience.'

https://winwickremembered.org.uk/mags/mag316.htm

I wonder if the film is archived somewhere?

It isn't a surprise to see my former Community MH manager and friend David McKendrick listed on the Publications Committee. I do miss David - a great mentor!

In the previous post about 'The Sleep Room' I contrasted the mind-body dichotomy. In terms of evidence on 'both sides' of this divide, many people have made the observation of how you can see a broken arm, or leg, and other physical ailments, but mental health issues are often not obvious:

Powell J, Clarke A. Information in mental health: qualitative study of mental health service users. Health Expect. 2006 Dec;9(4):359-65. doi: 10.1111/j.1369-7625.2006.00403.x. PMID: 17083562; PMCID: PMC5060370.

The evidence-base of general medicine - physical health and psychiatry must be dynamic. The volume of publications bears testimony to the relentless change across all the sciences, research, technologies, knowledge, theory, practice, management and policy. On Twitter there is constant 'debate' between psychiatry and anti-psychiatry. 

Studies of intravenous clomipramine continue, the intervention much changed from the 1960-70s:

Fallon BA, Liebowitz MR, Campeas R, et al. Intravenous Clomipramine for Obsessive-Compulsive Disorder Refractory to Oral Clomipramine: A Placebo-Controlled Study. Arch Gen Psychiatry. 1998;55(10):918–924. doi:10.1001/archpsyc.55.10.918

Persson M-L. Adler Mats y Hetta J. Pulse Intravenous Clomipramine as an alternative antidepressant treatment to ECT: A pilot study. Eur. J. Psychiat. [online]. 2007, vol.21, n.4 [citado 2025-04-07], pp.263-267. Disponible en: <http://scielo.isciii.es/scielo.php?script=sci_arttext&pid=S0213-61632007000400003&lng=es&nrm=iso>. ISSN 0213-6163.

Karameh WK, Khani M. Intravenous Clomipramine for Treatment-Resistant Obsessive-Compulsive Disorder. Int J Neuropsychopharmacol. 2015 Jul 28;19(2):pyv084. doi: 10.1093/ijnp/pyv084. Erratum in: Int J Neuropsychopharmacol. 2016 Apr 27;19(10):pyw031. doi: 10.1093/ijnp/pyw031. PMID: 26221004; PMCID: PMC4772819.

Perhaps, someone can please enlighten me? Given the time between William Sargant's practice, and today how much more do we know? We know the gap can't be fully closed (phenomenologically?), but has the evidence-gap been reduced? What are the evidential mile[Km]stones in psychiatry - mental health nursing? What are 'the standard' measures? If we look at a model that is bio-psycho-socio-political, what difference might this make, to the 'debate', theory, practice, research, management and politics (policy)? 

'Woke' is a tainted word these days, but in mental health care and nursing we all need to wake up and in a safe space.

RCN Congress 2026 & RCN North West Multicultural Group (NWMG)

England's North West is certainly in the news at present, on two counts:

1. The current Labour party machinations in the Makerfield ward;
2. and RCN Congress in Liverpool.

 As I attend Congress a key focus is the debates and how I can relate these to Hodges'model - (with some links to previous posts):

1. Nursing as a STEM profession
Matter for discussion submitted by the Eastern Board
That this meeting of RCN Congress discusses the recognition of nursing as a STEM (Science, Technology, Engineering, and Mathematics) profession, valuing the scientific, technical and analytical expertise of nurses.

STEM - science : technology : engineering : mathematics

2. Safe, ethical, person‑centred nursing
Resolution submitted by the Cheshire Branch
That this meeting of RCN Congress calls on RCN Council to urgently develop and implement a UK‑wide framework for realistic person‑centred care, ensuring that nursing practice is safe and ethical.

safe : ethics : person-centred 

3. Regular redeployment
Matter for discussion submitted by the Wiltshire Branch
That this meeting of RCN Congress discusses the impact of the daily redeployment of nursing staff on morale, team work and patient safety.

re- deployment

4. Unpaid hours
Matter for discussion submitted by the North East London Inner Branch
That this meeting of RCN Congress discusses the culture of nursing staff missing breaks and working beyond their contracted hours.

work

5. National safety standards for lone working
Resolution submitted by the Health and Safety Reps Committee
That this meeting of RCN Congress calls on RCN Council to lobby for the implementation of national safety standards for lone working, ensuring access to appropriate safety equipment, technology and protocols to protect staff across all care settings.

lone working

6. Accountable, compassionate and psychologically safe leadership
Matter for discussion submitted by the Cheshire Branch
That this meeting of RCN Congress discusses how the RCN can help create a culture where accountability, compassion, and psychological safety coexist, enabling managers to lead effectively while ensuring all staff feel respected and protected.

accountability : compassion : leadership 

7. Misinformation in health care
Matter for discussion submitted by the Women's Health Forum
That this meeting of RCN Congress discusses misinformation in health care and the impact this has on the nursing workforce.

misinformation : information disorder

8. Confidence to address racism
Matter for discussion submitted by the South West London Outer Branch
That this meeting of RCN Congress discusses how to build the confidence of nursing staff in addressing racism.

confidence : racism

Once again the North West Multicultural Group will have a stand:

The RCN North West Multicultural Group (NWMG) creates a community for members across the region from multicultural ethnic backgrounds to connect with each other, share their lived experience, knowledge and diverse ideas that help drive change around racism to ensure that their various organisations is the best place to work.

Membership is open to RCN members of Royal College of Nursing from multicultural backgrounds and their allies.

Mission statement: 

The aim of the North West Multicultural Group is to stand against racism and discrimination by using members lived experiences, encouraging organisations to be anti-racist and with the support of allies.  

Aims and objectives: 

• To raise the issues around race, discrimination and equality in the workplace and to find potential solutions. 
• To challenge misconceptions about people from different ethnic backgrounds.
• To recognise the skills and contribution to care for people from all backgrounds make.
• To acknowledge that racism is a social construct that needs to be eradicated together.  Together we are stronger.
• To be a platform for black, Asian and minority ethnic staff and allies to work collaboratively to address racism in practice.
• To help amplify the voice black, Asian and minority ethnic staff.
• To be role models, set examples as allies and develop confidence.
• To provide training and support about anti-racist practice.
• To work with the RCN to support campaigns to make sure communication is fit for purpose and acknowledges any cultural differences. 

Your executive team:

Chair: Olanike Babalola
Vice Chair: Susan Owen-Naz
Communications Officer: Mark Anthony

9. Advanced nursing practice
Resolution submitted by RCN Council
That this meeting of RCN Congress agrees that the RCN will act upon attempts to undermine advanced nursing practice.

advanced : practice : theory

10. Protecting nurse education
Resolution submitted by the Education Forum
That this meeting of RCN Congress asks RCN Council to lobby UK governments to protect nurse education from university sector economic pressures.

protect

11. Quality of clinical placements
Matter for discussion submitted by the Students Committee
That this meeting of RCN Congress discusses ways in which the quality of clinical placements can be ensured and consistent across all 4 countries.

quality : placement

12. Bank rates
Resolution submitted by the South Yorkshire Branch
That this meeting of RCN Congress demands that employers pay nursing staff bank shifts at their substantive rate.

pay

13. Are external reviews meaningful?
Matter for discussion submitted by the Midwifery Forum
That this meeting of RCN Congress discusses whether external reviews and inquiries are genuinely driving meaningful improvements in safety across health and social care.

inquiry : review

14. Improving acute mental health crisis services for children and young people
Resolution submitted by the London Board
That this meeting of RCN Congress calls on RCN Council to lobby UK governments to improve the provision of services to children and young people presenting in acute mental health crisis.

children : mental health

15. Access to specialist pain services
Matter for discussion submitted by the Pain and Palliative Care Forum
That this meeting of RCN Congress discusses access to specialist pain services and the role of the registered nurse in caring for those in pain.

pain

16. Palliative and end-of-life care
Resolution submitted by the Pain and Palliative Care Forum
That this meeting of RCN Congress calls on RCN Council to lobby UK governments to ensure everyone living across all 4 nations has access to specialist palliative and end-of-life care.

palliative

17. Accessible and affordable travel
Matter for discussion submitted by the North Central London Inner Branch
That this meeting of RCN Congress discusses what accessible and affordable travel means for the nursing workforce.

18. Uptake of physical health checks
Resolution submitted by the Public Health Forum
That this meeting of RCN Congress requests RCN Council to lobby UK governments to improve the uptake of physical health checks for people with learning disabilities and serious mental illnesses (SMI).

serious mental illness (SMI)

19. Eye donation
Matter for discussion submitted by the Greater Glasgow Branch
That this meeting of RCN Congress discusses the role nursing has in eye donation in end-of-life care planning.

eye : vision

20. 35-hour week
Resolution submitted by the Lothian and Borders Branch
That this meeting of RCN Congress calls on RCN Council to instigate a campaign for a maximum 35 hour working week for the nursing workforce.

21. Inappropriate delegation
Matter for discussion submitted by the Berkshire Branch
That this meeting of RCN Congress discusses the delegation of health care tasks to school staff and non-health care professionals.

22. Access to medicinal cannabis
Matter for discussion submitted by the Cheshire Branch
That this meeting of RCN Congress discusses the impact of current NHS prescribing practice on access to medicinal cannabis.

medicinal cannabis

23. SPA time
Resolution submitted by the Wiltshire Branch
That this meeting of RCN Congress calls on RCN Council to lobby for the inclusion of Supporting Professional Activities (SPA) time in all nursing job-plans.

See: https://www.rcn.org.uk/Congress/Agenda 

Are there any lessons from this exercise? Well, I have no posts tagged 'donor', or 'medicinal cannabis' - to make an important distinction. Something to correct and try to follow this week. 

See you there ...?

(I may need to reduce the link-count here.)