RCN Congress: Ebola, privacy and 'care bundles'

The first discussion at RCN Congress #RCN26 on Nursing as a STEM profession, or STEAM, with the arts added, became a resolution:

https://www.rcn.org.uk/congress/congress-events/nursing-as-a-stem-profession-2026

This was marvellous as it touched so many aspects that Hodges' model readily encompasses.

There is scope for the addition of emergency items:

https://www.rcn.org.uk/congress/Submit-an-emergency-agenda-item

Yesterday I wondered about the latest ebola outbreak, national and international aid^. Plus, privacy, having noticed a stream on twitter regards the NHS and a contract with Palantir. Yes, 'X' as a source is a problem, but concerns about access to confidential clinical information is found in the quality press. What does the Information Commissioner's Office say? Well, it seems there is a history:

https://icosearch.ico.org.uk/s/search.html?collection=ico%7Esp-search&query=PALANTIR&profile=_default

While searching for 'care bundles' I came across this:

 'The scope and force of medical privacy is further supported by a secondary layer of protections based in sectoral and other forms of regulation. Anti-discrimination laws, disability rights, and employment law, for example, all recognize and operate to preserve medical privacy by restrictions of use of medical information outside of the medical setting. 

 These intersecting normative strands of medical privacy, derived from different sources, together form a set of norms designed to protect a bundle of interests that is essential to the maintenance of an effective healthcare system that encourages and protects appropriate care-seeking and treatment. Whether and how technological changes in the collection, storage, and processing of data affect the construct of medical privacy is a pressing question. Just as a bell cannot be unrung, erosion of the sphere of medical privacy is unlikely to be restored.' p.330.

I realised over the past twenty years or so I've paid less attention to the fact that sections of a population, those often most in need of healthcare will not engage, be care-seeking - if they have no faith and trust in how their information is managed and protected. Minority groups, the digitally excluded (whether by choice, or literacy, economics) the influence of media are all vulnerable. Protection of data and the integrity of health services and systems is surely a matter of professional import both clinically and informaticians? As a registrant, I've always put it to student nurses that they should be aware of what happens to the data they as a registered nurse, enter in the electronic health record.

Pierce, R. (2018). Medical Privacy: Where Deontology and Consequentialism Meet. In B. van der Sloot & A. de Groot (Eds.), The Handbook of Privacy Studies: An Interdisciplinary Introduction (pp. 327–332). Amsterdam University Press. https://doi.org/10.2307/j.ctvcmxpmp.17

 

^What, only one sentence? Yes, but I'm still worried; geography - distance now matters little. While, on the other-hand: care-seeking...?

 

Previous posts: 'ebola' : #RCN26

ERCIM News No. 144 Special theme: "Advancing Open Science"

 

Dear ERCIM News reader,

ERCIM News 144 is now online [in PDF also]! This issue is dedicated to Advancing Open Science. Open Science is becoming an essential part of the European research landscape, shaping how knowledge, data, software, infrastructures and results are shared, reused and sustained.

The contributions collected in this special theme offer a cross-section insight into the current European effort to make research more open, transparent, collaborative and reusable.

This special theme was coordinated by our guest editors Leonardo Candela (CNR-ISTI) and Roberto Di Cosmo (Inria and University Paris Cité).

Includes: [PJ]

Rethinking Researcher Profiles in the Research Assessment Transition Era: The OpenAIRE Approach. pp.9-10.

P. Manghi, et al., “OpenAIRE Graph Dataset (10.6.0) [Data set]”, OpenAIRE.
https://doi.org/10.5281/zenodo.17725827

BibTexViz: Visualizing Research Productivity with Open Science Data. pp.10-12.

D. Hicks, et al., “The Leiden Manifesto for research metrics”, Nature 520, 429-431, 2015.
https://doi.org/10.1038/520429a
T. Munzner, “Visualization Analysis and Design”, CRC Press, 2014. https://doi.org/10.1201/b17511
M. Zaumanis, “Research Data Visualization and Scientific Graphics: For Papers, Presentations and Proposals”, Peer Recognized, 2021.

MOEBA-BIO: An Open and Extensible Framework for Evolutionary Biclustering in Biomedicine. pp.17-19.

Co-Creation as Infrastructure for Open Science Data Spaces. pp.24-25.

A Osterheider, et al., “Conceptualization of the Understanding of Participation and Co-Creation in Interdisciplinary Research Groups developing Digital Health Technology: An Exploratory Study: Conceptualization of the Understanding of Participation and Co-Creation”, Mensch und Computer 2023, 534–538, 2023. https://doi.org/10.1145/3603555.3608572

LICORICE: Deploying Privacy-Enhancing Technologies for Europe’s Digital Sovereignty. pp.30-31.

D4Science: An Enabling Infrastructure for Open Science. pp.38-39.

D. Schaap, M. Assante, et al., “Blue-Cloud: Exploring and demonstrating the potential of Open Science for ocean sustainability,” in Proc. 6th Int. Workshop on Metrology for the Sea; Learning to Measure Sea Health Parameters (MetroSea), IEEE, 2022, pp. 198–202, doi:10.1109/MetroSea55331.2022.9950819.

Next Issue - No. 145

Special Theme: E-values: Statistical Testing for the 21st Century

Call for Contributions

Thanks for reading ERCIM News. If you’ve enjoyed this issue, please feel free to forward it to colleagues who may find it interesting and help us reach even more readers by sharing it on LinkedIn.

If you’re considering an even deeper partnership, advertising in ERCIM News not only helps sustain our publication but also puts your message in front of an expert, highly qualified audience.

[ Posted from Marrakech 17th-27th April ] 

Seminar: 'MedGemma and HAI-DEF: A family of open models'

 

Dear Madam/Sir, 

We are glad to announce the following seminar: 

MedGemma and HAI-DEF: A family of open models by Andrew Sellergren, Software Engineer & Researcher at Google.

Save the date: 

Thursday, April 16, 2026 - 4:30 PM (CEST) 
Aula Pitagora - MT11 (Cubo 30B), Unical 
Hybrid Format / Live Streaming 

Link: https://dub.sh/medgemma2026

See also: https://goo.gle/medgemma

MedGemma Technical Report

My source: francesco.calimeri AT unical.it

CFP - 2026 International Conference on Artificial Intelligence for Health and Education (ICAIHE2026)

July 8-10, 2026, Tokyo, Japan

Dear Colleagues,

We are writing to invite you to submit your papers for publication and presentation at 2026 International Conference on Artificial Intelligence for Health and Education (ICAIHE 2026) scheduled on July 8-10, 2026 in Tokyo, Japan.

https://icaihe.org

Also, we invite you to submit a workshop/special session proposal to participate in ICAIHE 2026.

The workshop/special session proposal submission deadline has been extended to: February 28, 2026.
The regular paper submission deadline is: March 1, 2026.
----------------------------------------

INTRODUCTION
---------------
With the spread of digital technology in healthcare and education, there is a growing interest in using artificial intelligence (AI) to promote human well-being in the extensive areas of health and learning. As more data becomes available from IoT, wearable devices, sensors, social media and many other online platforms, new possibilities emerge for understanding and revolutionizing digital health and learning.

ICAIHE 2026 focuses on AI-enhanced and data-driven approaches to health and education. It aims to leverage advanced AI technology to provide new opportunities in the healthcare and education sectors. This conference is committed to bringing together researchers to explore how these cutting-edge AI technologies can optimize personal health and learning environments, and to demonstrate how these emerging technologies can drive transformative practices that promote human well-being.

IMPORTANT DATES
---------------
Workshop/SS Proposal Due: February 28, 2026 (Extended)
Regular Paper Due: March 1, 2026
Workshop/SS Paper Due: March 8, 2026
Author Notification: May 1, 2026
Paper Registration Due: May 15, 2026
Camera-ready Submission Due: May 22, 2026

SCOPE AND TRACKS
---------------
Prospective authors are invited to submit papers on topics including, but not limited to:

Track 1: Emerging AI Technologies for Health and Education

• Generative AI and LLM
• Agentic AI and AI Agents
• Explainable AI
• Multimodal AI Models
• Small Smart AI Models
• Knowledge Graphs
• Privacy Protection, Security, and Ethics in Emerging AI Applications

Track 2: AI-Enhanced Healthcare and Medical Services

• AI-Enhanced Big Data Analytics in Healthcare and Medical Services
• Multimodal Data Fusion in Digital Health
• AI-Enhanced Biometric Analysis in Digital Health
• Machine Learning and Deep Learning for Healthcare and Medical Services
• AI-Enhanced Precision Healthcare
• Metaverse and Digital Twin for Healthcare and Medical Services
• Human-AI Interaction in Digital Health and Well-being Promotion

Track 3: AI-Enhanced Education and Learning

• LLM-Enhanced Educational Content Generation
• LLM-Enhanced Personalized Learning
• LLM-Enhanced Automated Learning Feedback and Assessment
• AI-Enhanced Collaborative Learning
• AI-Enhanced Learning Analytics
• AI-Enhanced VR/AR/Metaverse for Immersive Learning
• AI Agents for Learning Management Systems

ICAIHE 2026 CALLS
---------------
Prospective authors are invited to submit original papers. Formats for the submissions are either

- Full Paper: 12-15 pages
- Short Paper: 6-11 pages
- Work-in-Progress Paper: 6-7 pages

SUBMISSIONS AND PUBLICATIONS
---------------
All accepted papers will be published in Springer CCIS series. Selected high quality papers will be recommended for possible publications on journal special issues.

For further details, please refer to https://icaihe.org/sub.html

Submission Link: https://cmt3.research.microsoft.com/ICAIHE2026

 

-------------
Hosted by
Waseda University, Japan 

 

My source: AI-SGES list - https://www.bcs-sgai.org/?section=server

Exhibition: Manchester (and online) “Our Lives, Our Privacy” c/o ICO

This a.m. I heard on BBC R4 Today 07.41.30... news (and interesting discussion) -

https://www.bbc.co.uk/sounds/play/m0029rg4

- of an exhibition in Manchester that may be of interest, if you're local, but it is also accessible online:

https://ico.org.uk/about-the-ico/media-centre/news-and-blogs/2025/04/come-and-visit-manchester-s-latest-exhibition-our-lives-our-privacy-to-celebrate-the-ico-s-40th-anniversary/

Our Lives, Our Privacy

'A digital exhibition featuring 40 items that tells the tale of how privacy has been at the centre of some of the biggest events and milestones we remember over the past four decades was launched last Autumn, but now a physical exhibition has come to Manchester. 

From 2 April to 30 June, we will be displaying the exhibition at Manchester Central Library in the first-floor exhibition space. Members of the public are welcome to pop in and see the items that have shaped our lives and our privacy.  

 

The ‘Our Lives, Our Privacy’ exhibition highlights poignant events in history including the launch of social media, the News of the World phone hacking scandal and the Covid 19 pandemic to name a few. It also looks at technological advancements like smart devices and raising questions about the future, including how accurate the episodes of ‘Black Mirror’ really are.'

==== Previously:

Jones, P. (1996) Humans, Information, and Science, Journal of Advanced Nursing, 24(3),591-598.
https://www.academia.edu/3555654/Humans_information_and_science

Jones, P. (1996) An overarching theory of health communication? Health Informatics Journal,2,1,28-34.

Jones, P. (2004) Viewpoint: Can informatics and holistic multidisciplinary care be harmonised? British Journal of Healthcare Computing & Information Management, 21, 6, 17-18.

Fryer, Jon. “Information Literacies – Learning, to Thrive in a Digital Age” IRMS Bulletin 230 (2022): 16-21.

As listed in the bibliography in this blog's sidebar.

I visited Manchester Central Library about two weeks ago, it is quite a building and full of public, cultural, and local information resources. Must do likewise in Liverpool.

Information and Records Management Society [IRMS] Conference Bursaries

Dear list,

Apologies for the cross-posting. I am forwarding this on behalf of the Information and Records Management Society.

If you think you can’t afford to attend the IRMS Conference or that it’s not the place for someone like you, it could be time to think again! That’s because we’re offering FREE bursary places that will give 3 people from under-represented groups an all-inclusive ticket to IRMS24 in Brighton on 12-14 May.

But you’ll need to be quick – the deadline is less than 2 weeks away!

There are 3 categories of bursary available:

1. New Generation – open to anyone aged 30 or under at the start of the conference on 12 May 2024
2. Diversity and Inclusion – offered to an information professional or student from an ethnic minority background, or who has a disability (or both)
3. International – available to IRMS members based outside of the UK and Ireland

Each bursary provides 1 fully-funded place at the whole event, including all conference sessions, food and refreshments, evening social events, and two nights’ luxury B&B accommodation at the conference venue, the DoubleTree by Hilton Brighton Metropole hotel. Please note we are unable to cover any travel costs.

You must meet certain criteria to be eligible for a bursary. If you do, then to apply, all you have to do is tell us who you are, which bursary you are applying for and why, and how you will benefit from being at the IRMS Conference 2024 – including which speakers or topics you are most excited about! We also ask how you would share your experience at the event.

You haven’t got long - the deadline for applications is Sunday 10 March.
For full details and to apply, go to www.IRMSConference.org.uk/Bursaries.

And spread the word - we want these bursaries to be available to the widest possible audience, so please share with friends, colleagues and contacts.

Thank you, and good luck! Joe
Joe Chapman IRMS Conference Director

Best Regards,
Ren

Reynold Leming
Managing Director
reynold AT informu-solutions.com
https://www.informu-solutions.com/

My source: Records Management List - Archive
https://www.jiscmail.ac.uk/cgi-bin/webadmin?A0=RECORDS-MANAGEMENT-UK

Learning Health Systems: Volume 8, Issue 1 - January 2024

Learning Health Systems is an Open Access journal.

Volume 8, Issue 1 (January 2024)

All articles shown below are freely available and downloadable.

COMMENTARY

Socio‐technical infrastructure for a learning health system

 

Charles P. Friedman, Edwin A. Lomotan, Joshua E. Richardson, Jennifer L. Ridgeway

LEARNING FROM DATA

Privacy‐preserving record linkage across disparate institutions and datasets to enable a learning health system: The national COVID cohort collaborative (N3C) experience

 

Umberto Tachinardi, Shaun J. Grannis, Sam G. Michael, Leonie Misquitta, Jayme Dahlin, Usman Sheikh, Abel Kho, Jasmin Phua, Sara S. Rogovin, Benjamin Amor, Maya Choudhury, Philip Sparks, Amin Mannaa, Saad Ljazouli, Joel Saltz, Fred Prior, Ahmen Baghal, Kenneth Gersing, Peter J. Embi

RESEARCH REPORTS

Analysis of FRAME data (A‐FRAME): An analytic approach to assess the impact of adaptations on health services interventions and evaluations

 

Heather Z. Mui, Cati G. Brown-Johnson, Erika A. Saliba-Gustafsson, Anna Sophia Lessios, Mae Verano, Rachel Siden, Laura M. Holdsworth

 

Automated generation of comparator patients in the electronic medical record

 

Joseph Rigdon, Brian Ostasiewski, Kamah Woelfel, Kimberly D. Wiseman, Tim Hetherington, Stephen Downs, Marc Kowalkowski

 

Stakeholder perspectives on data sharing from pragmatic clinical trials: Unanticipated challenges for meeting emerging requirements

 

Stephanie R. Morain, Juli Bollinger, Kevin Weinfurt, Jeremy Sugarman

 

Learning healthcare systems in cardiology: A qualitative interview study on ethical dilemmas of a learning healthcare system

 

Sara Laurijssen, Rieke van der Graaf, Ewoud Schuit, Melina den Haan, Wouter van Dijk, Rolf Groenwold, Saskia le Sessie, Diederick Grobbee, Martine de Vries

 

Frameworks, guidelines, and tools to develop a learning health system for Indigenous health: An environmental scan for Canada

 

Emma Rice, Angela Mashford-Pringle, Jinfan Qiang, Lynn Henderson, Tammy MacLean, Justin Rhoden, Abigail Simms, Sterling Stutz

 

Predictive modeling for infectious diarrheal disease in pediatric populations: A systematic review

 

Billy Ogwel, Vincent Mzazi, Bryan O. Nyawanda, Gabriel Otieno, Richard Omore

TECHNICAL REPORT

Learning health system benefits: Development and initial validation of a framework

 

Lisa C. Welch, Sarah K. Brewer, Titus Schleyer, Denise Daudelin, Rechelle Paranal, Joe D. Hunt, Ann M. Dozier, Anna Perry, Alyssa B. Cabrera, Cheryl L. Gatto

BRIEF REPORTS

Exploring nationwide policy interventions to control COVID‐19 from the perspective of the rapid learning health system approach

 

Ayat Ahmadi, Leila Doshmangir, Reza Majdzadeh

 

Developing LHS scholars’ competency around reducing burnout and moral injury

 

Sirin Yilmaz, Michele LeClaire, Abbie Begnaud, Warren McKinney, Kasey R. Boehmer, Cory Schaffhausen, Mark Linzer

 

Assessment of learning health system science competency in the equity and justice domain

 

Patricia D. Franklin, Denise Drane

EXPERIENCE REPORTS

Training the next generation of delivery science researchers: 10‐year experience of a post‐doctoral research fellowship program within an integrated care system

 

Richard W Grant, Julie A Schmittdiel, Vincent X Liu, Karen R Estacio, Yi-Fen Irene Chen, Tracy A Lieu

 

Implementing the learning health system paradigm within academic health centers

 

Douglas Easterling, Anna Perry, David Miller

 

Learning from an equitable, data‐informed response to COVID‐19: Translating knowledge into future action and preparation

 

Morgen Stanzler, Johanna Figueroa, Andrew F. Beck, Marianne E. McPherson, Steve Miff, Heidi Penix, Jessica Little, Bhargavi Sampath, Pierre Barker, David M. Hartley

 

Conceptualizing and redefining successful patient engagement in patient advisory councils in learning health networks

 

Madeleine Huwe, Becky Woolf, Jennie David, Michael Seid, Shehzad Saeed, Peter Margolis, ImproveCareNow Pediatric IBD Learning Health System 

COMMENTARIES

Toward a common standard for data and specimen provenance in life sciences

 

Rudolf Wittner, Petr Holub, Cecilia Mascia, Francesca Frexia, Heimo Müller, Markus Plass, Clare Allocca, Fay Betsou, Tony Burdett, Ibon Cancio, Adriane Chapman, Martin Chapman, Mélanie Courtot, Vasa Curcin, Johann Eder, Mark Elliot, Katrina Exter, Carole Goble, Martin Golebiewski, Bron Kisler, Andreas Kremer, Simone Leo, Sheng Lin-Gibson, Anna Marsano, Marco Mattavelli, Josh Moore, Hiroki Nakae, Isabelle Perseil, Ayat Salman, James Sluka, Stian Soiland-Reyes, Caterina Strambio-De-Castillia, Michael Sussman, Jason R. Swedlow, Kurt Zatloukal, Jörg Geiger

 

Can we identify the prevalence of perinatal mental health using routinely collected health data?: A review of publicly available perinatal mental health data sources in England

 

Sarah Masefield, Kathryn Willan, Zoe Darwin, Sarah Blower, Chandani Nekitsing, Josie Dickerson

 

My source: Email request by -

Kathleen Young
Editorial Assistant, Learning Health Systems journal
Victor Vaughan
1111 East Catherine Street
Ann Arbor, MI 48109

DATA POWER 2024

"Exciting news: 

The fifth #DataPower Conference will take place from 4th to 6th September '24 - in Bangalore (India), Graz (Austria) and online.

Conference theme: Situating Data Practices Beyond Data Universalism.
Deadline: 19th Jan '24"

https://datapowerconference.org/data-power-2024/about-2024

INDIVIDUAL

|

     INTERPERSONAL    :     SCIENCES               

HUMANISTIC --------------------------------------  MECHANISTIC      

SOCIOLOGY  :   POLITICAL 

|

GROUP

data, AI anxiety psychological security my privacy knowledge what, how we know emotional well-being literacies	DATA numeric - quantified physical access/security surveillance freedomS machine algorithmic
humanity social - society cultural life civil society wisdom data-related PRACTICES how to envisage a just data society? inequality - discrimination	control governments security agencies economics - politics citizenship rights - injustices private corporations political security POWER

  My source:
https://x.com/juliane_jarke/status/1720118890234106296?s=20

"Imagine dumping nearly 400,000 paper documents -

- into a dead drop
located discretely on the hard shoulder of a road."

INDIVIDUAL
|
 INTERPERSONAL    :     SCIENCES               

HUMANISTIC --------------------------------------  MECHANISTIC      

SOCIOLOGY  :   POLITICAL 

|

GROUP

"Third is the rise of new actors, 'super-empowered' individuals, capable of intervening in historical developments at a systemic level."	"First is a change in the materiality of communication. Communication becomes more extensive, more recorded and the records become more mobile."
"Finally, fourth is a structural transformation of the public sphere (through media consolidation at one pole, and the explosion of non-institutional publishers at the other), to an extent that rivals the one described by Habermas with the rise of mass media at the turn of the 20th century." p.31.	"Second is a crisis of institutions, particularly in western democracies, where moralistic rhetoric and the ugliness of daily practice are further diverging at the very moment when institutional personnel are being encouraged to think for themselves."

Image: Amazon

"In the wake of Wikileaks' recent headline-busting exposés, a very different news and informational landscape is emerging. Whilst acknowledgeing the structural leakiness of networked organisations. Felix Stadler finds deep-rooted reasons for the crisis of information security and the new distribution of investigative journalism." p.31.

Source: Stalder, F. (2011) Double Negative Feedback: CONTAIN THIS! LEAKS, WHISTLE-BLOWERS AND THE NETWORKED NEWS ECOLOGY. MUTE. Spring/Summer, Vol. 3, #1, pp.30-37.





https://www.metamute.org/editorial/magazine/mute-vol.-3-no.-1-double-negative-feedback

ERCIM News No. 133 Special theme: "Data Infrastructures and Management"

Dear ERCIM News reader,

ERCIM News No. 133 has just been published. This special theme of this issue highlights the advancements made in the field of data infrastructures and management through exploration of novel research and technologies.  

This special theme was coordinated by our guest editors Manolis Terrovitis (ATHENA RC) and Dominik Ślęzak (University of Warsaw).

Thank you for your interest in ERCIM News. Please forward this message to anyone who might be interested. We also appreciate you following us and talking about us on Twitter @ercim_news and other social media.

Includes:

p.11 The Data Portal of the European Plate Observing System – A New Tool for the Solid-earth Sciences in Europe
by Vasco Avramo (EPOS-ERIC), Daniele Bailo (EPOS-ERIC, INGV) and Rossana Paciello (EPOS-ERIC, INGV)

p.24 CyberSec4Europe - Securing and Preserving Privacy Sharing Health Data
by Raquel Cortés Carreras, Juan Carlos Pérez Baún and
Miryam Villegas Jimenez (Atos Spain S.A.)

p.44 Survival Skills in the Digital Era: Helping Teachers to Develop Digital Competences
by Angela Fessl and Katharina Maitz (TU Graz), Monica Divitini (NTNU)

Next issue:
No. 134,  July 2023
Special Theme: "Explainable AI". Submissions are welcome! See call for contributions.

Announcements in this issue:

---

Call for Proposals: Dagstuhl Seminars and Perspectives Workshops Schloss Dagstuhl – Leibniz-Zentrum für Informatik is accepting proposals for scientific seminars/workshops in all areas of computer science.

---

ERCIM "Alain Bensoussan" Fellowship Programme - postdoctoral fellowships available at leading European research institutions.
Simple application procedure. Next application deadlines: 30 April and 30 September 2022

---

ERCIM News is published quarterly by ERCIM, the European Research Consortium for Informatics and Mathematics. With the printed and online edition, ERCIM News reaches more than 10000 readers.
All issues published to date are available online. The previous four issues focuse on:

- Fighting Cybercrime

- Assistive Technologies

- Ethical Software Engineering

- Cognitive AI & Cobots

---

Advertise in ERCIM News

About ERCIM

ERCIM - the European Research Consortium for Informatics and Mathematics - aims to foster collaborative work within the European research community and to increase co-operation with European industry. Leading European research institutes are members of ERCIM. ERCIM is the European host of W3C.

https://www.ercim.eu/
https://twitter.com/ercim_news
ERCIM LinkedIn Group

Subscribe to the ERCIM News quarterly alert

Peter Kunz*                      	
ERCIM Office
2004, Route des Lucioles
BP93
F-06902 Sophia Antipolis Cedex

*My source.

Shining a light on Dark Patterns

 INDIVIDUAL

|

 INTERPERSONAL    :     SCIENCES               

HUMANISTIC --------------------------------------  MECHANISTIC      

SOCIOLOGY  :   POLITICAL 

|

GROUP

PERSONAL DATA^	PERSONAL DATA DATA, DESIGN BIOMETRICS^ PERSONAL DATA  DARK   PATTERNS
PERSONAL DATA*	CONTROL TECH GIANTS TRANSPARENCY LAW CONSUMER PROTECTION ...

*And the data of family members.
^Data that is specific to an individual, organic, can include fingerprint, facial images, DNA, behaviours (including keyboard use, online).

Prompt: Mention of 'dark patterns' on BBC World Service promoting their tech coverage.

Previously: 'interface(s)'

NHS Independent Report: "Better, broader, safer: using health data for research and analysis"

"Professor Ben Goldacre’s review into how the efficient and safe use of health data for research and analysis can benefit patients and the healthcare sector."

 

 

INDIVIDUAL

|

 INTERPERSONAL    :     SCIENCES               

HUMANISTIC --------------------------------------  MECHANISTIC      

SOCIOLOGY  :   POLITICAL 

|

GROUP

"Better, broader, safer: using health data for research and analysis"	"Raw data - such as NHS patients’ electronic health records - is prepared, analysed, and visualised by writing code that issues instructions to computers. Data preparation and analysis are hugely complex technical tasks."
PUBLIC: Safety Privacy Accountability [inc. Value for Money] Benefits Trust Literacy Awareness / Understanding of Science(s) Self-care, Care of family and Social Care (Inoculation: Fake news, Dis-, Mis-, Malinformation)? 'Broader' (a further post ...?)	“Nobody wants to work in an NHS trust on NHS data, it’s a nightmare and we can't pay people appropriately.” - Interviewee

Department of Health & Social Care, Independent report. "Better, broader, safer: using health data for research and analysis". Published 7 April 2022.

 

My source: 

Trevor Peacock, Head of Governance, Risk & Compliance, Information Security Group, Information Services Division University College London 

c/o NHS-HE-FORUM

 

ERCIM News No. 127 Special Theme: "Smart and Circular Cities"

Dear ERCIM News reader,

 "Smart and Circular Cities"

ERCIM News No. 127 has just been published at https://ercim-news.ercim.eu/

The Special Theme of this issue reports on research on smart and circular cities in Europe, using innovative technologies and approaches, reaching out to novel application domains. This special theme has been coordinated by our guest editors Erwin Schoitsch (AIT) and Georgios Mylonas (ISI, Athena Research and Innovation Center).

Thank you for your interest in ERCIM News. Feel free to forward this message to anyone who might be interested.We are also happy if you follow us and talk about us on social media @ercim_news

Next issue:
No. 128,  October 2021  January 2022*
Special Theme: "Quantum Computing" (submissions welcome!) 

About ERCIM

ERCIM - the European Research Consortium for Informatics and Mathematics - aims to foster collaborative work within the European research community and to increase co-operation with European industry. Leading European research institutes are members of ERCIM. ERCIM is the European host of W3C.

Peter Kunz                      	
ERCIM Office

2004, Route des Lucioles
BP93
F-06902 Sophia Antipolis Cedex 

Includes:

Smart and Circular Cities - Introduction to the Special Theme

 

A Holistic and Scalable Solution for Research, Innovation and Education During the Energy Transition

 

Dagstuhl Seminars and Perspectives Workshops - Call for Proposals

 

*A special form of uncertainty crept in and out again ...

 

See also:

Symposium on Solutions for Smart Cities Challenges (SSCC 2021)

Gandia, Spain. December 6-9, 2021 (Hybrid)

https://www.sscc.fr/sscc2021

ERCIM News No. 126 Special Theme: "Privacy-Preserving Computation"

Dear ERCIM News reader,

ERCIM News No. 126

ERCIM News No. 126 has just been published at https://ercim-news.ercim.eu/

The Special Theme of this issue focuses on current research on privacy-preserving computation, coordinated by our guest editors Rudolf Mayer (SBA Research) and Thijs Veugen (TNO and CWI).

Thank you for your interest in ERCIM News. Feel free to forward this message to anyone who might be interested.

Next issue:
No. 127,  October 2021
Special Theme: "Smart and Circular Cities" (submissions welcome!)

Peter Kunz  (with thanks)
ERCIM Office

2004, Route des Lucioles
BP93
F-06902 Sophia Antipolis Cedex

https://www.ercim.eu
--------------------------------
@ercim_news
http://twitter.com/ercim_news

join the ERCIM Linkedin Group
https://www.linkedin.com/groups/81390/

[I have edited to reduce the number of links.]

Political space: 'Forum Internum'

... Or, how do they 'read' the model?

individual

|

INTERPERSONAL : SCIENCES

humanistic ----------------------------------------------- mechanistic

SOCIOLOGY : POLITICAL

|

group - population

Forum Internum ([{Private - mental space}]) Freedom of Thought	Neuroscience Technology Brain-Machine Interface
Social media technologies Data aggregation data mining Profiling Vulnerable groups	Political space Human Rights Lawyers, Courts - NeuroLaw Arrival of fMRI imaging in court Protection of Freedom of Thought Thought-crime?

 

Please also consider here the position of the individual, their mental health and mental health law.

My source:

BBC Radio 4: Political Space - Forum Internum 3/3

Op-Ed: Why dignified menstruation matters?

"reproductive health rights are human rights"

individual

|

INTERPERSONAL : SCIENCES

humanistic ----------------------------------------------- mechanistic

SOCIOLOGY : POLITICAL

|

group - population

self self-esteem  self-respect dignity FEMINITY awareness ignorance concepts personal beliefs  anxiety fear stress vulnerability  risk mental health trauma - abuse impact on education self-care self-efficacy health literacy  psychological privacy (this is my period - not my shame ...)

A matter of  human biology:  anatomy & physiology globally? Bangladesh, Nepal, India, other low and middle income countries  in South Asia menstruation, menstrual period adolescence, women of reproductive age wrong information life threatening ... menstrual hygiene  menstrual health management disaster response natural disaster, floods, cyclones, conflict, refugees cyclone shelters lighting physical security  physical access to toilets traditional materials - cloth physical privacy

even if it's yours? intergenerational factors... "When I was a girl..." Women's menstruation menstrual period  cultural and social beliefs Health literacy Health promotion negligence and whisper womanhood: dignity and respect public discussion  stereotype, ideas, taboos, stigma shame age old superstitions  life threatening harmful practices imposed to them by the family members, neighbours and the community [ Community care?! ] positive role models positive support of husbands and families social privacy

Human Rights Declaration United Nations in 1948 'dignified menstruation' UN Water water, sanitation and hygiene (WASH) Disaster relief: 1. Male perspective; 2. Cultural taboo; 3. Menstrual health not in plans? power control  budgetary planning Public Health Policy Toilet facilities Provision of toilets Toilet-sewage infrastructure political privacy (do not compromise my privacy  by compromising my rights)

"All the stakeholders should explore all-inclusive 

and 

most comprehensive integrated approach 

to ensure dignified menstruation."

The Daily Observer, Why dignified menstruation matters? by PARVEZ BABUL

My source: HIFA

... and previously on W2tQ