Living and Loving Dangerously

individual

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INTERPERSONAL : SCIENCES             

humanistic ------------------------------- mechanistic

SOCIOLOGY : POLITICAL   

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group

identity - choices   Memory - Cognition DEMENTIA - Early onset Inability to consent   inhibition-disinhibition  mental capacity	My liberty, my choices "What! I'm married to you? Oh!" Treatment - medication  'Secure (safe)' environment 'Holistic assessment'?
Marital/Initimate Relationships Social (our) identity Existing relational behaviours Interrelational needs Interpersonal grief Social identity/expectations Yes, but we're married ... had 40 years together ... Family bias, prejudices.. A 'new' step-parent ... Access to support:  relational - mutual vulnerability	Informed consent Assumed consent Rape, Sexual abuse, crime Capacity to give consent Consistency in decisions Lasting power of attorney - finance; health External safeguards Human rights Access to supervision - clinical & management

Prompts:

Previously post: Living and Caring Dangerously

Danny Leigh. Critic's choice - Films on release: Queen at Sea. Life&Arts, FTWeekend, 19/20 September, 2026, p.18.

https://depijp.rialtofilm.nl/en/films/queen-at-sea

So many difficult conversations. All on their own unique continuum in terms of sense-making for all concerned. 

A 'new' diagnosis at age 60; versus one at 44. Families seeking to control disclosure of the diagnosis from the patient. Clinical and family debate about this.

Finding a person locked-in the house, while their partner 'nips' to the shops. A person having their freedom to go out, on their regular walk  -despite acknowledged risks. (When they are known by people on their route - community care in action. Receiving a call from a neighbour; or the neighbour who knows where you park and can intercept you, on arrival or departure to express concerns. Or, even as you venture out for a walk with their neighbour of many a year. Categorise them as you will: [nosey, caring, concerned, public spirited, neighbourly, or (healthily) curious]?

Other discussions of grief at the loss of a person they have loved - in every way. A grief that presents new dark dimensions to what has gone before. Complicated by a state of early onset of memory loss. An ongoing disintegration of personhood and identity. An inability to consistently express thoughts, wishes, and choices. An inability to give informed consent. A loss taunted by retained physical desirability. What does love, sex, compassion mean now? What is the sum now, of love expressed over 'x' years? Hearts hollowed out, of what can be so important to a couple. Not vital to all. But for others, a source of conjoined affirmation, joy, warmth, companionship, a celebration of life and being human.

How to share that grief even amid close friends and family, who cannot cope themselves and withdraw? What of the preparedness of professions to manage such situations? What structures are in-place for team meetings, clinical supervision and inclusion in training, especially safeguarding?

From the bibliography (lower sidebar):

Hodges, B.E. (1989) The Health Career Model, IN, Hinchcliffe, S.M. (et al.) 1989 Nursing Practice and Health Care, 1st Edition only, London, Edward Arnold.

Adams, T. (1987) Dementia is a family affair. Community Outlook, Feb, 7-8.

Merritt MK, Procter N. Conceptualising the functional role of mental health consultation-liaison nurse in multi-morbidity, using Peplau's nursing theory. Contemp Nurse. 2010 Feb-Mar;34(2):158-66. doi: 10.5172/conu.2010.34.2.158. PMID: 20509800.

Murphy, K., Welford C. (2012) Agenda for the future: enhancing autonomy for older people in residential care.International Journal of Older People Nursing. 7, 75–80.

Kernohan, W. G., & Jones, P. (2023). Hodges’ Health Care Model as a Framework for Quality. Paper presented at Interprofessional work: developing oral care and the health workforce for the future, Brescia, Italy.
https://pure.ulster.ac.uk/en/publications/hodges-health-care-model-as-a-framework-for-quality

Jones, P. (2025). A Conceptual Mapping Exercise of Deprivation of Liberty Safeguards in Residential & Community Care Using Hodges' Model and Threshold Concepts. Journal of Evaluation in Clinical Practice, 31: e70085. https://doi.org/10.1111/jep.70085

Jones, P. (2025), A Generic Model and Conceptual Framework to Prime Curiosity Across Health and Social Care Disciplines to Facilitate Lifelong Learning. Journal of Evaluation in Clinical Practice, 31: e70252. https://doi.org/10.1111/jep.70252

Previously: 'capacity' : 'consent' : 'law' : 'safeguarding'

Call for Book Reviewers: LGBTQ Titles c/o [spiritof1848]

Would you please share this information with your networks? Thanks! We have some new LGBTQ books. Reviewers get to keep the free copy of the book they review! We welcome reviews of books not listed. We support student reviewers through the publication process.

Call for Book Reviewers: World Medical & Health Policy.

World Medical & Health Policy is dedicated to the intersection of policy, politics, medicine, and public health. The Journal's objective is to help improve global health by broadly considering policy context, processes, outcomes, and influences.

World Medical & Health Policy is seeking book reviewers.

If you are interested in reviewing a book, please send me an email at the address below. This call for book reviewers is open to graduate students, health professionals, professional academics of all levels, and independent scholars. We welcome your ideas for books to review and we will gladly also help you find a book that matches your area of expertise. We are especially interested in book reviews associated with health equity and open to a wide range of topics.

Thank you for your time and consideration,

Cynthia Golembeski, MPH
World Medical & Health Policy Book Review Editor
cag348 AT rutgers.edu

LGBTQ Titles. Complete list of other books at bottom.

Broqua, Christophe. Action = Vie: A History of AIDS Activism and Gay Politics in France. Temple University Press, 2020.
http://tupress.temple.edu/book/0562

Cheng, Jih-Fei et al. AIDS and the Distribution of Crises. Duke University Press, 2020.
https://www.dukeupress.edu/aids-and-the-distribution-of-crises

Guadalupe-Diaz, Xavier. Transgressed: Intimate Partner Violence in Transgender Lives. NYU Press, 2019.
https://nyupress.org/9781479827855/transgressed/

Haldeman, Douglas. Sexual Orientation and Gender Identity Change Efforts: Evidence, Effects, and Ethics. Columbia University Press, 2020.
https://cup.columbia.edu/book/sexual-orientation-and-gender-identity-change-efforts/9781939594365

Lakkimsetti, Chaitanya. Legalizing Sex: Sexual Minorities, AIDS, and Citizenship in India. NYU Press, 2020.
https://nyupress.org/9781479826360/legalizing-sex/

Liu, Hui et al. Marriage and Health: The Well-Being of Same-Sex Couples. Rutgers University Press, 2020. https://www.rutgersuniversitypress.org/marriage-and-health/9781978803480

Shanker, Adrian. Bodies and Barriers: Queer Activists on Health. PM Press, 2020.
https://www.pmpress.org/index.php?l=product_detail&p=1079

Stall, Ron et al. LGBT Health Research: Theory, Methods, Practice. Johns Hopkins University Press, 2020.
https://jhupbooks.press.jhu.edu/title/lgbtq-health-research

Varghese, Ricky. Raw: PrEP, Pedagogy, and the Politics of Barebacking. NYU Press, 2019.
https://nyupress.org/9780889776838/raw/

Additional books for review:
https://drive.google.com/file/d/1rc9_nGmAINFJ769Uj1byqVkg7pFPV3Ok/view?usp=sharing


Thank you!

New article: COVID-19 Amidst Carceral Contexts: The Overton Window of Political Possibility and Policy Change

Cynthia A Golembeski
Robert Wood Johnson Foundation Health Policy Research Scholar
NJ Scholarship & Transformative Education in Prisons Faculty
JD/PhD Student | Rutgers University School of Public Affairs
orcid.org/0000-0002-0749-5566
cag348 AT rutgers.edu

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