Living and Loving Dangerously

individual

|
INTERPERSONAL : SCIENCES             

humanistic ------------------------------- mechanistic

SOCIOLOGY : POLITICAL   

|

group

identity - choices   Memory - Cognition DEMENTIA - Early onset Inability to consent   inhibition-disinhibition  mental capacity	My liberty, my choices "What! I'm married to you? Oh!" Treatment - medication  'Secure (safe)' environment 'Holistic assessment'?
Marital/Initimate Relationships Social (our) identity Existing relational behaviours Interrelational needs Interpersonal grief Social identity/expectations Yes, but we're married ... had 40 years together ... Family bias, prejudices.. A 'new' step-parent ... Access to support:  relational - mutual vulnerability	Informed consent Assumed consent Rape, Sexual abuse, crime Capacity to give consent Consistency in decisions Lasting power of attorney - finance; health External safeguards Human rights Access to supervision - clinical & management

Prompts:

Previously post: Living and Caring Dangerously

Danny Leigh. Critic's choice - Films on release: Queen at Sea. Life&Arts, FTWeekend, 19/20 September, 2026, p.18.

https://depijp.rialtofilm.nl/en/films/queen-at-sea

So many difficult conversations. All on their own unique continuum in terms of sense-making for all concerned. 

A 'new' diagnosis at age 60; versus one at 44. Families seeking to control disclosure of the diagnosis from the patient. Clinical and family debate about this.

Finding a person locked-in the house, while their partner 'nips' to the shops. A person having their freedom to go out, on their regular walk  -despite acknowledged risks. (When they are known by people on their route - community care in action. Receiving a call from a neighbour; or the neighbour who knows where you park and can intercept you, on arrival or departure to express concerns. Or, even as you venture out for a walk with their neighbour of many a year. Categorise them as you will: [nosey, caring, concerned, public spirited, neighbourly, or (healthily) curious]?

Other discussions of grief at the loss of a person they have loved - in every way. A grief that presents new dark dimensions to what has gone before. Complicated by a state of early onset of memory loss. An ongoing disintegration of personhood and identity. An inability to consistently express thoughts, wishes, and choices. An inability to give informed consent. A loss taunted by retained physical desirability. What does love, sex, compassion mean now? What is the sum now, of love expressed over 'x' years? Hearts hollowed out, of what can be so important to a couple. Not vital to all. But for others, a source of conjoined affirmation, joy, warmth, companionship, a celebration of life and being human.

How to share that grief even amid close friends and family, who cannot cope themselves and withdraw? What of the preparedness of professions to manage such situations? What structures are in-place for team meetings, clinical supervision and inclusion in training, especially safeguarding?

From the bibliography (lower sidebar):

Hodges, B.E. (1989) The Health Career Model, IN, Hinchcliffe, S.M. (et al.) 1989 Nursing Practice and Health Care, 1st Edition only, London, Edward Arnold.

Adams, T. (1987) Dementia is a family affair. Community Outlook, Feb, 7-8.

Merritt MK, Procter N. Conceptualising the functional role of mental health consultation-liaison nurse in multi-morbidity, using Peplau's nursing theory. Contemp Nurse. 2010 Feb-Mar;34(2):158-66. doi: 10.5172/conu.2010.34.2.158. PMID: 20509800.

Murphy, K., Welford C. (2012) Agenda for the future: enhancing autonomy for older people in residential care.International Journal of Older People Nursing. 7, 75–80.

Kernohan, W. G., & Jones, P. (2023). Hodges’ Health Care Model as a Framework for Quality. Paper presented at Interprofessional work: developing oral care and the health workforce for the future, Brescia, Italy.
https://pure.ulster.ac.uk/en/publications/hodges-health-care-model-as-a-framework-for-quality

Jones, P. (2025). A Conceptual Mapping Exercise of Deprivation of Liberty Safeguards in Residential & Community Care Using Hodges' Model and Threshold Concepts. Journal of Evaluation in Clinical Practice, 31: e70085. https://doi.org/10.1111/jep.70085

Jones, P. (2025), A Generic Model and Conceptual Framework to Prime Curiosity Across Health and Social Care Disciplines to Facilitate Lifelong Learning. Journal of Evaluation in Clinical Practice, 31: e70252. https://doi.org/10.1111/jep.70252

Previously: 'capacity' : 'consent' : 'law' : 'safeguarding'

South Sudan Medical Journal - November 2023 Gender-Based Violence

Dear reader,

Our November issue on gender-based violence (GBV) is online here. See details below; we thank the many people who contributed to this important topic.
 
Please share this issue with your colleagues and promote it through your social platforms.

For example: “The South Sudan Medical Journal’s November issue tackles gender-based violence @SSMedJournal #SouthSudan #SSOT” or retweet from @SSMedJournal
 

EDITORIAL

• Ending GBV in South Sudan Anne Pita Lomole

RESEARCH ARTICLES

• Maternal socio-economic and neonatal medical characteristics associated with survival of preterm neonates in Torit State Hospital, South Sudan: a descriptive cross-sectional study Beatrice Doki, Pontius Bayo and Ronald Jada
• Factors associated with maternal deaths in Bongor Provincial Hospital, Chad Gabkika Bray Madoué, Allarehene Noudjalbaye, Saleh Abdelsalam, Kainba Passoret, and Diguisna Kadam

FOCUS ON GENDER-BASED VIOLENCE

• Gender-Based Violence: How South Sudan is fighting back Nyakomi Adwok
• Clinical management of rape survivors Koma Akim
• One Stop Centre for the survivors of sexual and gender-based violence at Juba Teaching Hospital Busiri Julius Korsuk
• SSMJ talks to Data Gordon about Men4Women Ann Burgess and Data Gordon
• Ask the GBV experts Koma Akim and Nyakomi Adwok
• The reality of GBV: The story of a South Sudanese girl child in Kenya Nyajuok Tongyik
• 16 Days of Activism Against GBV Rita Martin Lopidia  
• Resources on gender-based violence/violence against women and girls related to South Sudan
• GBV Educational/Training Resources

SHORT COMMUNICATIONS

• Applications for postgraduate Training Gordon Memorial College Trust Fund (GMCTF)
• Letter to the Editor
• Obituary: Dr Bashir Aggrey Abbas Meseka 
• Obituary: Dr Peter Lado Aggrey Jaden

FRONT AND BACK COVERS IMAGES: From Tales of Lala, No to GBV (Credit: Crown the Woman, South Sudan)
 
Our articles are listed by African Journals Online (AJOL) and the Directory of Open Access Journals (DOAJ) as well as being on our website. SSMJ is included in the EBSCO scientific research collection.

The SSMJ team
Email: southsudanmedicaljournal AT gmail.com
Website: http://www.southsudanmedicaljournal.com
Follow us on Twitter/X @SSMedJournal and our Facebook Group

"Can you hear me?" Nalini Malani

individual

|

INTERPERSONAL : SCIENCES

humanistic ----------------------------------------------- mechanistic

SOCIOLOGY : POLITICAL

|

group - population

A still from stop-motion animation work 'Can you hear me?' (2017-20)

 

Commission
Nalini Malani: Can You Hear Me?

23 September 2020 – May 2021

Whitechapel Gallery unveils a major new work, Can You Hear Me? by Nalini Malani (b. 1946, Karachi, Undivided India), as part of its prestigious annual programme of artist commissions.

My source:

Spence R. (2020) Written on the body, FT Weekend, Life&Arts, 5-6 September, p.13.

https://www.ft.com/content/2793f080-6690-4047-bc8d-8afab2b60026