Hodges' Model: Welcome to the QUAD: dissemination

Hodges' model is a conceptual framework to support reflection and critical thinking. Situated, the model can help integrate all disciplines (academic and professional). Amid news items, are posts that illustrate the scope and application of the model. A bibliography and A4 template are provided in the sidebar. Welcome to the QUAD ...

Showing posts with label dissemination. Show all posts
Showing posts with label dissemination. Show all posts

Tuesday, May 13, 2025

Tanzania Health Summit (THS) Conference & Partnership

Warm greetings from the Tanzania Health Summit (THS) Conference:

1 - 3 October 2025
Julius Nyerere International Convention Center (JNICC)
Dar es Salaam

THEME:
"Harnessing Data Utilization and Technologies
to Accelerate Universal Health Coverage"

'Tanzania Health Summit is a non-profit health organization which was founded in May 2014. The aim was to promote healthcare to the underprivileged and vulnerable (70% of the population) who cannot easily access health services in the country. We focus on facilitating health information dissemination to the public taking into account that only 32.9% of the population has adequate literacy level in the country, mostly living in resource poor setting. In addition, we want to support youth (which comprise 32% of the population) to help build a more sustainable future and prevent them from high-risk behaviors and practices.'

THS is also seeking partnership: 
'I am writing to explore the possibility of partnering with your esteemed platform to feature the upcoming Tanzania Health Summit 2025, scheduled for October in Dar es Salaam. As one of the largest independent health conferences in the region, THS brings together government leaders, healthcare professionals, researchers, NGOs, and development partners to discuss key priorities in health systems strengthening and innovation.

With an active and growing portfolio of over ,2,500 participants, including decision-makers and thought leaders across Africa and globally, the Summit offers a unique platform for knowledge exchange, collaboration, and visibility.

We are seeking media partners to help us amplify our call for abstracts, participation, and partnership opportunities. In return, we are happy to offer media partners: • Logo recognition on our website and Summit program materials • Complimentary access to the conference (virtual and/or in-person) • Acknowledgment in select promotional content • Opportunities to feature your platform during media briefings or side sessions

We believe that a partnership with HIFA.ORG would be mutually beneficial in advancing shared goals of health equity, research dissemination, and stakeholder engagement.

Please let us know if this proposal would be of interest, and we would be happy to provide further details or set up a brief call to discuss how we can collaborate effectively.

Thank you for your time and continued commitment to global health.

Regards, Dr. Omary Chillo President - Tanzania Health Summit Lecturer - Muhimbili University of Health and Allied Sciences Fellow Bernard Lown Scholars in Cardiovascular Health - Havard T. Chan School of Public Health, USA Fellow Scientist Walter Brendel Center for Experimental Medicine - Ludwig Maximilian University, Munich, German Member Steering Committee - InterAcademy Partnership, Young Physician Leaders Email: chillo AT ths.or.tz '

My source: HIFA (Edited with conference & background).

Thursday, April 24, 2025

Time to revisit Wikipedia?

Yesterday morning an email from a mail list -

https://groups.google.com/g/bytesforall_readers/about

- regards a Wikipedia entry, prompted me to look back at some personal - 'local' history. In 2006 having started this blog, I'd noticed 'models of care', and nursing theories' on Wikipedia.

I posted an entry on Wikipedia about Hodges' model.
This included the now defunct url/domain - p-jones.demon.co.uk (See below).

A request followed to remove it:

https://en.wikipedia.org/wiki/Wikipedia:Articles_for_deletion/Hodges_Health_Career_Model

I must admit there is a repetitive 'spam' quality to emails, contributions, activity on twitter and posts here. I do try to keep things relevant, in context and seek what is salient. 

Given the digital divide and ethos behind the web the 'complaints' now seem exclusive.
After a brief problem with Blogger I also wrote a blog post:

'Thanks Google ... Wiki ... oh for more time ....':

https://hodges-model.blogspot.com/2006/05/thanks-google-wiki-oh-for-more-time.html

At the time I wrote: 'I agreed the submission should be deleted - another time.' 

In writing - 'Another time...', perhaps, I should try again - or leave it to someone else?

Following up, I found that the now archived POLITICAL care/knowledge links page -

original static website 1998-2015
[ Which is itself a useful 'collection' of resources. ]

Since 2006 the bibliography for Hodges' model has grown, please see sidebar:

http://hodges-model.blogspot.com/

Created in NW England higher education in the mid 1980s Hodges' model was intended for use within post-registered nursing courses - psychiatric and learning disability nursing, health visiting and district nursing. Hodges' model, is however, universal in scope and potential application.

As no doubt occurs in other professions/disciplines, advocates for tools, resources, theories, model that may also be simple, free - open access, 'neutral', pragmatic, supportive of lifelong learning, curiosity, literacy and informatics forms can be met with internal resistance - never mind external responses:

Raskin, Jef. "Humbug: Nursing Theory". Archived from the original on July 10, 2001. Retrieved December 14, 2015. (Wikipedia).

More recently the phrase 'Nursing eats its own' has resonated. A phenomena not limited to nursing no doubt?

Wednesday, August 28, 2024

Call for Participation in NHS Survey

ARE YOU WORKING IN THE NHS? IF SO, HELP NEEDED URGENTLY! Please read this email. 

Glasgow Caledonian University is inviting NHS Staff across the UK to participate in this doctoral research survey to analyse the impact of responsible leadership on improving well-being and organisational trust among NHS Staff members. 

 

To be eligible, you must be an NHS staff member from any area of the UK in any job role. The survey collects no recognisable information and is wholly anonymised to protect participant privacy and confidentiality. It has received full ethical approval, will take around 10 minutes and will help provide an improved understanding of the area of well-being in the profession.

 

Please forward this survey link to everyone in your contacts working for NHS. This will help gain more responses, increasing the study's reach and validity. Your help is highly appreciated, and we thank you in advance.

 

Here's the link for the participant information sheet and survey: 

https://app.onlinesurveys.jisc.ac.uk/s/caledonian/impact-of-responsible-leadership-on-employee-well-being-and-org


Warm wishes
Umm E Habiba Tariq (Chief Investigator)

 

Umm E Habiba Tariq (she/her) | PhD Candidate, MSc, BBA (Hons)

Occasional Lecturer | Department of HRM | Glasgow School for Business and Society (GSBS)


Glasgow Caledonian University is a registered Scottish charity, number SC021474

My source: Nurse-Philosophy List.

Monday, November 07, 2022

Design4Health 2023

Design4Health is the collection of events, publications and networks established by Lab4Living.

Design4Health includes an international peer reviewed journal and a series of international conferences, first convened in 2011, that bring together designers and creative practitioners with researchers, clinicians, policy makers and users to discuss and disseminate their research.

Our publications and events provide an opportunity to reflect on how the disciplines of design and health might continue to develop new ways of thinking and working, and how we might impact positively and sustainably on the social, economic and cultural factors within our communities and beyond.

 

Design4Health conferences

Established in 2011, there have been five international conferences held so far, including one in Melbourne, Australia. The next full conference will take place in Sheffield in Spring / Summer 2023.

Watch this space! Design4Health 2023

The next conference will take place in Sheffield in Spring / Summer 2023. We will announce the date, themes, and formats of the next conference here and via www.design4health.org.uk and @design4health. We invite you to join the D4H mailing list for updates and announcements about Design4Health.

Join the conversation: @design4health #D4H2023.

(I will look to update this post, or re-post as details follow. PJ)

Sunday, March 27, 2022

Call for Chapters - Book on Digital Literacy

 Dear "HIFAers",

I hope my message finds you well and safe!

A new IFLA book on Digital Literacy will be published by DeGruyter-Saur in the IFLA Publication Series. Some of you might be interested in the following call for chapters (deadline for proposals: March 31):

https://www.ifla.org/news/call-for-chapters-book-on-digital-literacy/

Call for Chapters - Book on Digital Literacy 

Title: Libraries Empowering Society through Digital Literacy 

Editors: Dr Prudence Dalrymple, Ms Heather Todd, Dr Luisa Marquardt, Mr ...

www.ifla.org
Best regards.
Luisa Marquardt
---
Dr. Luisa Marquardt
Cattedra di Bibliografia e Biblioteconomia
*Dipartimento di Scienze della Formazione (via Principe Amedeo, 182/a)*
*Dipartimento di Studi Umanistici (via Ostiense, 234/236)*
Università degli Studi "Roma Tre"
sito web

HIFA profile (and my source): Luisa Marquardt teaches Library and Information Science. She is interested in literacy of different types (e.g., Media and Information, Health, Visual etc.) and the educational role of libraries in equipping their patrons with the multiple literacies needed in our challenging (and challenged), ever-changing and high-demanding societies. luisa.marquardt AT uniroma3.it

Thursday, November 04, 2021

WHO: Infodemic Management News Flash Thursday 4 November 2021 #25

Individual
|

INTERPERSONAL : SCIENCES
humanistic ------------------------------------------ mechanistic
SOCIOLOGY : POLITICAL
|
Group

My source: EPI-WIN maillist: From the website ...

 
 

Feature art

"Infodemic managers understand the potential for misinformation to grow rapidly and cause harm. There is evidence of rumours spreading quickly and impacting poorly on public health, public trust and vaccine acceptance. Yet every piece of viral misinformation starts small, as seen in the third frame above. At this stage, the little piece of misinformation looks innocent enough, all alone and quite innocuous. It probably doesn't have lots of social media interactions attached to it, it probably isn’t being shared very much.

Narrator: Friends, that little piece of misinformation had big plans

The image highlights why identifying information voids and emerging information hazards before they go viral is so important. If we can use the tools we have to listen to emerging concerns and questions and proactively identify information voids in conversations, we may be able to intervene early by filling in that conversation space in the third frame with high quality information before that piece of misinformation progresses to frame four. At WHO we are working with our partners on some useful tools for managing the COVID-19 infodemic. Keep an eye on the News Flash for more information."

Image credit: Man Martin/Manoverboard

I could instantly relate the image to the domains of Hodges' model as above.

Saturday, October 16, 2021

Book: i "Making Research Matter - Steps to Impact for Health and Care Researchers" Open Access

Individual
|

INTERPERSONAL : SCIENCES
humanistic ------------------------------------- mechanistic
SOCIOLOGY : POLITICAL
|
Group
 
i m p a c t

impact
impact

"Making Research Matter"*

My source:

https://twitter.com/TaraJLamont/status/1448999679899865088?s=20

Thanks also to @policypress 

*An ever greater need for political impact!

Monday, April 22, 2019

Earth Day & Night

We need coherent vision to do the right things ...

We need not just to look, but to see, envision and act ...

As Earth Day turns to Night -

individual
|
INTERPERSONAL : SCIENCES
humanistic ----------------------------------------------- mechanistic
SOCIOLOGY : POLITICAL
|
group - population














- we should not allow people 
to be kept in the dark about 
the things that really matter ...

Climate Change

Universal Health Coverage

Universal Access to Health

Health Information for All

The Social Determinants of Health

Open Access ...



Earth Day 2019

Friday, June 08, 2018

Hospital Passports or Traffic Light documents


Hospital Passport / Traffic Light Poster

I hope this helps a little John-Marc and colleagues...?

The health career - life chances - model was developed with the care and positive life experiences of people with learning disability very much in mind. Consider the model's intra- interpersonal care (knowledge) domain and the political. We are prompted to simultaneously factor in individual and collective autonomy.

As a possible learning exercise (CPD!) sketch out the model and use the poster to reflect on the concepts and aspects of individual and person-centred care that are highlighted.

Identity and care in recognising that identity is paramount whatever 'condition' places members of the public in our hands (and hearts).

Sunday, November 26, 2017

Barefoot Thinking

As Leadbeater described through Illich in the previous post we need a transformation from healthcare supplied as a service to individual personal responsibility for health and wellbeing. How can this be brought about though?

The power of grassroots, social movements is well established, even if since 2009 the idealism of the Internet as a force for positive change and democracy has been somewhat undermined.

As a force for positive change and exposing the thinking and skills of the poor, Leadbeater also highlights the creation of the Barefoot College by Bunker Roy and barefoot thinking. The poor do have skills and knowledge that can effect change and community growth.

Situated and capable across all contexts, Hodges' model can help facilitate personal responsibility and self-care. In addition to supporting the learning of health and social care professionals, Hodges' model can also provide a conceptual scaffold as barefoot thinkers redefine professionalism.

individual
|
INTERPERSONAL : SCIENCES
humanistic --------------------------------------- mechanistic
SOCIOLOGY : POLITICAL
|
group

My source: Leadbeater, C. (2009) WE-THINK. 2nd ed., London: Profile Books.
(Now in the book pile destined for Hay-on-Wye)

Tuesday, August 16, 2016

"Making legal advice a clinical department" Dept of Clinical Law

individual
|
INTERPERSONAL : SCIENCES
humanistic -------------------------------------------  mechanistic
SOCIOLOGY : POLITICAL
|
group-population



Definitions: Child in England and Wales
< 18 years of age










"Changing views in society have pushed...

"Making legal advice a clinical department" 

'child' : 'adult'
mental capacity, deprivation of liberty,
candidness and forethought,
end of life decisions,
treating physical illness in the mental ill,
consent, confidentiality and treatment refusals (p.20)



... legal considerations of patient rights to 
the front of clinician's agendas"



Wheeler, R., & Marsh, M. (2016). Making legal advice a clinical department. Health Service Journal, April 13, 126: 6482, 20-21.

Thursday, July 02, 2015

ERCIM News No. 102 Special Theme: "Trustworthy Systems of Systems"

Dear ERCIM News Reader,

ERCIM News No. 102 has just been published at http://ercim-news.ercim.eu/en102

Special Theme: "Trustworthy Systems of Systems"
Guest editors: Poul Heegaard, NTNU and Erwin Schoitsch, Austrian Institute of Technology
http://ercim-news.ercim.eu/en102/special

Keynote by Werner Steinhögl, Programme Officer at the European Commission, Components and Systems, Directorate General CONNECT: "Trustworthy Systems of Systems – A Prerequisite for the Digitalization of Industry"  
http://ercim-news.ercim.eu/en102/keynote

Invited contribution by Andreas Wild, Executive Director of the ECSEL Joint Undertaking: "ECSEL JU Launches Research and Innovation Actions Strengthening European Competitiveness"
http://ercim-news.ercim.eu/en102/special/ecsel-ju-launches-research-and-innovation-actions-strengthening-european-competitiveness

This issue is also available for download in pdf and ebpub    

Next issue: No. 103, October 2015 - Special Theme: "Augmented Reality"
(see Call for articles at http://ercim-news.ercim.eu/call)

Thank you for your interest in ERCIM News. Feel free to forward this message to others who might be interested.

Best regards,
Peter Kunz
ERCIM News central editor

Tuesday, October 15, 2013

ERCIM News No. 95 Special theme: "Image Understanding"

Dear ERCIM News Reader,

ERCIM News No. 95 has just been published at
http://ercim-news.ercim.eu/en95

Special Theme: "Image Understanding"
Guest editors: Michal Haindl, Institute of Information Theory and Automation, Academy of Sciences of the Czech Republic, and Josef Kittler, University of Surrey, UK
http://ercim-news.ercim.eu/en95/special/

Keynote: "Image Understanding – An EU Perspective"
by Libor Král, Head of Unit A2 – Robotics in Directorate General Communication Networks, Content & Technology, European Commission

This issue for download
pdf
: http://ercim-news.ercim.eu/images/stories/EN95/EN95-web.pdf
epub: http://ercim-news.ercim.eu/images/stories/EN95/EN95.epub

Next issue: No. 96, January 2014 - Special Theme: "Linked Open Data"
(see Call at http://ercim-news.ercim.eu/call)

Thank you for your interest in ERCIM News.
Feel free to forward this message to others who might be interested.

Best regards,
Peter Kunz
ERCIM News central editor

------------------------------------------------------------------------
ERCIM "Alain Bensoussan" Fellowship Programme
ERCIM offers fellowships for PhD holders from all over the world. The next round is open!
Next deadline 31 October 2013
http://fellowship.ercim.eu/

Friday, September 27, 2013

Budgeting for Public Involvement in Research

Dear Colleagues,

INVOLVE and the Mental Health Research Network teamed up to produce a new resource to help with budgeting for the costs of public involvement in research. It can be used for everything from putting together an involvement budget for an entire study to working out how much it will cost to run a one-off consultation event.

The first part of the resource is a guide which:

  • provides practical advice on what costs are associated with involvement in research
  • includes a step-by-step process for identifying the associated costs and planning the budget
  • presents examples of research projects with well-developed budgets for involvement work
  • contains tips, links to useful websites, and references.
The second part of the resource is an online ‘involvement cost calculator' to work out the costs for your research study.

Please forward this information to your colleagues and networks.

If you have any questions or queries about Budgeting for involvement please contact:

Thomas Kabir
MHRN Service Users in Research Coordinator ...
To find out about INVOLVE visit www.invo.org.uk

...

My source: Laura Gardner: Research Design Service North West’s e-mail list.

Sunday, September 08, 2013

Research Design Service North West (RDS NW) September 2013 e-bulletin

A very useful resource:
Dear Colleague,
Please follow the link below to the September 2013 e-bulletin from the Research Design Service North West (RDS NW).
In this issue:
  • is my study research?
  • NIHR showcases the clinical research that could bring hope to the nation’s dementia sufferers
  • funding opportunities
  • events and training
  • approaching funding deadlines.
We hope you find this helpful and as always welcome any feedback.
Thanks,
RDS NW
Research Design Service North West
Central Coordinating Office
Tel: +44 (0) 1524 593209
Follow the Research Design Service on Twitter: @NIHR_RDS

Source: Thanks to RDS NW and Paul Dolby

Tuesday, July 23, 2013

Global Research Nurses’ Network discussion: Nearly Free Nursing Colleges - Mental Health Nursing Rwanda

Nearly Free Nursing Colleges

Reply by Carole Bennett

I have been working in mental health nursing in Rwanda, I have seen a significant need for a mental health nurses handbook and guide. At the request of the faculty at Kigali Health Institute, I have complied two electronic texts.

1.Mental Health Nursing I: Diagnosis, Treatment Guidelines and Standards of Care : The African Context. and
2.Mental Health Nursing II: Vulnerable Populations of Africa and Emerging Best Practices.

They have links to research, questions that guide the student reading, and then clinical cases for integration of what they have learned in each chapter. They are based on an 8 week course with 3 classes per week.

I would like to place them on the internet for free access but don't know how that is done.

They would be applicable for any nurses, mental health or general nurses working in post-conflict countries. The first handbook uses heavily the WHO MH Gap intervention guide which is excellent and COHSASA standards of care. The second book includes mental health in primary care, chronic mentally ill in villages, pregnant women and infants, refugees, women who are victims of gender based violence, Incarcerated mentally ill, and traditional healers. It is challenging but could be available to anyone with motivation and an internet connection.

Perhaps resources like this could be compiled into a program of study with internet oversight. I would be interested in pursuing this concept with others. I will be returning to the US in a few days but would like to see these ebook widely distributed and utilized. Does anyone have any ideas how this could be accomplished?

www.globalresearchnurses.org

Tuesday, June 11, 2013

The Lancet: Several articles on health in China and HIFA2015

As well as highlighting some very useful papers, the post below c/o HIFA2015 is also an appeal as follows:

HIFA currently has only eight members in China (compared with 510 in India and 655 in Nigeria), and we would welcome more. If you have contacts with health professionals, researchers and/or policymakers in China, please invite them to join us at www.hifa2015.org


Dear HIFA members,

This week's Lancet includes several articles on health in China. One of them explores the challenge of evidence-based public health policy. Here is the citation and selected extracts:

Fan Jiang, Jun Zhang, Xiaoming Shen. Towards evidence-based public health policy in China.
The Lancet, Volume 381, Issue 9882, Pages 1962 - 1964, 8 June 2013 doi:10.1016/S0140-6736(13)61083-1
http://www.thelancet.com/journals/lancet/article/PIIS0140-6736(13)61083-1/fulltext?_eventId=login

'In China, most biomedical and even public health research stops at publication. We believe that completing a public health study is not the end of the process, but, in many cases, marks the beginning of the next phase in which research results are applied to solve real-life problems. Efforts are warranted to raise such awareness among researchers and policy makers.'

'A clear, streamlined system is crucial to promote evidence-based public health policy at a large scale. Several mechanisms might be useful. First, a platform for bilateral communication between researchers and policy makers is needed to improve mutual understanding and to establish an effective and efficient dialogue channel. In addition to informal public meetings and knowledge brokers, rapidly spreading social media has been shown to be a very useful means to obtain feedback.11, 12 [...] Although still early in a long journey, China is moving towards evidence-based public health policy.4 With the right knowledge, attitude, and practice, adequate investment in the capability and capacity of implementation, and an efficient system, this goal will be reached.'
[The editor of HIFA2015 also mailed the following to the list]

A Comment in The Lancet makes an observation that is highly relevant to global health professionals, and especially those who undertake systematic reviews (which are often limited to papers in English):
'Any attempt to analyse global data needs to access work published in Chinese. This need is not straightforward to address, but the east-west collaboration of Chan and colleagues is exemplary. The western, anglophone hegemony in the generation and dissemination of research is coming to an end. This change creates challenges for peer review and synthesis of knowledge, but western investigators should no more assume that their Chinese counterparts have published high quality research in English than vice versa.'
Martin J Prince. Dementia in China: east-west collaboration bears fruit. The Lancet, Volume 381, Issue 9882, Pages 1967 - 1968, 8 June 2013. doi:10.1016/S0140-6736(13)60770-9 Cite or Link Using DOI
http://www.thelancet.com/journals/lancet/article/PIIS0140-6736(13)60770-9/fulltext

The full text is freely available, after free online registration.

Best wishes,
Neil

HIFA2015 profile: Neil Pakenham-Walsh is the coordinator of the HIFA2015 campaign and co-director of the Global Healthcare Information Network

Sunday, April 14, 2013

Evidence Network Newsletter [II]

I posted about this over two years ago. Here is a revisit, prompted by the arrival of the April Evidence Network e-Newsletter c/o Alan Gomersall at the Centre for Evidence & Policy, King’s College London:
Founded in 2001 as part of an ESRC-funded initiative, the Evidence Network is an information resource aimed at anyone concerned with evidence-informed policy and practice (EBPP) in the broad field of social and public policy.
You have to join but it is very worthwhile for those as noted above.

This issue includes an invitation for submissions to the Research Synthesis Methods Journal:
... Papers may address any aspect of research synthesis, including information retrieval aspects such as searching for studies to incorporate into evidence syntheses such as systematic reviews, health technology assessments and guidelines.
Papers on topics in fields such as the health and social sciences are welcome if they can also demonstrate relevance to general research synthesis.  Papers reporting the results of a particular research synthesis are not, however, appropriate unless the focus is exclusively on an innovative or instructive methodological feature.  To promote widespread dissemination that will enhance methodological innovation and synthesis practice, the articles in this journal must be accessible to a broad and interdisciplinary audience. ...
In addition there's a new website for The Alliance for Useful Evidence, systematic reviews, information for practice and much more across seven-eight pages.

Sunday, October 28, 2012

Open access: everyone has the right to knowledge

SOURCE: The Conversation

By Alessandro Demaio, University of Copenhagen; Bertil Dorch, University of Copenhagen, and Fred Hersch, University of Sydney

This week, we celebrate open access week – an event aimed at bringing attention to this rapidly emerging form of scientific publication and its ethical imperatives.

Traditionally, knowledge breakthroughs and scientific discoveries are shared through publication in academic journals. Peer-reviewed and highly competitive, careers are made and broken on the number and impact of these publications.

With the complex, long-standing hierarchy of journal ranking, scientific publishing is big business. From a distance, one might assume that scientific publications aim to maximise the dissemination of ideas, break down barriers to science and make knowledge accessible to the masses – but this is not actually the case.

The publication process

When a scientist, whether in the field, the laboratory or the hospital, makes a discovery, she puts her ideas into an academic paper and submits it to a journal. The journal’s editors decide whether it’s relevant to the scope of the publication, and if it is, they (usually) send it on to a small group of the researcher’s peers.

These are other specialists in the field who will read and give feedback on the paper. If they think the work is worthwhile, and they have no changes to suggest (which is seldom), then the paper will be published in a future issue of that journal.

At this point, no one has paid for anything. The authors don’t pay to submit the article, the journal doesn’t pay for the scientists’ work and the peer reviewers are voluntary. Even the editors are often unpaid, unless they can integrate this service into their professional work.

Journals seek remuneration through subscriptions or once-off access fees by the user – often in the order of US$30 per paper. Those of us lucky enough to have an affiliation to a university, or live in Denmark where the government spends many millions on subscriptions for the entire population can access scientific knowledge free of charge.

Open access

Open access publication differs in one very important way from “traditional” academic publishing. Instead of the individual paying to access an article, or buying a subscription, researchers pay for the publication of their work, often out of their research funds.

In the order of US$1,000-$2,500 per publication, this article processing fee is payable when and if the paper is accepted – and it’s routinely waived for researchers from low and middle-income nations.
This means that while the editorial and peer review process are the same as above, access to the published work is free forever and available openly (hence, open access) online.

The traditional publishing paradigm can be regressive and exclusive. Think for a moment how it works: I am a researcher, I do research in developing countries. What if I was to go there; take the time, resources, ideas or even blood samples from thousands of local people; take the information back to my university; access all the scientific knowledge I need in order to develop the work; and then publish my findings in journals for which there’s an access fee of one week’s wages for the people involved in my study.

Sure I might be able to send them a copy, but for the vast majority of people in that community, science remains out of reach. Now, these study participants may also have no internet access for open access sourcing, but many now do and at least the barrier to knowledge is not put up by the scientific community itself.

Similarly, in high-income nations, it’s still the wealthy, the highly educated or those at higher-education institutions who have greatest access to the vast majority of published science. How is this just?

And what happens when we add an additional layer of ethical consideration: that these researchers and their work is often is paid for by society, by taxpayers, through public funding. How can we then justify publishing it in academic media inaccessible to the vast majority who paid for it?

We can’t just blame researchers or the research community for this – and we’re not saying that because we’re researchers. Academic performance and assessment, in the large part, is determined by the amount and impact of one’s publications. The older “traditional” journals have greater histories and so researchers are almost coerced into publishing with these journals.

Some good news

The good news is that things are changing. In the first decade of the 21st century, we have seen an explosion in open access publications. During this time, we’ve observed a ten-fold increase in publications (almost 200,000 at 2011) and more than a six-fold increase in the number of open access journals, to almost 5,000.

Things are clearly moving in the right direction, but this impressive number still accounts for only around 20% of all publishing.

Simultaneously, global leaders have acknowledged the ethical dilemmas of our current system and backed open access. The European Union, for example, is currently piloting a project to encourage all EU-funded research to place their results in an open-access repository or publish them in open access journals.

And some nations, including the United Kingdom, Denmark and Australia, are either planning or implementing policies making publication of publicly-funded research in open access journals mandatory.

The call for change is being echoed by the academic community, which is asking for greater open access and the removal of economic barriers to science.

Research should be about furthering knowledge for all. And there’s no reason why open access publication shouldn’t be routine.

There are also strong economic arguments for investing in a knowledge economy. We are confident that with enough support, we will see more nations, companies and organisations mandating open access publication – a move that’s likely to bring social and economic benefits.

And who knows, maybe we’ll also begin to see the “traditional” academic journals change their business model and one day make knowledge open to all.

Dr Alessandro Demaio is PhD Fellow in Global Health with the Copenhagen School of Global Health at the University of Copenhagen. In addition, he is a Director of the Global Steering Committee for the Young Professional Chronic Disease Network and NCD Action. For The Conversation, Alessandro expresses his own views only.
Bertil F. Dorch is currently senior executive adviser to the university librarian at Copenhagen University Library Services (part of The Royal Library, Denmark), and have previously been Head of Center for Research Support Services as well as a research scientist at University of Copenhagen (The Niels Bohr Institute), within the field of astrophysics.
Fred Hersch does not work for, consult to, own shares in or receive funding from any company or organisation that would benefit from this article, and has no relevant affiliations.


This article was originally published at The Conversation. Read the original article.

Wednesday, June 20, 2012

Visual Methodologies Workshop in Newcastle

After Oxford Drupal Education Camp this Friday-Saturday proceedings move on to a NE workshop.

If your focus is on person-centered health care then the volume of data involved that pertaining to the individual can be readily apprehended. At least the example of a single episode of care. Of course, there are exceptions, people who might be the subject of special case studies so complex is their condition and pathology. Data volumes do vary markedly from person to person. A great deal of generated data in an individual instance might be taken for granted. In the reported findings, for example, of an MRI scan that is included in a referral. When provided existing diagnoses do much to enrich the information and knowledge contained in a referral, whilst reducing possible avenues for further data gathering.

Once we move from individuals to groups and populations then the volumes involved quickly become massive. Purposes and context reflect this change in scale; codified, anonymised, aggregated the individual is lost.

Both my day-to-day work and study of Hodges' model (in nursing, informatics, literacy...) are centered on individuals. 'Caseness' in a clinical word: a referral, home visits for the day, face-to-face interaction, care concepts in assessments, plans. ... Then there is envisioning a nurse-patient (carer) interaction, or individual's episode of care through Hodges' model. As per the model's structure, however, groups and populations must also be represented. This duality of personal and data scales makes this workshop on visual methodologies of instant relevance. The two days next week cover (with my emphasis):

Introduction to working with visual methodologies: understanding epistemologies and disciplinary boundaries
  • Mapping
  • Story-boarding
  • Artefacts
Quality in visual methods: ethics, validity and reliability
Doing visual methods: lived examples of managing data capture, synthesis, analysis and dissemination
Modes of analysis: focusing on methodological and epistemological influence on the research process

Workshop part 1: working with self-created data
Workshop part 2: creating shared analytic frameworks for self-created data
Overarching ideas and ways forward for thinking about visual methodology
Hodges' model can be readily interpreted and presented as a map and a series of story boards. The model can also support analysis, synthesis: well, this is my belief that is shared by some people.

I have completed modules on research methods, but it seems increasingly that research methods, methodologies, data structures and algorithms overlap. It may be that advances in media, technology, data gathering and improved access to data sets is having this effect. Perhaps more integrative and open attitudes (interdisciplinarity) towards quantitative and qualitative research also accounts for this blurring; or it could just be me? Whatever is the case, I'm really looking forward to the programme, meeting the facilitators and students. I am hoping this will inform my project as per the aims of the workshop:
  • Consider the role of visual methods in data collection, research ethics, synthesis, analysis and dissemination;
  • Explore the theoretical prospectives, epistemological traditions and latest practices that have shaped the development of visual methodologies; and
  • Enable participants to translate how visual methodologies can be used to support their own research.
I'll try and post from Oxford this Friday - Saturday and from Newcastle next week. From Newcastle I'll be heading to Edinburgh for the Scottish Ruby Conference. Lots to follow as I put 10 days unpaid leave to use.