care.data: too much information?
humanistic ------------------------------------------- mechanistic
SOCIOLOGY : POLITICAL
individual - person ethics 'personal' My identity: lost in numbers Vs. specificity of patterns *my attitude to my 'sensitive' information health literacy personal responsibility, self care, quantified self my understanding of care.data Trust | datasets, BIG data hospital episodes, treatments research privacy research anonymising process for nhs data *care.data is a natural step towards personalised medicine? axon - neurobiology statistics service development and innovation | ||
| data security, law, information governance NHS commercial, contract potential for abuse - assumptions public mental health public health policy, consultation policy communication public engagement, primary care informed consent, opt-out data definitions, standards ISO27001 population, insurance |
Additional link:
Allyson Pollock - Protecting confidential patient information and promoting public health research. Three proposed amendments to the Care Bill
Image source:
http://cdn2.thelineofbestfit.com/media/2014/01/Maximo-Park-Too-Much-Information.jpg