Hodges' Model: Welcome to the QUAD: epilepsy

Hodges' model is a conceptual framework to support reflection and critical thinking. Situated, the model can help integrate all disciplines (academic and professional). Amid news items, are posts that illustrate the scope and application of the model. A bibliography and A4 template are provided in the sidebar. Welcome to the QUAD ...

Showing posts with label epilepsy. Show all posts
Showing posts with label epilepsy. Show all posts

Tuesday, May 06, 2025

Book review iv: 'Categories we live by'

The introduction to part ii 'Case Studies' is quite prescient: 'Categories have consequences'. p.75.

Certainly timely in the UK as Prof. Murphy returns to gender and birth sex his first example at the book's start. 

Coincidental or not, categories do change. As we try to understand them it is vital we don't mess them up. Consequences follow for people who are subjected to the categorisation. People use them for stability, predictability, so change can be fraught for all. Personal and group identities can all be affected, and (recently) provisions in how 'spaces' are allocated and regulated - controlled.

At infant - junior school I remember the lack of awareness, understanding and empathy for peers affected by epilepsy, stigma was a thing then that wandered the classroom and playground. Through my career I've heard many clients recount experiences pointing to stigma and exclusion.

Of the case studies Murphy writes:
'Each chapter is a more-or-less self-contained case study (including other similar examples), except that chapter 7 is a more general meditation on how determining categories is used in the exercise of power. Some of the case studies get into the weeds, and if you find yourself not that interested in how species are defined, for example, you can skip ahead to the next chapter without losing much. Following part II will be a conclusion, which attempts to summarize some of the lessons learned from all these examples.' p.77.
Murphy's style is accessible, and the case studies are informative. The author is also accessible and responsive I must add. I prefer and need a physical copy of books to reduce screen time, but e-books have their uses. I'm sure I read a short sentence in the case studies that essentially contrasted the individual and collective in sociology. Can I find that word? No luck thus far. I may be mistaken but appreciate Prof. Murphy's reply and thoughts.

There's another 'news' coincidence on p.80 (Chapter 5 'Legal Categories'): are Santa Claus costumes 'clothing' and so subject to tariffs (also referenced)? Every person worldwide, has no doubt pondered on their marked grade in a test or exam - and 'where' this places them?
'In her review of a book about rules, Rivka Galchen (2022) admits to feeling a bit of despair in the end: "Rules that leave a ruler, Or a judge, in charge of interpreting them feel at once humanized and corruptible. Rules that allow no exception seem free of human frailty but alien, and unable to admit properly of complexity." It is very easy to point at what went wrong with an overly strict rule or with a judge who seems biased, but less easy to devise a system of categories that avoids every problem.' p.83.
I often frame the conjunction of the mechanistic axis and the group in Hodges' model in terms of what do need, or get when you have large groups of people? The political domain, including law and disorder is critical of course. Is 'utopia' the perfect system by definition? I like the way even prior to reference to Galchen, Murphy states how 'the precise borders between categories can be essentially arbitrary, and there is no way to avoid that arbitrariness if you insist on dividing things into categories.'. p.83. 

If this book was a BASIC computer program, the first command for Chapter 6 Psychodiagnostic Categories. might well be a 'GOTO' statement: Chapter 7 Categories and Power.

More to follow and nearly there - sadly.

Previously: identity : space : categories

Murphy, Gregory L. Categories we live by: how we classify everyone and everything. Cambridge, MA: The MIT Press, 2024.

Many thanks to MIT Press for the review copy - and the dose of serendipity:

Tuesday, February 11, 2025

Project: Partners against Stigma and Mortality in Epilepsy (PASME) Cameroon

Boyo Association for Rural Development (BARUDEV - Cameroon) has launched a project on epilepsy called Partners against Stigma and Mortality in Epilepsy (PASME).

We are calling for partnerships and support for our project on epilepsy which will focus on mental health and psychosocial support, treatment, knowledge and skills exchange,raising awareness, rights protection amongst patients affected and or bereaved by epilepsy, health care providers. Also reduce seizures and consequences particularly in children and adolescents living with epilepsy and HIV/AIDS. 
  • ADVOCACY AND AWARENESS. Promoting awareness and supporting initiatives that prevent epilepsy. Prioritize epilepsy at national and international levels, while lobbying and advocating support for partners and governments to prioritize epilepsy into their health programs and policies.
  • TREATMENT AND SUPPORT. Provide access to treatment and support initiatives that improve access to effective treatment including medications and their therapies. 
  • PROVIDE BEST-PRACTICE MODELS. Develop and share models for effective management of epilepsy in diverse settings including conflicts and disasters where people are forced to displace.
  • BUILD CAPACITIES THROUGH TRAINING. Advance training and information sharing for healthcare givers, CHWs and family care givers involved in epilepsy care. 
  • PROMOTE HUMAN RIGHTS AND DIGNITY. Advocate for the accessibility of services, protection of human rights and preservation of dignity for all with epilepsy including children and adolescents living with epilepsy and HIV/AIDS. 
  • EMPOWERMENT AND RIGHTS: Lobby and advocate for the rights of people with epilepsy through their associations and to enable them participate in decision making processes. 
  • RESEARCH AND COLLABORATION: Foster research through encouragement and support in epilepsy including causes, prevention, treatment and social impact. Strengthen their associations, develop and support them through mental health and psychosocial support projects and ensuring and protecting their well-being and their families.
BARUDEV is currently building a website (which I will add upon news - PJ).
Please contact me if you need further information

HIFA (my source) profile: Chiabi Bernard Ful is Director of Boyo Association for Rural Development (BARUDEV--Cameroon). This is a local NGO found in Boyo district of North Western Cameroon. Our activities are to empower women, protect the sexual and reproductive health for women and girls, and protect the rights of children. We have been training community health workers to follow up patients, pregnant women, sick children and refer them to the hospital.
barudev AT yahoo.co.uk