APPGs - All Party Parliamentary Groups (Revisited: One-By-One ...?)

Previously in "How many APPGs does your Garden Grow?", I wondered about the number and variety of APPGs related to health and social care. How do they integrate their work, the inputs, outputs and impact on legislation, policy, safety, standards, delivery of care and sustainability in the future? 

A selection of APPGs includes:

APPG on 22q11 Syndrome
APPG on Access to Medicines and Medical Devices
APPG on Acquired Brain Injury
APPG on Adult Social Care
APPG on Ageing and Older People
APPG on Air Pollution
APPG on Allergy
APPG on Antibiotics
APPG on Arts, Health and Wellbeing 
APPG on Autism
APPG on Axial Spondyloarthritis
APPG on Baby Loss
APPG on Beauty, Aesthetics and Wellbeing
APPG on Black Maternal Health
APPG on Bladder and Bowel Continence Care
APPG on Blood Cancer
APPG on Brain Tumours
APPG on Breast Cancer
APPG on Bullying
APPG on Cancers
APPG on Carbon Monoxide
APPG on Cardiac Risk in the Young
APPG on Carers
APPG on Cerebral Palsy
APPG on Childhood Trauma
APPG on Children of Alcoholics
APPG on Children who Need Palliative Care
APPG on Children, Teenagers and Young Adults with Cancer
APPG on Cleaning and Hygiene
APPG on Complex Need and Dual Diagnosis
APPG on Coronavirus
APPG on Dementia and Adult Social Care
APPG on Dementia
APPG on Dentistry and Oral Health
APPG on Disability
APPG on Down Syndrome
APPG on Dyslexia and Other Specific Learning Difficulties
APPG on Eating Disorders
APPG on Extreme Poverty
APPG on Eye Health and Visual Impairment
APPG on Food and Health
[APPG on Further Education and Lifelong Learning]
APPG on Gaps in Support
APPG on Global Health
APPG on Health
APPG on Health and the Natural Environment
APPG on Health in all Policies
APPG on Health Infrastructure
APPG on HIV and AIDS
APPG on Learning Disability
APPG on Multiple Sclerosis
APPG on PANS and PANDAS
APPG on Parkinson's
APPG on Terminal Illness
APPG on Water, Sanitation and Hygiene
[APPG on Whistleblowing]
APPG on Yoga in Society
APPG on Young People's Health

There is a 'full' register at:

https://publications.parliament.uk/pa/cm/cmallparty/220323/register-220323.pdf

Revisiting the previous post and its list of APPGs, extended above, you can see some obvious potential sources of influence for several APPGs.

Scanning the register with the list of APPG by countries, I was disappointed not to see Earth, or Gaia listed. But then they are probably not recognised as 'political' entities? Which is the ongoing challenge in the climate crisis (recognition of ecocide?). 

What about, more reasonably 'Global Health'? This was not listed as a country, but further reading is rewarded. There it is - 'Global Health':

https://globalhealth.inparliament.uk/

[ The link in the register is currently broken. ]

I should have remembered this APPG having posted before:

https://hodges-model.blogspot.com/2016/10/triple-impact-nursing.html

On the radio this past week I heard mention of Transparency International and published recommendations to control lobbying, prevent corruption and malign influences of sponsorship.

See also:

"APPGs scandal: MP reveals how lobby firm tried to use her to influence Parliament"

https://www.opendemocracy.net/en/dark-money-investigations/appgs-scandal-mp-reveals-lobby-firm-tried-influence-parliament-alison-thewliss-snp/

This post also helps inform a paper on Hodges' model, Early Intervention in Psychoses and research.

There are so many APPGs related to health, and associated with the purposes of Hodges' model.

One discovery - I must follow the APPG on Health Infrastructure.

How many APPGs does your Garden Grow?

APPGs - All Party Parliamentary Groups

 

 

individual

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INTERPERSONAL : SCIENCES

humanistic ----------------------------------------------- mechanistic

SOCIOLOGY : POLITICAL

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group - population

	APPG on Autism APPG on Learning Disability APPG on Ageing and Older People APPG on Carers APPG on Parkinson's APPG on Terminal Illness APPG on Dementia and Adult Social Care APPG on Dementia APPG on Multiple Sclerosis APPG on Disability

How do you integrate their 'outputs'?

I am not disputing the need for APPGs and their number, but highlighting a 'fact of care and governance' and what remain legacy problems of holistic, integrated, person-centred and reflective care.

My source:

Better social care, Letters to the Editor, The Times, Saturday, July 25, 2020, p.28.

 

Global Health report “Triple Impact- how developing nursing will improve health, promote gender equality and support economic growth"

Dear Colleagues

Many thanks to all of you who contributed to the compilation of the All Party Parliamentary Group for Global Health report “ Triple Impact- how developing nursing will improve health, promote gender equality and support economic growth.’

A review group of APPG members has undertaken a major review of the development of nursing globally over the last few months, holding a number of witness sessions, collecting evidence and debating our findings with the RCN, ICN and others. The report “Triple Impact – how developing nursing will improve health, promote gender equality and support economic growth” launched on the 17th October 2016 sets out a radical agenda and argues that the UK should play a major role in developing nursing globally.

Many thanks again for your time and support.

Best Wishes

Emily
Emily McMullen
Coordinator & Researcher to Lord Crisp | All Party Parliamentary Group on Global Health
Office of Lord Crisp | Fielden House | 13 Little College St | London, SW1P 3SH
Email: info AT appg-globalhealth.org.uk
Website: http://www.appg-globalhealth.org.uk

[Ms McMullen's original email edited adding text from report source]

Ambulances, Bikes, Cars and Dennis

There are many rites of passage. Some are universal, others culture specific, or a facet of religious identity. Perhaps there are rites of passage that change over time, or are as yet unclear. When should a young person have their own mobile phone, especially when that phone is 'smart'? Perhaps that is a step too far, to see a phone as a rite of passage? Or, perhaps it signifies an erosion of the human experience of growing-up. 

Mastering a bicycle is, if not a rite of passage, an experience I remember so well. An experience revisited and enjoyed even more as an adult with my own children. It really is something when the hand-lets-go, a signifier of more transitions to follow. 

I learned to ride on two-wheels, in the cobbled backs that ran behind and between the rows of terraced houses. When I was aged 9-10, out on my bike I skidded and came off, trying to stop for a car. It was my fault, the driver was pretty upset too and carried me home. An X-Ray revealed I had hairline fractured of my tibia. I can remember being up so late 'The Untouchables' were on B&W TV. Back then a full-length 'pop' and crutches were required. After the pain subsided, a knitting needle was very useful. The plaster was well-scribed too. I had to attend the fracture clinic at Walton Hospital, Liverpool and still recall Dennis the ambulance gent. He was a great laugh.

I was reminded of this on BBC Radio 4's Today programme, 07:24:35 & 08:55:25, 11 March. Two guests recounted the start of their cycling careers, as adult and a child. British Cycling has started a campaign having found:

Apparently, 97% of children from the richest backgrounds can ride a bike.

While only 86% of children from the poorest backgrounds are able.

This equates to 350,000 children, who would like to ride a bike but can not.

Individual

|

      INTERPERSONAL    :     SCIENCES               

HUMANISTIC  --------------------------------------  MECHANISTIC      

 SOCIOLOGY  :    POLITICAL 

|

Group

Experiences, skills MENTAL HEALTH Memory - of 'taking flight' Life skill: "It's like riding a bike!" Healthcare role model Ambulance staff 'Dennis'	Sustainability PHYSICAL HEALTH Accessibility 350,000 children would like to ride a bike. Fracture clinic Tibia
Childhood - Friends Adult - Parenthood Cycling clubs Socialisation Social Justice Engagement - Play	Inequality 97% of children richest backgrounds can ride a bike. Only 86% of children from the poorest backgrounds

There is an APPG for Cycling and Walking, which is also seeking to address accessibility:

British Cycling backs social justice inquiry to improve access and appeal of cycling to all

When there is a new link I will add it here. In the meantime, can you get on your bike!

https://www.bbc.co.uk/sounds/play/m0028swm

Previously: APPG : Cycling : Sport

ImROC: Briefing Paper 24 - Recovering Adult Acute Psychiatric Inpatient Wards

"Explanation, compassion and a holistic understanding of the person’s situation are critical (Royal College of Psychiatrists, 2017)." p.39.

(my emphasis)

"It requires practitioners to critically reflect on their values, beliefs, and biases and actively work to reduce as far as is possible the oppressive systems and practices within inpatient wards." p.15.

What models / frameworks for/of care do practitioners use? 

What models invite - are primed for:

• critical reflection (individually, or as a group, p.56)?
• recognition of oppressive situations, phenomena, ethical dilemmas?
• citizenship - citizenry (p.18)?
• deciding whether it is a journey, or not?
• a possible role in burnout (p.54) mitigation?
• reflection, development, and restoration (p.56)?
• are all models situated?

Individual
   |

      INTERPERSONAL    :     SCIENCES               

HUMANISTIC  --------------------------------------  MECHANISTIC      

 SOCIOLOGY  :   POLITICAL 

|

Group

neurotypical neurodivergent/autistic [Yes.] Can what has been stressed for decades - compassion, listening, validating, empathy, rapport, the therapeutic alliance, seeing the person ... in mental health nurse education, theory and practice, be strengthened through review of skill-mix, and workforce? Whilst, in-turn, being sensitive to the pressures on mental health RNs, as cohorts of students, seek to assure their learning experiences; and as qualified nurses old and new seek to protect their professional identity, values, standards, and ethics - responsive to the demands of the 21st century.

close to home transport physical environment: noise, smells, space, decor, light.. While (originally?) aimed at elective in-patient care, the mantra of discharge planning begins upon admission (even before) has reached mental health services and community mental health teams. Even as the reduced number of beds (perversely) provides ideal conditions, this should (must) not mean the 'game' becomes 'pass the parcel', 'musical chairs' - the person lost in the many processes.

Hell is other people - as the saying goes ... When the therapeutic value and potential of relationships are recognised, the need for a tool to identify and critique what is relational is even more critical. Not just to realise what has long-been psycho-social, but the 'alt-def' of person-centred. This demands simultaneity in assurance. We contrast the humanistic with the mechanistic - service-centred. Let's not forget the need for integrated** care. See community/society as the safety net it can be. So DO NOT: raise a patient's / family's expectations (p.49) only to let them down.

least restrictive Let's not re-learn the lessons of history, but if you insist...?^ One mention of (social) 'determinants' (p.37)! Please take a look out of the [safety] window; and beyond the APPG Committee room...  Wither ambition, courage in policy - to discover what is evidence-based (the lesson since 5th July 1948)? In-patient care is too late.* For sustainable health services and systems we need to act sooner, educate, to try to address all the determinants. Please remember what 'you' (through policy..) have done to the patient as a concept: patiency. <- Recovery carries political heft.

Please remember what 'you' (through policy..) have done to the patient as a concept: patiency. Recovery carries political heft. No one wants to create, foster, instill dependency, but (emotional labour) care delivery demands space and time: being with, or at least available.

*If this was the guiding principle for all disciplines, stakeholders, policymakers, researchers could this:

• place emphasis (again) on prevention; staying well - relapse prevention;
• help generate alternate modalities for therapy / care;
• help concentrate services to deliver person-centred, recovery and trauma informed in-patient experiences - where therapeutic outcomes are  at least feasible/possible;
• begin from literacy-first stance: take up educational focus in schools - PSHE, work-place;
• health career - life chances?

**physical-mental, care context, philosophy of care - trauma - recovery - strengths, funding, disciplines, pastoral, health - social care - housing ...

^Dept. of Health. Caring for people: the CPA for people with a mental illness referred to specialist mental health services. London: 1990

Joint Health/Social Services Circular  C(90)23/LASSL(90)11

Rachel Perkins, Sharon Gibbard, Yasmin Blackwood, Simon Barnitt, Lowri Smith, Anna Cheetham, Poppy Repper, Anne Rackham, Ben Dorey, Jo Luck, Julie Repper. Recovering Adult Acute Psychiatric Inpatient Wards: Creating Recovery-Focused, Trauma-Informed and Neuro-Inclusive Culture, Relationships and Practice. ImROC. Briefing Paper 24. 2024.


See also:

ImROC (2023) Thinking about Recovery Together

ImROC (2023a) Team Recovery Implementation Plan for Acute Inpatient Wards

Wand, T. (2024), We have to cancel psychiatric nursing and forge a new way forward. Int J Mental Health Nurs. https://doi.org/10.1111/inm.13301

Warrender, D., Connell, C., Jones, E., Monteux, S., Colwell, L., Laker, C. et al. (2024) Mental health deserves better: Resisting the dilution of specialist pre-registration mental health nurse education in the United Kingdom. International Journal of Mental Health Nursing, 33, 202–212. Available from: https://doi.org/10.1111/inm.13236

Plus:
Jones P. (2014) Using a conceptual framework to explore the dimensions of recovery and their relationship to service user choice and self-determination. International Journal of Person Centered Medicine. Vol 3, No 4, (2013) pp.305-311.

Universal Health Coverage: Every Day - All Year - All Weathers [ #COP26 ]

individual

|

INTERPERSONAL : SCIENCES

humanistic ----------------------------------------------- mechanistic

SOCIOLOGY : POLITICAL

|

group

Related posts on W2tQ:

Global Health

Universal Health Coverage

My source:

COVID-19 has been exacerbated by issues that have defined weak health systems around the world for decades. On this #UniversalHealthCoverageDay, there has never been a more important time to make sure #UniversalHealthCoverage is moved higher up the @FCDOGovUK agenda. #UHCDay pic.twitter.com/gnbognAQvc

— APPG Global Health (@APPGGlobHealth) December 12, 2020