Hodges' Model: Welcome to the QUAD: distress

Hodges' model is a conceptual framework to support reflection and critical thinking. Situated, the model can help integrate all disciplines (academic and professional). Amid news items, are posts that illustrate the scope and application of the model. A bibliography and A4 template are provided in the sidebar. Welcome to the QUAD ...

Showing posts with label distress. Show all posts
Showing posts with label distress. Show all posts

Tuesday, January 28, 2025

Sticky Categories and Their Negative Consequences c/o Mikulak et al.

Category - Theory and Practice

Hodges' model -
A model for care in whatever situation, care environment*.

 
Individual
|
      INTERPERSONAL    :     SCIENCES               
HUMANISTIC  --------------------------------------  MECHANISTIC      
 SOCIOLOGY  :    POLITICAL 
|
Group
'I'
Me
My name is . . .
I am a person.
I am an individual.

Even if I don't thank you,
there may be someone out
there who thanks you for
acknowledging, confirming,
sustaining, preserving and
respecting my identity.

Even if I don't ask you
for your name please share
it with me, when you feel
 the time is right.

Together ...

[Abstract] "‘Behaviours that challenge others’ are attributed to 20% of people with learning disabilities. These behaviours are not a diagnosis, it is something people are labelled with. We conducted qualitative interviews with social care staff in the UK within four models of care: independent supported living, residential nursing home, Shared Lives, and living with family and attending a day opportunities centre*. We examine how the category of ‘behaviours that challenge others’ is produced, applied, and contested in adult social care settings. We demonstrate its stickiness and discuss its stigmatising consequences. How behaviours are understood, felt, and talked about matters for the support people with learning disabilities receive and maps onto their consequent inclusion or exclusion from society. We point out the harms the category carries for people who receive it and argue that it should be abandoned." p.110.


"Labeling theory suggests that labels lead to stigma, through changing how a group is perceived by others and supporting stratification (Haft et al. 2023). According to Link and Phelan (2001: 383), stigma ‘exists when elements of labeling, stereotyping, separating, status loss, and discrimination co-occur in a power situation that allows these processes to unfold’ (emphasis added). The acceptance of categories as valid and important differences is described by the labeling element of stigma (Link and Phelan 2001). Here, we attend to how this ‘labeling’ aspect of stigma interacts with its other mechanisms in the category of ‘behaviours that challenge others’." p.112.


"Emotions are not private, rather, they ‘circulate between bodies and signs’ producing meanings and creating ‘the surfaces or boundaries of bodies and worlds’ (Ahmed 2004b: 117); thus, affect is always distributed (Wetherell 2015). We propose the category—and the labeling process behind it—should be understood within an ableist (Campbell 2009) distribution of affect and politics of emotion; one that subordinates the experiences of people with learning disabilities through establishing the ‘truth’ of the reading as external and mediated through the emotions of people without learning disabilities. ‘Behaviours that challenge others’ (and synonyms of the category) are inherently relational but also reflect and reproduce existing power imbalances. We suggest their stickiness rehearses and reinforces the ableist politics of emotion that positions people with learning disabilities as ‘less human’ (Goodley 2021) and at times as monstrous. The category is a product of this politics, one that repeats its rehearsed, sticky associations, making the reading of the proximity of people with learning disabilities in the present a result of histories marked by dehumanization. The method of categorizing people through labels also makes them more susceptible to what McClimens has described as ‘reauthoring’, with collective histories ‘presented in a way that condones or even justifies their current situation’ (2007: 259)." p.113.



Mikulak, Magdalena, Sara Ryan, Elizabeth Tilley, Susan Ledger, Lisa Davidson, Pam Bebbigton, and Dawn Wiltshire. 2024. “Sticky Categories and Their Negative Consequences: People with Learning Disabilities and ‘Behaviours that Challenge Others’.” Scandinavian Journal of Disability Research 26(1): 110–123.
DOI: https://doi. org/10.16993/sjdr.1069 (with my emphasis)

I have cited Mikulak et al. in 1/2 papers submitted yesterday after revision on: threshold concepts, deprivation of liberty, residential care and Hodges' model.

Sunday, February 04, 2024

ImROC: Briefing Paper 24 - Recovering Adult Acute Psychiatric Inpatient Wards

"Explanation, compassion and a holistic understanding of the person’s situation are critical (Royal College of Psychiatrists, 2017)." p.39.
(my emphasis)

"It requires practitioners to critically reflect on their values, beliefs, and biases and actively work to reduce as far as is possible the oppressive systems and practices within inpatient wards." p.15.

What models / frameworks for/of care do practitioners use? 

What models invite - are primed for:

  • critical reflection (individually, or as a group, p.56)?
  • recognition of oppressive situations, phenomena, ethical dilemmas?
  • citizenship - citizenry (p.18)?
  • deciding whether it is a journey, or not?
  • a possible role in burnout (p.54) mitigation?
  • reflection, development, and restoration (p.56)?
  • are all models situated?


Individual

   |
      INTERPERSONAL    :     SCIENCES               
HUMANISTIC  --------------------------------------  MECHANISTIC      
 SOCIOLOGY  :   POLITICAL 
|
Group

neurotypical
neurodivergent/autistic


[Yes.] Can what has been stressed for decades - compassion, listening, validating, empathy, rapport, the therapeutic alliance, seeing the person ... in mental health nurse education, theory and practice, be strengthened through review of skill-mix, and workforce? Whilst, in-turn, being sensitive to the pressures on mental health RNs, as cohorts of students, seek to assure their learning experiences; and as qualified nurses old and new seek to protect their professional identity, values, standards, and ethics - responsive to the demands of the 21st century.


close to home

transport

physical environment:
noise, smells, space, decor, light..

While (originally?) aimed at elective in-patient care, the mantra of discharge planning begins upon admission (even before) has reached mental health services and community mental health teams. Even as the reduced number of beds (perversely) provides ideal conditions, this should (must) not mean the 'game' becomes 'pass the parcel', 'musical chairs' - the person lost in the many processes.


Hell is other people -
as the saying goes ...


When the therapeutic value and potential of relationships are recognised, the need for a tool to identify and critique what is relational is even more critical. Not just to realise what has long-been psycho-social, but the 'alt-def' of person-centred. This demands simultaneity in assurance. We contrast the humanistic with the mechanistic - service-centred.

Let's not forget the
need for integrated** care.

See community/society
as the safety net it can be.


So DO NOT:
raise a patient's / family's expectations (p.49) only to let them down.

least restrictive

Let's not re-learn the lessons of
history, but if you insist...?^

One mention of (social)
'determinants' (p.37)!
Please take a look out of the [safety] window; and beyond the APPG Committee room...

 Wither ambition, courage in policy - to discover what is evidence-based (the lesson since 5th July 1948)?

In-patient care is too late.*

For sustainable health services and systems we need to act sooner, educate, to try to address all the determinants.

Please remember what 'you' (through policy..) have done to the patient as a concept: patiency.

<- Recovery carries political heft. 



Please remember what 'you' (through policy..) have done to the patient as a concept: patiency. Recovery carries political heft. No one wants to create, foster, instill dependency, but (emotional labour) care delivery demands space and time: being with, or at least available.

*If this was the guiding principle for all disciplines, stakeholders, policymakers, researchers could this:
  • place emphasis (again) on prevention; staying well - relapse prevention;
  • help generate alternate modalities for therapy / care;
  • help concentrate services to deliver person-centred, recovery and trauma informed in-patient experiences - where therapeutic outcomes are  at least feasible/possible;
  • begin from literacy-first stance: take up educational focus in schools - PSHE, work-place;
  • health career - life chances?

**physical-mental, care context, philosophy of care - trauma - recovery - strengths, funding, disciplines, pastoral, health - social care - housing ...

^Dept. of Health. Caring for people: the CPA for people with a mental illness referred to specialist mental health services. London: 1990
Joint Health/Social Services Circular  C(90)23/LASSL(90)11

Rachel Perkins, Sharon Gibbard, Yasmin Blackwood, Simon Barnitt, Lowri Smith, Anna Cheetham, Poppy Repper, Anne Rackham, Ben Dorey, Jo Luck, Julie Repper. Recovering Adult Acute Psychiatric Inpatient Wards: Creating Recovery-Focused, Trauma-Informed and Neuro-Inclusive Culture, Relationships and Practice. ImROC. Briefing Paper 24. 2024.


See also:

ImROC (2023) Thinking about Recovery Together

ImROC (2023a) Team Recovery Implementation Plan for Acute Inpatient Wards

Wand, T. (2024), We have to cancel psychiatric nursing and forge a new way forward. Int J Mental Health Nurs. https://doi.org/10.1111/inm.13301

Warrender, D., Connell, C., Jones, E., Monteux, S., Colwell, L., Laker, C. et al. (2024) Mental health deserves better: Resisting the dilution of specialist pre-registration mental health nurse education in the United Kingdom. International Journal of Mental Health Nursing, 33, 202–212. Available from: https://doi.org/10.1111/inm.13236

Plus:
Jones P. (2014) Using a conceptual framework to explore the dimensions of recovery and their relationship to service user choice and self-determination. International Journal of Person Centered Medicine. Vol 3, No 4, (2013) pp.305-311.

Saturday, July 22, 2023

Migraine: Mind - Body and Art c/o Kustaa Saksi

"A migraine, says Kustaa Saksi, is like an unexpected visit from an irritating old friend. A sudden attack upends your plans; causes havoc; you never know when it will leave. 
The 48-year-old Finnish textile artist has lived with these repetitive, immobilising headaches and their accompanying visual disturbances — ranging from partial blind spots to borderline hallucinations — since childhood. 
'It usually happens on the side of my eye, then it’s like a sun, travelling from east to west,' he says. 'At one point it will take over my whole vision, then it vanishes.'" 

https://www.ft.com/content/f85c900b-9547-44a5-bbc1-ba65d44331d9


INDIVIDUAL
|
INTERPERSONAL    :     SCIENCES               
HUMANISTIC --------------------------------------  MECHANISTIC      
SOCIOLOGY  :   POLITICAL 
|
GROUP
'Aftermath' 2019 Jacquard Weave
172 x 236cm (67" x 93") 
'Attack' 2019 Jacquard Weave
166 x 238 cm (66" x 94") 









My source:
Barrett, H. (2023) Interiors: A migraine's many colours. FTWeekend, House&Home. 8-9 July. p.6.

Wednesday, June 28, 2023

ii Design with People in Mind: Seclusion Issue related to Hodges' model

The Seclusion Issue



INDIVIDUAL
|
     INTERPERSONAL    :     SCIENCES               
HUMANISTIC --------------------------------------  MECHANISTIC      
SOCIOLOGY  :   POLITICAL 
|
GROUP

psychological harm / safety / seclusion

privacy, dignity and respect

Sensory stimuli, calm, distraction

Parity of Esteem

psychological restraint/control

Reaching for the person amid complexity

Staff / Service User attitudes to x,y,z

Lived/Patient experience
sensory -

NATURE - outdoors 'Green'

Design: (sterile?) space, colour, temperature, walls, light, warmth, cold, fresh air, homely/clinical, doors - locks, alarms, noise, violence resistant spaces ...

physical agression / harm / safety / seclusion

'built' environment / 'sensory room'

physical restraint/control, clothing, toilet, access to outdoors

Ecological and Integrative Physiology

- modulation

Social spaces

supportive spaces

scope for therapy

social autonomy

community

music / arts

experience in isolation - stigma in-situ?

trauma-informed services

in-patient services, funding

risk reduction; policies

use of technology/observation

length of stay, reporting

impact of restraint on staff






Hodges' model is situated and can be used in all health, educational and policy contexts.

Hodges' model can assist to initially scope, plan and evaluate research studies not only across all the care (knowledge) domains above (including the spiritual) but the model's structure incorporates such dichotomies as subjective-objective; qualitative-quantitative; person-services; patient-staff; therapy-control/restraint; person-centred--service-centred; private/personal-public; care-custodial; psycho-political; socio-technical and others.



There is of course much more that could be added above, and relationships considered between concepts and perspectives: the patient's, nurse's, doctor's, the multidisciplinary team, manager's, policy makers, architect,s anthropologists, public, professional and regulatory bodies and commissioners?





Please keep 'me' safe safely - yes, and the team!


Even though and especially because I may not currently know exactly who - how ...  I am?






My source: https://twitter.com/DIMHN

Related post i

Sunday, June 25, 2023

Design with People in Mind Books - The Seclusion Issue

Design with People in Mind
The Seclusion Issue


Design with People in Mind is the Design in Mental Health Network’s annual round up of the latest research evidence on therapeutic outcomes and the evidence for them relating to the built environment in mental health. In partnership with London Southbank University and Nottingham Trent, so far we’ve looked at a variety of issues, from nature to sound design to boundaries and borders. The latest issue is Seclusion, launched at this years conference and focusing on the evidence for and impact of the practice of seclusion units, how to use them if at all, and best practice in the field to maintain psychological as well as physical safety for service users and staff.



The link to the publication is: 

https://dimhn.org/wp-content/uploads/2023/06/1DWPIM_I8_250x210_24PP_AW_V02_HI_RES.pdf

It’s a member only resource, so you will need to register (free for individuals) before viewing.

Very best,

Hannah

Hannah Chamberlain
CEO
Design in Mental Health Network
m: 07811169609
www.dimhn.org


My source: https://twitter.com/DIMHN

See also:
ii Design with People in Mind

Sunday, December 29, 2019

What's in a Name?

  Or, The First Rule of First Aid* ... #SafeStaffing

Health care is often described as complex ...

there are tools to help simplify, conjoin 

and help care navigation and learning ...













Despite this and even if people are listening

politics, politicians and policy makers seem determined to turn health care into a maze ...


INDIVIDUAL
|
INTER-PERSONAL : SCIENCES
HUMANISTIC -------------------------------------------------- MECHANISTIC
SOCIOLOGY : POLITICAL
|
GROUP

*Protect
yourself
first.


"WAITING ROOM"

"WAIT HERE"





RCN Safe Staffing Campaign:
https://www.rcn.org.uk/employment-and-pay/safe-staffing

patient safety learning hub:
https://www.pslhub.org/

'Named Nurse' 25 years ago.
Mitchell G, Strain J. The role of the named nurse in long-term settings. Nurs Older People. 2015 Apr;27(3):26-9. doi: 10.7748/nop.27.3.26.e679. Review. PubMed PMID: 25809049.

My source (and image):
https://twitter.com/helenh49/status/1210956380636663813

Monday, May 14, 2018

"Bank of England shows green light for mental health drive" c/o The Times

individual
|
INTERPERSONAL : SCIENCES
humanistic ----------------------------------- mechanistic
SOCIOLOGY : POLITICAL
|
group
Mental Health Awareness Week




Mental Health Funding
Mental Health Green Paper
Mental Health White Paper
Recovery Space



See also:
Money and Mental Health

My source: Green light for mental health drive, The Times. 14 May 2018, p.36.

... back to Drupal! ;-)

Tuesday, March 06, 2018

Four forms of Recovery? Hodges' model and the Political Domain

individual
|
INTERPERSONAL : SCIENCES
humanistic --------------------------------------- mechanistic
SOCIOLOGY : POLITICAL
|
group
Recovery?

Recovery?

Recovery?
Recovery Space - Report



Five forms in fact including the spiritual...

See also:
Jones P. (2014) Using a conceptual framework to explore the dimensions of recovery and their relationship to service user choice and self-determination. International Journal of Person Centered Medicine. Vol 3, No 4, (2013) pp.305-311.

Monday, March 05, 2018

Mental Health & Debt

individual
|
INTERPERSONAL : SCIENCES
humanistic --------------------------------------- mechanistic
SOCIOLOGY : POLITICAL
|
group

Mental health problem

 1 in 4


10p coin N - NHS



Debt

Mental Health and Debt 2017 report

Saturday, February 24, 2018

Trauma: A definition c/o @fomsf_UWE




Resized image @fomsf_uwe
Trauma "a universal aspect of human experience in which individuals and groups have to undergo or bear certain burdens, troubles and serious wounds to the body and spirit". p.205.

INDIVIDUAL
|
INTERPERSONAL : SCIENCES         
humanistic -- UNIVERSAL HUMAN EXPERIENCE -- mechanistic
SOCIOLOGY : POLITICAL
|
GROUP

SPIRIT
burdens troubles

BODY
serious wounds

(ethnography, multicultural practice)

 (refugees, mental health providers)


Elzbieta M. Gozdziak (2004) Training Refugee Mental Health Providers: Ethnography as a Bridge to Multicultural Practice. Human Organization: Summer 2004, Vol. 63, No. 2, pp. 203-210.

Tuesday, February 13, 2018

Book: Politics Of The Mind - Marxism and Mental Distress

individual
|
INTERPERSONAL : SCIENCES
humanistic --------------------------------------- mechanistic
SOCIOLOGY : POLITICAL
|
group

Psycho-Political





https://bookmarksbookshop.co.uk/view/45353/Politics+Of+The+Mind%253A+Marxism+and+Mental+Distress
POLITICS OF THE MIND

Source: MHHE AT JISCMAIL.AC.UK

Wednesday, December 06, 2017

Out Lines

individual
|
INTERPERSONAL : SCIENCES
humanistic --------------------------------------- mechanistic
SOCIOLOGY : POLITICAL
|
group








Source: The Sunday Times, Culture, On Record, 29 October, 2017. p.22.

Tuesday, March 28, 2017

Vision and Memory Re-ordering

H2CM4

individual
|
INTERPERSONAL : SCIENCES
humanistic --------------------------------------- mechanistic
SOCIOLOGY : POLITICAL
|
group
memory











POST-TRAUMATIC STRESS DISORDER
pre-traumatic stress disorder


CH4

PERMAFROST

Eye Movement Desensitization and Reprocessing (EMDR)


Averted vision
or
focussed action?




Image source: https://commons.wikimedia.org/wiki/File:Methan_Lewis.svg

Wednesday, December 21, 2016

Thunderstorm Asthma in Hodges' model

individual
|
INTERPERSONAL : SCIENCES
humanistic -------------------------------------------  mechanistic
SOCIOLOGY : POLITICAL
|
group-population

anxiety - impact on respiration

previous individual experience

personal health literacy:
"What I need to do when X,Y,Z

advanced care plan: staying well,
preventive measures
(see below)



Breathing, Asthma

Climate, Thunderstorms

Pollen (rupturing?)

8,500 Hospital Treatment

1,900 Emergency calls in 5 hours

Intensive Care

at least 8 Deaths

Protocols - metrics

Family, carer, community support
Social media, warnings
Provenance of information provided -
community trust.


Health Services

Emergency response / resources

Disaster Management / Review



Melbourne thunderstorm asthma death toll rises to eight, The Guardian, 29 November 2016.

My source:
Davey, M. (2016). Deadly asthma thunderstorm kills four and leaves Melbourne reeling; &
Sample, I. (2016). Analysis, Doctors agree on why, but are less sure how. The Guardian, 25 November. p.3.
 
Update in italics - June 18th 2022, plus:

Bellomo, R., Gigliotti, P., Treloar, A., Holmes, P., Suphioglu, C., Singh, M.B. and Knox, R.B. (1992) Two consecutive thunderstorm associated epidemics of asthma in the city of Melbourne. The possible role of rye-grass pollen. Med. J. Aust. 156, 834-837.

Suphioglu, C., Singh, M.B., Taylor, P., Bellomo, R., Holmes, P., Puy, R. and Knox, R.B. (1992) Mechanism of grass-pollen-induced asthma. Lancet 339, 569-572. 

Knox, R. B. (1993) Grass pollen, thunderstorms and asthma. Clin. Exp. Allergy. 23, 354–359.

Ong, E.K., Singh, M.B. & Knox, R.B. Aeroallergens of plant origin: Molecular basis and aerobiological significance. Aerobiologia 11, 219–229 (1995). https://doi.org/10.1007/BF02447202

Nasser, S.M., Pulimood, T.B. Allergens and thunderstorm asthma. Curr Allergy Asthma Rep 9, 384 (2009). https://doi.org/10.1007/s11882-009-0056-8

E Andrew, Z Nehme, S Bernard, M J Abramson, E Newbigin, B Piper, J Dunlop, P Holman, and K Smith. Stormy weather: a retrospective analysis of demand for emergency medical services during epidemic thunderstorm asthma. BMJ, 359, 2017.

Rabiee, S., Mousavi, H. & Khafaie, M.A. Thunderstorm asthma outbreak, a rare phenomenon in southwest Iran: patients’ perspectives. Environ Sci Pollut Res 25, 36158–36162 (2018).
https://doi.org/10.1007/s11356-018-3478-9

Kevat A. Thunderstorm asthma: looking back and looking forward. J Asthma Allergy. 2020;13:293.

Luschkova, D., Traidl-Hoffmann, C. & Ludwig, A. Climate change and allergies. Allergo J Int 31, 114–120 (2022). https://doi.org/10.1007/s40629-022-00212-x
 
https://asthma.org.au/blog/tips-to-prepare-for-a-thunderstorm-asthma-event/


 

Wednesday, September 01, 2010

Ru! Ru! Ru! Ru! ..... alarmed by the noise? [ambient care]

Working in nursing home liaison I am a regular visitor to various residential and nursing homes.

As I respond to referrals I spend several minutes waiting to see residents, relatives and staff. At this point I can take in the ambience of the home and all too frequently what stands out is the home's call system.

Many are acutely effective.

Even though I am not there for long - 30-60 minutes, the volume, tone and the overall quality of some of these systems can be grossly irritating. Due to the care needs of the resident population the alarm calls are also a constant. This is not just my audiological experience, but one shared with students on placement with me.

Attracting the attention of staff is crucial. Caring staff do want to know who, where and when someone needs assistance. Ironically, sometimes that annoying, intrusive alarm call is supported with a plaintive shout for "someone!". As ever there are many ways to define person centred care. In response to the alarm's screech, scream and shrill the staff head to the panel and seek direction to Room 3 or 7.

If care is personalised then whatever happened to our signature tunes? Did this individual play a musical instrument? Gleaned from their life history record this might at least include Jo's musical favourites? It's true that existing alarms are anonymous, and so confidentiality is preserved. Meanwhile though peace, well-being and staff retention rates(?) are lined up against the walls and reverberated, rev erbe rat ed, re ve r be ra te d ... ...

Of course, at some remote future time I might embarrass myself as I press the red button and the Thunderbirds March rings out down the corridor, around a left, a right corner to light a panel.

Fellow residents and visitors might be given to say "Gee, there goes Alan Tracy needing help again!" Maybe by then the robots will have it sorted: the latest in-situ care units will save the day and people's ears.

Seriously though: designers, owners and managers of homes must consider the acoustic architecture of the care environment; or are they also anticipating a rise in the average age of employees with a consequent impact on the hearing acuity of employees? As to the quality of life of the residents go figure: 5, 4, 3, 2, 1!

Sunday, January 17, 2010

Sahana OSS response in Haiti

My source: Community informatics list [ciresearchers]:
Sahana Software Foundation
Haiti Earthquake Response
Status Report #1
January 17, 2010 00:00 UTC


The Sahana Software Foundation and the Sahana community responded with a massive voluntary effort immediately following the earthquake that has devastated the poor country of Haiti. Working around the clock, we have set up a hosted instance of Sahana (the first deployment of SahanaPy following a disaster!) on a public website that is already filling gaps in the information management requirements of the massive relief operation.

Major Accomplishments

We have a Haiti 2010 Sahana Disaster Response Portal - a live and active website up at http://haiti.sahanafoundation.org which contains a feeds from many of the relief agencies and links to Sahana modules that are actively being used to help coordinate the relief effort.

We have a Sahana Haiti wiki page where we are tracking all of our and others' activites at: http://wiki.sahana.lk/doku.php/haiti:start

We have a requirements page where we record all the modification, configurations, and changes to Sahana based on the mission requirements at: http://wiki.sahana.lk/doku.php/haiti:requirements

See - https://sahanafoundation.org/products/eden/

The Haiti 2010 Sahana Disaster Response Portal provides the following functionality:

1. An Organization Registry - serves to track organizations and offices working on the ground in Haiti. Organizations are encouraged to self-register and report their office locations - alternatively, individual organization office or lists of offices can be e-mailed to haiti-orgs AT googlegroups.com and we have volunteers to assist with data entry and to aggregate lists from other sources. We have entered data from pre-disaster lists of organizations working in Haiti available from UN OCHA. We can assume that these organizations will be working on the relief efforts, but expect that most of their office locations will be different as most organizations have been forced to move into tents given that few buildings remain standing and usable in the capital. We are working to validate these lists with the organizations directly.

The site serves up both KML for Google Earth users and GeoRSS for everyone else, and will generate reports of organization activities and the gaps (uncovered sectors by geographic location). This site will hopefully become the main resource for accurate information about the organizations working on the ground, where they are located, and what activities they are engaged in, and the resources in terms of staff and equipment that they have available to them. (Currently, data is admittedly sparse but we expect more details to become available as the coordination efforts take root on the ground). We are coordinating with UN OCHA, Google and others on sources of accurate lists and updates.

What are the gaps in our information collection? We have a large and we think accurate list of organizations, but not much office location information. Without this, it becomes hard to generate data that can be used as a layer in a GIS system. We are encouraging people to report this information - preferably by GPS coordinates, but any location information that we can use to manually geo-reference the office is valuable. We hope to be able to enhance our capabilities such that we can produce polygons showing organization's areas of coverage by sector. Please direct organizations working in Haiti to our site to register their offices and activities!

2. A Missing Persons Registry / Disaster Victim Identification (DVI) Registry - we are working with Google and others on an agreed common standard for the exchange of Missings Persons data using the PFIF standard. The Google site at http://haiticrisis.appspot.com/ is the main aggregator collecting all missing and found persons reports and we are encouraging all people to send data to that site. [We are struggling a little as Google's feed is not fully PFIF compliant and the lack of unique record identifiers makes it more complex to set up true synchronization without the creation of duplicate records. We continue to work with Google on this and hope to have a resolution and solution within the next few hours.] We will also be embedding Google's widget on our site for collecting missing person information. Google will be making their data available via a PFIF feed and we will be importing it into Sahana's Missing Persons registry. From there, Sahana can add value to the simple lists being collected.

In particular, Sahana's Disaster Victims Identification registry - or DVI - which is used to management the handling and tracking and tracing of the deceased, dead bodies and their identification. There is currently no other known application for this and we hope that those working in this area will find Sahana extremely valuable. Sahana will have the ability to cross-reference missing persons information with the identified and unidentified deceased, thus facilitating reconciliation efforts. The Sahana Missing Persons registry has additional physical description information fields and we hope to be able to utilize some of the image matching capabilities available to extend these capabilities further. Organizations interested in utilizing these capabilities (which will not be made open for public use) should contact the Sahana team at
sahana-haiti AT lists.launchpad.net.

Any updated missing persons status information will be pushed back to the main Google repository from Sahana.

3. Situation Mapping - Sahana's site is able to map all of the geo-referenced data within Sahana - primarily the organization data, but we have also manually entered a data layer of hospitals and medical facilities. Sahana has worked with members of the OSGeo community to obtain a fast tiled set of the current imagery being made available by Digital Globe. Sahana is also leveraging the constantly updated set of Open Street Map tiles. These are acting as backdrop for the offices that are being entered as part of the Organization Registry. Other data sources that are ready and available to be leveraged by Sahana and SahanaPy for other deployments include reports from Ushahidi, various point layers from Open Street Map, location names, USGS earthquakes, and locations from GeoNames. We will continue to build out these capabilities further as relevant layers are made available.

Capabilities we are working on:

The following capabilities are in the process of being developed and we expect will soon be available:

4. Request Management: We are working with the US State Department, Ushahidi and some other voluntary efforts on a project to process SMS messages with requests for assistance sent from survivors in Haiti. SMS text messages sent to a short code in Haiti will go into Ushahidi, who will have volunteer translators to add some structure to the message, identifying the sender's name, location (to the extent possible), and category of the message - a missing persons report, a request for assistance, etc. The message will go into a Ushahidi GeoRSS feed that will be captured by Sahana and fed into a simple Request Management system where the requests for assistance (such as "send water" to a certain village or neighborhood) can be made visible to relief organizations working on the ground. Organizations can fulfill or claim requests for handling and message the person back that assistance is coming. (Missing persons information will be captured by Google).

5. Translation: In addition, our translation project is now set up for Kreol and French translation and we may utilize a pool of Kreol-speaking volunteers being set up by the Service Employees International Union (SEIU) to help in these efforts. Interested translators should be directed initially to:
http://translate.hfoss.eu/wiki/Translation to become oriented in the process.

6. Shelter Registry and Disaster Victims Registry: In the coming days, we expect that there will be a requirement to start tracking the location of temporary shelters now being established, and possible registration of the survivors. We will prepare Sahana's existing registries for such purposes, which will produce further consumable data layers as well as additional missing persons reconciliation capabilities.

If you want to help:

We are using the IRC #sahana channel on freenode as our main coordination tool. Join the chat room to volunteer for tasks and someone from our core volunteer team will direct you - this room is actively staffed on a 24x7 basis.

But first, please check out the wiki pages to see what are the current requirements and areas of focus. We have a lot of volunteer Python and PHP programmers already working on the codebase, but we can probably use more. Please review the requirements page in particular to see where you might help.

We also have a large need for non-technical help - particularly for documentation support - user guidelines and instructions in particular - including some nice screenshots.

...

Finally, we could use help maintaining our own wiki - both the main page and requirements... much of this can be culled from the chat room logs - and helping to update some of the common public repositories of information about similar efforts, such as the crisis commons wiki at
https://crisiscommons.org/, although they are doing a pretty good job at tracking us ourselves.

Remember to add yourself to the wiki as part of team, and what you are doing.

Acknowledgements

Personally, I have never been a part of such a collaborative and cooperative effort on the part of different organizations to come together and to help each other and to not replicate efforts. The Sahana community has worked closely and constantly with InSTEDD, Ushahidi, haitianquake.com, Google, the Crisis Camp participants, and others I apologize for not mentioning and we wouldn't have been able to accomplish all that we have without this, and for this I am very grateful.

The around the clock efforts of many of the Sahana community are too numerous to mention here, and at risk of leaving anyone out, I would just like to thank everyone for all that they have done and been able to do while juggling responsibilities such as full-time jobs and families.

This has been a new model for Sahana deployments - rather than waiting for a specific customer to come forward to take ownership of Sahana, we have self-deployed and I think this will be a likely successful model for the future. More and more, technology projects are stepping forward and doing good directly.

So go forth and do good.

Best regards,
Mark
==========
Mark Prutsalis
President & CEO
Sahana Software Foundation

Tuesday, January 05, 2010

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