Theory on Demand #29 Good Data

GOOD DATA

"Data can have power in numbers. Not only in the literal sense, rather, just as repeat - ability is important, so aggregation and meta-analysis of repeated and comparable studies acts to reduce the uncertainty of individual studies. Cochrane reviews in medical research carry a good deal of weight for this reason and are considered 'gold standard'.33 These reviews reduce the influence of individual companies or vested interests, and lead to more informed health policy." (p.48).

"Those questions underpin a consideration of contemporary genomic initiatives, particularly those that are marketed as 'recreational genomics', and gene patents such as those held by Myriad Inc. More broadly they underpin thought about population-scale health data initiatives such as the UK care.data program that, as discussed below, encountered fundamental difficulties because bureaucratic indifference to consent eroded its perceived legitimacy."54 (p.144).

See other TOD titles c/o The Institute of Network Cultures (INC)

individual

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INTERPERSONAL : SCIENCES

humanistic ----------------------------------------------- mechanistic

SOCIOLOGY : POLITICAL

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group

Something you know values value personal ethics ('good' data = 'here'?)	biometrics: Something you are Something you have  (proximity = 'are' + 'have')? 'open data index'
social activism social assets social capital social data social ends social (collective) ethics social good social justice social media(?) social science	data: "power in numbers" values value bureaucratic ethics audit records security corruption

My source: https://twitter.com/ArnaldoPellini/status/1089196464310501377