New challenging behaviour charter launched

I noticed the item below (with links and images added here) on the Foundation for People with Learning Disabilities Forum. It makes a very important point:

"The label 'challenging behaviour', has become misused over time."

My worry is that this finding is not just relevant to individuals with learning disability and their families, but other groups.

People with dementia, especially in the latter stages can present with behaviour that is increasingly described as 'challenging'. Care facilities are being commissioned and designed with the requisite care, staffing and environment to provide care for people in an effort to provide the highest quality and standard of nursing care.

To some extent these are distinct groups with specific needs. So the use of 'challenging' in one context obviously has a different currency and meaning in another. Whilst the practise and care environments may be separate, is there no place where cross-over may occur? I remember a local RCN meeting presentation that highlighted the demographic trend of dementia within the learning disability population.

To start a painting we often start with a wash:
efficiency - puts a broad brush in the hand.

As we aspire to provide person-centred care
what type of brush do you hold?

We paint with the words we use - take care.

---

The Challenging Behaviour - National Strategy Group has launched a charter to promote the human rights of individuals with learning disabilities who are perceived as challenging.

Up to 27,000 people with learning disabilities in the UK may have been given a label of challenging behavior, resulting in this group of people being - stigmatised and socially excluded denied the right to ordinary lives in the community, to education, recreation and employment placed in institutional settings a long way from home and families.

The label challenging behaviour, has become misused over time. Rather than being used as a term to encourage carers and professionals to understand the underlying reasons for a person's behaviour, 'challenging behaviour' has been used as a diagnostic label, viewed as being intrinsic to the person.

The Challenging Behaviour - National Strategy Group want people (and organisations) to sign up to the charter to register their support for the principles it contains and to commit to action to improve the lives of children and adults who are labelled as challenging. We need as many people as possible to support us, so please ask your friends and family to sign up too.

To read the charter, including an easy read version visit:

http://www.challengingbehaviour.org.uk/

ENDS

What is the Challenging Behaviour - National Strategy Group?

The Challenging Behaviour - National Strategy Group (CB-NSG) was launched on November 7th 2008. The CB-NSG is a key national group to address the needs of children, young people and adults with learning disabilities whose behaviour is perceived as challenging.

Members of the CB-NSG include family carers, representatives from the Department of Health, Royal College of Psychiatrists, British Psychological Society, Royal College of GP's, NHS Trusts, researchers, service providers and a range of practitioners, regulators, commissioners and third sector representatives. The group is action and outcome focused and comes together twice a year to monitor progress, share best practice and develop coordinated action plans.

What is challenging behaviour?

"Behaviour can be described as challenging when it is of such an intensity, frequency, or duration as to threaten the quality of life and/or the physical safety of the individual or others and it is likely to lead to responses that are restrictive, aversive or result in exclusion." (Challenging behaviour - a unified approach; RCPsych, BPS, RCSLT, 2007)

Challenging behaviour is things like hitting your own head against a wall, pulling curtains down or pulling someone's hair. Often people do this because they cannot communicate with words and they have little or no choice and control over what is happening to them. How do I find out more?

To find out more about the Challenging Behaviour National Strategy Group, please refer to 'All change' the Summer issue of 'Challenge' today. This issue focuses on the work of the National Strategy Group and includes articles from Dr Roger Banks (Consultant in the Psychiatry of Learning Disabilities), Jackie Edwards (Family carer) and Bob Tindall (United Response).


'Challenge' is the newsletter of the Challenging Behaviour Foundation and is available free of charge by emailing: info at thecbf.org.uk or downloading from www.challengingbehaviour.org.uk

Helen Marron
The Challenging Behaviour Foundation
Email: info at thecbf.org.uk

Drupal musings 9: Copenhagen next month & the archive

With less than a month to go now until Drupalcon 2010 in Europe - Copenhagen; it's time to look at the program and the tracks available.

Already, the session choice is dizzying. In the mix is -

• Designing UI with Seven, Mark Boulton
• Semantic Taxonomies, Johannes Wehner
• Add a mobile version to your Drupal site, Martin Jørge
• Imaginary users can save your Drupal site, J-P Stace
• Writing Better CSS for Drupal, Maarten Verbaarscho

It will be worthwhile considering previous events and sessions attended and building on the content there. I must also check on the education app related sessions, birds of a feather.

I showed someone the styled archive pages - apparently they look old - good to hear! ;-)

Animated Minds - teaching resource

Animated Minds is a series of short animated documentaries which use real testimony from people who have experienced different forms of mental distress. A single aim underpins all the films: to help dispel myths and misconceptions about ‘mental illness' by giving a voice to those who experience these various difficulties first hand.

http://animatedminds.com


My source - post by:
Jill Anderson: j.anderson at lancaster.ac.uk
Mental Health in Higher Education jiscmail list

Book: "Outcome Measurement in Mental Health" Cambridge University Press

Outcome Measurement in Mental Health
Theory and Practice
Edited by Tom Trauer
Hardback
Published June 2010

In order to operate in an evidence-based fashion, mental health services rely on accurate, relevant, and systematic information. One important type of information is the nature of the problems experienced by recipients of mental health care, and how these problems change over the course of time. Outcome measurement involves the systematic, repeated assessment of aspects of health and illness, either by service providers, service recipients, or both. From outcome measurement clinicians and service recipients achieve a common language whereby they can plan treatment and track progress, team leaders and managers secure a basis to compare their services with others and to promote quality, while policy makers and funders derive evidence of effectiveness. This book will be an essential and practical resource for all members of the mental health clinical team as well as those responsible for establishing or managing services, and directing policy.

• Presents a global perspective on outcome measurement enabling readers to compare and contrast practices around the world
• Enables readers to identify the specific challenges presented in different groups and settings, the instruments to use, and how to use the results
• Emphasizes the relevance and use of outcome data to clinicians, to help them improve their effectiveness

Contents

Preface; 1. Introduction Tom Trauer; Part I. Outcome Measurement Around the World: 2. Mental health outcome measurement in Australia Jane Pirkis and Tom Callaly; 3. Outcome measures in New Zealand Graham Mellsop and Mark Smith; 4. Outcome measurement in England Mike Slade; 5. Outcome measurement in Ohio and the United States James Healy and Dee Roth; 6. The outcome questionnaire system: a practical application for mental health care settings Michael J. Lambert; 7. Outcome measurement in Italy Mirella Ruggeri; 8. Outcome measurement in Germany Sylke Andreas, Thomas Becker, Holger Schulz and Bernd Puschner; 9. Outcome measurement in mental health services in Norway Torleif Ruud; 10. Outcome measurement in Canada: one province's experience with implementation in community mental health David Smith; Part II. Outcome Measurement in Specific Groups and Settings: 11. Routine outcome measurement in child and adolescent mental health Peter Brann; 12. Outcome measurement in adult mental health services Tom Trauer; 13. Outcome measurement in older persons Rod McKay and Regina McDonald; 14. Outcome measurement with indigenous consumers Tricia Nagel and Tom Trauer; 15. Routine measurement of outcomes by Australian private hospital-based psychiatric services Allen Morris-Yates and Andrew Page; 16. Mental health outcome measurement in Non-Governmental Organizations (NGOs) Glen Tobias; 17. Outcome measurement in drug and alcohol services Maree Teesson and Mark Deady; Part III. Current Issues in Outcome Measurement: 18. Outcome measurement - applications and utility Tom Trauer; 19. Stakeholder perspectives in outcome measurement Tom Trauer; 20. Assessment of change in outcome measurement Tom Trauer; 21. Routine outcome measurement: perspectives on skills and training Tom Trauer and Tim Coombs; 22. A review of instruments in outcome measurement Tom Trauer; 23. Some economic and policy considerations for outcome measurement Rowena Jacobs; 24. Future directions Tom Trauer; Index.

My source:
UK Routine Clinical Outcomes Network Forum

WHO Guidance Global Discussion Forum 26 July - 6th August, 2010

Announcement:

Please pass this invitation onto to your networks and colleagues and encourage them to join this virtual discussion forum.

The World Health Organization (WHO) and the WHO Guidance forum invite you to join the

WHO would like you to join a 2 week virtual discussion forum designed to provide an opportunity for people to share their ideas, experience and opinions about the type of evidence-based guidance WHO should produce to support the reduction of maternal and perinatal mortality and morbidity. We want to make this guidance more accessible and focused on addressing technical and health systems challenges and meeting the information needs of people working in this field.

Your contribution to this discussion will help us to identify priority policy or practice issues in which it would be helpful to have either a policy brief, guideline or other type of resource materials produced.

REGISTER NOW! http://my.ibpinitiative.org/whoguidance

During this two-week forum you will receive one-two emails per day: one email to introduce the day’s questions, and one daily digest of the contributions. Five questions will be addressed, and each discussed over two consecutive days. All contributions received will be acknowledged.

Once you have registered you can participate in the forum simply by responding to the daily e-mails or sending a message to:

whoguidance at my.ibpinitiative.org

For any questions on this Virtual Global Discussion Forum please contact the forum facilitator: Cordelia Coltart at: coltartc at who.int

Many thanks and we look forward to hearing your views during this exciting venture.

Cordelia Coltart
Intern WHO
MBBS MPH MRCP BSc DTM&H
Reproductive Health and Research
E-mail: coltartc at who.int

World Health Organization
20, avenue Appia
CH-1211 Geneva 27
visit WHO at: www.who.int
My source:
Sandra Land, GANM (Global Alliance for Nursing and Midwifery) ganm at ibp.wa-research.ch

Drupal musings 8: Styling the archive

I've been editing the basic html pages (as mentioned before on W2tQ) these include:

• Brian Hodges' introduction with a content listing and the scope of the model to help bridge theory and practice.
• My introduction to the model based on an interview with Brian conducted 28th May 1998 in Manchester, England.

I've been here before and lost the thread, working within Drupal. This time though editing the pages in Textmate, things are taking shape. Three headings, three fonts (currently) Georgia, Droid Serif, Tangerine; styled lists and striped tables. It might be basic, but there is a style sheet that is almost breathing as it INFLATES : deflates, the result of various experiments. The fonts look good except for the FOUT 'flash of unstyled text'. As the previous link shows there are some fixes for that - which I hope will follow in due course. That would be a distraction at this point though as there is much to focus upon. Although the archive will have a style of its own, other parts of the site must reflect its content. That said, there still needs to be some stylistic coherence. ...

Written in Padstow, Quayside Cottage listening to a children's show on the bandstand.

The art and science of Serresian spin

To Michel Serres:
- the middle is a point of reflection, a point at which questions - the question - must be asked. In fulfilling the purposes of the health career model:

• bridging the theory - practice gap;
• facilitating holistic practice;
• supporting (personal and group) reflection;
• enabling curriculum development;

- the model's four domains are constantly (re-)visited in turn. Motion is constant. Conception - birth provides that initial impetus. Health status. Life - momentum. Centered on the person the movement is usually self-correcting, seeking balance. Health care. Questions and answers whether whole or in part follow, leaving a trail of care delivered and care planned. A record.

There is definite synergy between our use of the health career model, the dynamic quality and quantity of health and social care and Serres' description of the spinning top:

"The behaviour of the cone or the top is worth analysing. Throw this toy and describe, as Plato did, what happens. It is in movement, this is certain, yet it is stable. It even rests on its point or its pole, the more so as its movement is rapid. All children know this. But its rest is still more paradoxical. The top may move about, by translation, without ever losing its stability. To repeat, it can do so as long as it turns very quickly.


Even better, its axis may lean, take on an inclination, without putting the movement of the whole in too much danger. It may again rock, by nutation, oscillating around a mean location. This very ancient and quite childish machine is marvellously instructive.

First of all, it combines and the movements known and thinkable at the time: rotation, translation, fall, leaning and swaying. An integral model, additive, overcharged, yet simple. Second, and above all, it conjoins in a simple one-off experiment phenomena judged or presumed to be contradictory. It is in movement and rest, it turns and yet does not move, it rocks and is stable. The simplicity of a complexity, first and foremost, an additive machine; a synthesis of contradictions, beyond anything else. Now it may serve as a little model of the world, for a naive simple and local orrery. It quivers, at rest, it moves forward, turning, like the heavens, like the stars." p.28-29.

Michel Serres, (2000) The Birth of Physics, Return of the Model, Turba, Turbo. Clinamen Press.


Image source: https://www.cbsnews.com/news/spinvox-or-someone-like-it-keeps-spinning/

ERCIM News No. 82 Special theme "Computational Biology"

Dear ERCIM News Reader

ERCIM News No. 82 has just been published at http://ercim-news.ercim.eu/

Special Theme: "Computational Biology"

- coordinated by: Gunnar Klau, CWI, The Netherlands and Jacques Nicolas, INRIA, France

- featuring a keynote by Dirk J. Evers, Director, Computational Biology, Illumina, Inc.

Next issue: October 2010 - Special Theme: "Cloud Computing Platforms, Software, and Applications"

(see call for articles)

Thank you for your interest in ERCIM News.

Feel free to forward this message to others who might be interested.

Best regards,

Peter Kunz
ERCIM News central editor

---

Of specific interest to me pages 59-60:

Graph Transformation for Consolidation of Creativity Sessions Results
by Peter Dolog
idSpace

Drupal musings 7: HTML5, CSS3 ... & Mr Hodges meets Drupal

At Manchester airport in May I noticed Web Design Essentials (WDE). Reasons of cost £14.99 and weight meant it was put back on the news stand. The content was excellent! Back in the UK a week later, no sign of it in the supermarket. I found a copy this week at WH Smiths and made the 'investment' - a belated holiday treat.

This is gold mine of nuggets on HTML5, design - wireframes, user experience (UX), fonts and typography:

http://www.font-face.com/
http://fontdeck.com/

- personas, CSS3, jQuery and much more. Now I think about it UX has been around for quite a while, it's a sure sign of how web design has matured such that practitioners can and must focus on the experience. There's another blog post there contrasting UX in web design with UX in health services. Reading about the use of personas in design and planning for a site might also deserve a specific post. As WDE indicates there are companies dedicated to UX. I do not have that luxury and yet I do have to define my initial target audience and their anticipated experience.

The web design related listing I maintain at LINKS I (Intrapersonal) are being updated as a result of the leads in WDE.

Through the scheduling and poll services of Doodle (thanks Chris) and with the Drupal NW England list I'm checking on which day in the autumn - November - is best for a group of volunteers to help jump start the new site. Everything is sorted now for Drupalcon next month.

HIV/AIDS and Rights - Social Networking - The Vienna World AIDS Conference

To: Members of The CI Community Interested in HIV/AIDS and Communication
From: Warren Feek

Peter - Please Join: "HIV/AIDS Future Strategy" network at
http://groups.comminit.com/node/306528 - if you have not done so already.

Many best wishes.

I am writing in advance of the Vienna World AIDS Conference (July 18-23 2010) - an event summarised on The CI website - http://www.comminit.com/en/node/310758/347 - with an invitation to participate in dialogue on the themes of this important conference...whether you will be in Vienna or not!


The CI's Development Network Group called "HIV/AIDS Strategy: Future Directions" - http://groups.comminit.com/node/306528 - is the hub for our communication and media focused networking pertaining to the conference. This group presently has 489 members. This is complemented by the relevant HIV/AIDS Rights Knowledge within the HIV/AIDS theme site at ...

If you are not already one of them, please join the conversation! You can register here - http://groups.comminit.com/user/register - or, if already registered, join the group by going here - http://groups.comminit.com/node/306528 - and clicking on the red words "Request membership".

Thanks - it will be excellent to have you engaged.

To view communication- and media-related events happening at the Conference, please visit the HIV/AIDS Strategy: Future Directions Group's July calendar: ...

Click on each event's name to read a description of what will be happening, where, and when. (Please note also the hyperlinked word "more"...click there to see the entire list of C4D-related events taking place each day). And please do add your own event description: Once logged in, just click on "Submit an Event" in the box on the right-hand side of the screen.

You can learn, for example, about:

* "Is AIDS Activism Dead?" (Monday July 19 2010, from 11:00-12:30, in Global Village Session Room 1)

* "Distance Based Learning Technologies: E-Health and Social Media for Clinical HIV" (Monday July 19 2010, from 14:30-18:00, in Mini Room 8)

* "'I Want My Rights Now" - A Toolkit for Young People to Advocate Successfully" (Monday July 19 2010, from 11:00-12:30, in Mini Room 3)

* and many more...