ERCIM News No. 99 Special theme: "Software Quality"

Dear ERCIM News Reader,

ERCIM News No. 99 has just been published at
http://ercim-news.ercim.eu/en99

Special Theme: "Software Quality"
http://ercim-news.ercim.eu/en99/special/

And on the occasion of ERCIM’s 25th anniversary, we published a selection of articles on the future challenges of ICST:
http://ercim-news.ercim.eu/en99/challenges-for-icst

Keynote by Willem Jonker, CEO EIT ICT Labs: "The Future of ICT: Blended Life"
http://ercim-news.ercim.eu/en99/keynote/the-future-of-ict-blended-life



This issue is also available for download as:
pdf:  http://ercim-news.ercim.eu/images/stories/EN99/EN99-web.pdf
epub: http://ercim-news.ercim.eu/images/stories/EN99/EN99.epub

Next issue: No. 100, January 2015 - Special Theme: "Scientific Data Sharing"

Thank you for your interest in ERCIM News.
Feel free to forward this message to others who might be interested.

Best regards,
Peter Kunz
ERCIM News central editor

Rijksmuseum Amsterdam - health in art : art in health

I arrived in Amsterdam last night and spent today, 8 hours in the Rijksmuseum. It is an amazing experience, even to just scratch the surface. Early on it was not busy! Entering the building, is as publicised, to discover a remarkable series of spaces.

There are so many highlights of a rewarding day. One must be within the final hour 1610 finding one of Van Gogh's self portraits. Van Gogh finds himself placed in the interpersonal domain not just by virtue of this self portrait, but his struggle with mental health and  hospitalisations.

individual
INTERPERSONAL : SCIENCES

humanistic ------------------------------------------- mechanistic

SOCIOLOGY : POLITICAL

group

Samuel Dirksz van Hoogstraten [Public domain], via Wikimedia Commons

There were many other (ill-)health related examples (and many that are also bright and humorous).

The sick child. The Sick Woman....

When initially viewing Visiting the Sick you have some searching to do. The sick individual themselves and the doctor are rather lost in the background. The painting stresses the sociological, domestic aspects of health past and present.

In Visiting the Sick and The Anemic Woman we get a view of the way outside (possibly of spiritual significance?) and another room through doorways. From TV, reading and my visit today, this is a common device within Dutch genre painting. If we have a diagnosis now in the 21st century, we still need to look through the windows and doors that relate to the individual and their social situation. In the age of the interface and partitions we still need to negotiate them.  Doorways, windows and portals as changes in knowledge content, can in the form of care domains illuminate the boundary of what is objective and subjective. This is central in health and social care.


Van Gogh self portrait source:
http://historiek.net/chinezen-zeer-geinteresseerd-in-van-gogh/13217/#.VCb5mRbivTo

The Anemic Woman image source:
http://commons.wikimedia.org/wiki/File:Samuel_van_Hoogstraten_-_The_Anaemic_Lady_-_WGA11719.jpg

1 in 3 will be older adults by 2025 in Japan

In June Dr Mayumi Hayashi described Japan's vision of 'total care' for its older population in HSJ. The article that prompts this post follows another with lessons for England.

Referring to a "2025 vision" this forward thinking has its roots in established systems of healthcare set up in 1961 and social care established in 2000 (p.25).

Care integration is not new as a fundamental issue in health and social care. It is for me a career legacy issue. As a student nurse it was discussed and debated, closely allied with multidisciplinary and holistic (joined up physical and mental health) care. Even now 37 years later it will drive many arguments and policy deliberations in the run up to the next election here.

Many nations are faced with stark demographics. As the population ages and works its way through wooden blocks, Rubik cubes, it is the population pyramid that takes on increasing significance.


Dr Hayashi lists the need for inclusion, integration and continuation of four components that are essential to the realisation of this vision:

• maximising the integration of healthcare and social care;
• promoting policies for prevention and outreach together with safeguarding;
• embedding supported living programmes and dementia friendly community initiatives; and
• addressing “late life specific” housing needs.

I have mapped these to Hodges' model below:

individual
INTERPERSONAL : SCIENCES

humanistic ------------------------------------------- mechanistic

SOCIOLOGY : POLITICAL

group

embedding supported living programmes and dementia friendly community initiatives	integration of health and social care
"late life specific" housing needs (integration of health and social care)	promoting policies for prevention and outreach, together with safeguarding

It becomes clear to see in Japan, China and other nations how telecare and smart homes have a role to play. Getting the basics of integrated care resolved firstly is the prerequisite whatever the culture.

Where achieved the integration of health and social care can act as a diagonal brace as it straddles two care domains. Perhaps the model also reflects the ongoing challenges of parity in esteem in mental health care and physical care; and the funding ambiguity for people living with dementia as opposed to other medical conditions?

In January 2014 the FT Weekend magazine also featured an article on ageing in Japan.

Hayashi, M. (2014) Japan's vision of a 'total care' future looks bright, Health Service Journal, 124, 6404, 25-27. 

FT magazine cover image:
https://www.facebook.com/financialtimes/photos/a.10150157857040750.297340.8860325749/10152119294570750/?type=1

Agnostic qualities in Hodges' model

In the previous post I highlighted "Holistic approaches to learning are agnostic as to method." 

I added that there would be more to follow as Hodges' model can be viewed as agnostic on several levels. The following is taken from a paper on Hodges' model and its application in forensic nursing:

Hodges’ model claims to be person-centred and situated (Jones, 2008). What exactly does this mean for forensic nursing? The utility of Hodges’ model lies in it being agnostic. By ‘agnostic’ this means that the model is not dependent upon, dedicated to, sanctioned by, or owned by any particular discipline (even nursing). It was not designed with a particular media, clinical setting, situation or organization in mind. It is true, however, that the model was formulated within academia and health and social care, being taught and applied by community mental health nurses, learning disability and health visiting students. Apart from the history and universality of the model’s cruciform structure and its inherent 2 x 2 matrix form [often referred to as a Johari window (Luft and Ingham, 1955)], the model is also culturally neutral. This is an essential requirement to reflect and enact nursing values and codes of conduct (Nursing and Midwifery Council, 2008).

Doyle, M., Jones, P. (2013). Hodges’ Health Career Model and its role and potential application in forensic mental health nursing. Journal of Psychiatric and Mental Health Nursing. 20, 7, 631-640.
http://onlinelibrary.wiley.com/doi/10.1111/j.1365-2850.2012.01961.x/abstract

Book: Teaching Crowds - Learning and Social Media

This book is available as an open access pdf. Here is an extract from chapter 2 on Social Learning Theories.

Holistic approaches to learning are agnostic as to method. Drawing from connectivist and older models, they valorize diversity and the socially distributed cognition afforded by the read-write Web and other publishing models, accepting that every learning experience is unique, and every learner’s needs are different. Connectivist approaches, for all their extensive reliance on networks of people engaging socially, are at heart focused on the individual—specifically, the individual’s learning. Holistic models embrace the fact that it is sometimes more important that a group learns, rather than an individual, especially in collectivist cultures (Potgieter et al., 2006). Holistic models recognize that, sometimes, guidance is what is most needed, that people can learn without direct engagement with others and, even that transmittive instructionist models of teaching have a place. p.61.

In the next post I will explain the emphasis placed in the quote.


Jon Dron and Terry Anderson (2014) Teaching Crowds: Learning and Social Media, AU Press.

My source:
ITFORUM mailing list 
http://listserv.lt.unt.edu/mailman/listinfo/

Self-determination: individual - group (high-low) resolution

individual
INTERPERSONAL : SCIENCES

humanistic ------------------------------------------- mechanistic

SOCIOLOGY : POLITICAL

group

	Border Binary Decision
magnanimity

Image sources:
"Flag of Scotland (Union Jack colours and proportion)" via Wikimedia Commons.
https://commons.wikimedia.org/wiki/File:Flag_of_the_United_Kingdom.svg

The Lyon Declaration on Access to Information and Development

Dear all,

The Lyon Declaration on Access to Information and Development 
http://www.lyondeclaration.org/ was successfully launched at the World Library and Information Congress 2014 in Lyon. Since then, over 280 organisations from across the library and development community have signed the document and called upon United Nations Member States to incorporate access to information in the new post-2015 development framework. The Declaration has now been translated into 13 languages.

Following the release of the Open Working Group Outcome Document in July, IFLA is now waiting to see what UN Secretary General Ban Ki-Moon will present to the UN General Assembly later this year in New York. The Secretary General is currently overseeing preparation of a ‘synthesis report’ that will bring together the outputs of various processes on the post-2015 development agenda and help UN Member States find a way forward in negotiations over the next twelve months. The synthesis report is expected to be released at the end of October/early November.

What are the next steps?

Once the synthesis report is issued it is crucial that policymakers in the capitals of UN Member States get to hear what libraries want to see in the new framework. As outlined in the Lyon Declaration, IFLA wants the United Nations to acknowledge that access to information, and the skills to use it effectively, are required for sustainable development, and to make sure that the framework’s goals, targets and means of implementation reflects this.

Your voice will be needed for us to achieve this goal.

IFLA is currently preparing an advocacy toolkit which will help library representatives to approach decision-makers in order to talk to them about the importance of access to information in development. IFLA wants to help its members and partners to take the opportunity to position themselves inside development debates in their home countries, so that their governments recognise the value libraries bring to development. Ultimately, libraries can benefit from being included in the national plans that will implement the new development agenda from January 1st, 2016.

The advocacy toolkit will be available in early October 2014.

What can you do to help?

• You can sign the Lyon Declaration and add your voice to the call at the United Nations.
• You can translate the Lyon Declaration into your language and share it with colleagues in your own country.
• You can encourage others in the library and development sectors to sign the Lyon Declaration.
• You can organise meetings with policy makers in your country and use the toolkit provided by IFLA in order to make the library voice heard on a national level.
• You can promote the principles of the Lyon Declaration throughout your network and ensure that the message gets spread as widely as possible.

The Lyon Declaration is available at http://www.lyondeclaration.org/

...

Background

The Lyon Declaration on Access to Information and Development calls upon United Nations Member States to make an international commitment through the post-2015 development agenda to ensure that everyone has access to, and is able to understand, use and share the information that is necessary to promote sustainable development and democratic societies. It was prepared by IFLA and a number of strategic partners in the library and development communities.

Please also see the webversion.

Julia Brungs
Policy and Projects Officer
International Federation of Library Associations and Institutions (IFLA)
P.O. Box 95312
2509 CH The Hague
Netherlands

My source: HIFA2015

In political hands person-centred care is a quantum phenomena (entanglement)

individual
INTERPERSONAL : SCIENCES

humanistic ------------------------------------------- mechanistic

SOCIOLOGY : POLITICAL

group

Acute mental health needs RISK Self-harm Local care? Empowering the individual? Accessibility Cognitive distance Let therapy commence Continuity (dist-ress) Remote policy touch Organisational (distance) dementia? threshold   ↘	RISK  Self-neglect personal hygiene domestic environment local-regional-national?  metrics: Km or Miles or time? Gallons or Litres? Cost? Illusory savings? threshold ↓
RISK   Harm to others to integrated care  multidisciplinary care      threshold →	Beds

Lintern, S. (2014) Mental health patients sent hundreds of miles for a bed, HSJ, 14 August.

Beds shortage = Gathered Sobs
Mental Health = Lethal Anthem?
Mental health = Lean Halt Them

Bed image:
By kieran jones (http://www.clker.com/clipart-bed-icon.html) [Public domain], via Wikimedia Commons

Technologies for Development: Project - founding ideas

Reading the website of this project I noticed that their founding ideas can be mapped to Hodges' model. As depicted below some are pretty obvious, notably the POLITICAL domain and the SOCIOLOGICAL.

Their first founding idea is placed in the interpersonal domain. This is very subjective exercise - literally playing with words - but here I am prioritizing individual cognitive access above physical access. I am thinking of individual participants and how a person even as part of cohorts, communities and groups can be marginalised. Mental health, also 'found' in this domain is a key example. As Nanotechnologies for Development state the first idea also focuses on countries - the group. So maybe I am wrong, if there is a wrong when using models - idealisations - in this way?

Staying with the group, access and participation are also a crucial matter of human rights - education, health information, health and social care, employment, freedoms, and security - freedom from violence, unlawful imprisonment...

These founding ideas clearly denote underpinning values, note in-particular the way risks and benefits are included at the individual and the group level.

In the SCIENCES domain from the beginning acknowledges time, process, project management. Nanotechnology needs to be understood in terms of the environments we inhabit. Not just us, now; but grandchildren... too. Not just the physical environment, but that embodied under and within this other divide: skin.

Within the mechanistic domains how will consultation about benefits and risks be negotiated and communicated to the humanistic domains?

How will the individual - group : community - commercial enterprise and innovation be squared?
 
This individual-group distinction is becoming ever more significant - of which more to follow.

individual
INTERPERSONAL : SCIENCES

humanistic ------------------------------------------- mechanistic

SOCIOLOGY : POLITICAL

group

The first founding idea of this project is that developing countries should not be denied participation in advanced modern technologies.	The third core idea is that such developments entail risks and benefits that need to be addressed from the beginning.
The second that they should do that in their own culturally-specific ways. Our approach rejects any a priori distinction between traditional and modern technologies, but rather seeks innovative ways to connect indigenous and globalized knowledge and practices.	The fourth founding idea is that choices about those benefits and risks need to be made in a democratic way.

Source: Technologies for Development: Project Founding ideas

Interviews: In the political melee don't forget the green corner...!

individual
INTERPERSONAL : SCIENCES

humanistic ------------------------------------------- mechanistic

SOCIOLOGY : POLITICAL

group

Therapeutic alliance

"Sir Robin cited research conducted by two psychologists on interviews during the 1987 general election campaign. Dr Peter Bull and Kate Mayer found that Kinnock and Thatcher avoided more than half the questions put to them. They concluded the party leaders used 31 different forms of evasion, among them ignoring the question, acknowledging the question without answering, questioning the question, attacking the question, attacking the interviewer, declining to answer, giving an incomplete answer, repeating a previous answer and claiming already to have answered the question." FT Weekend. p.1

Source:
Katz, Ian, (2014) The death of the political interview. FT Weekend, Life & Arts, September 6-7th. p.1.

UK - USA - Global health (physical care, mental health care, social care)

individual
INTERPERSONAL : SCIENCES

humanistic ------------------------------------------- mechanistic

SOCIOLOGY : POLITICAL

group

Affordable?	Affordable?
Affordable?	Accountable?

Prompt:
5 Megatrends With The Potential To Transform U.S. Health Care
http://www.forbes.com/sites/robertpearl/2014/09/04/5-megatrends-with-the-potential-to-transform-u-s-health-care/

Five Domains - Five Gyres

There are five domains in Hodges' model that can help us assess, plan and formulate health and social care, support reflection upon interventions and evaluate progress over time. An aide-memoire indeed!

individual
INTERPERSONAL : SCIENCES

humanistic ------------------------------------------- mechanistic

SOCIOLOGY : POLITICAL

group

	Brain Plasticity
	Plastic Brain

With five domains to support short and longer-term memory do we really need to force the oceans to remember when we fail to care...?