Book (i): Mental Patient - Psychiatric Ethics from a Patient's Perspective

- by Abigail Gosselin

Individual
|

      INTERPERSONAL    :     SCIENCES               

HUMANISTIC  --------------------------------------  MECHANISTIC      

 SOCIOLOGY  :    POLITICAL 

|

Group

Book: Mental Patient	Do we say  "PHYSICAL PATIENT"?
What is (still) heard here?	What is still heard here?

Gosselin, A. (2022). Mental Patient: Psychiatric Ethics from a Patient’s Perspective. The MIT Press.
https://doi.org/10.7551/mitpress/14589.001.0001

My source: 

https://x.com/AnneMarieGagnJ1/status/1767948059957227719?s=20

UK Higher Education Survey of Carers

From: Marie Moreau <marie_moreau AT HOTMAIL.COM>
Subject: UK HE survey of carers

Dear Colleagues

I am sharing this final call as we will be closing our survey of carers in UK HE at the end of the month.

Many thanks to those of you who have replied.

To be eligible, you need to be employed by a UK-based university and to be a carer (broadly understood, including as a parent, for a friend, a relative etc.). Here’s the link:

https://angliaruskin.onlinesurveys.ac.uk/national-carers-survey-uk

The outcomes will help us to better understand the experiences of carers in higher education and to provide recommendations to the sector.

We have received ethical approval for this project and are happy to address any question.

Warm wishes

Marie-Pierre Moreau
ARU, Cambridge, UK

My source (with some editing):

This message was issued to members of www.jiscmail.ac.uk/FREEDOM-OF-INFORMATION, a mailing list hosted by www.jiscmail.ac.uk, terms & conditions are available at https://www.jiscmail.ac.uk/policyandsecurity/

Landscapes, Maths, Line of Sight c/o Penteado & Skovsmose Eds. (2022)

The care / knowledge domains of

Hodges' model as landscapes:
as 'initial sketches'?

'Line of sight/thought?'

Individual
|

      INTERPERSONAL    :     SCIENCES               

HUMANISTIC  --------------------------------------  MECHANISTIC      

 SOCIOLOGY  :    POLITICAL 

|

Group

reflection critical reflection cognitive/conceptual landscapes

maths and sciences = hard subjects ?

"We understand that mathematics is especially relevant in knowledge processing, and operates in the process of globalisation,4 i.e., it interferes in several aspects that integrate with society. We admit that globalisation refers to all aspects of life and that, depending on how it is questioned and operationalised, it may or may not be beneficial. Therefore, globalisation “has to do with the construction, codification, and distribution of knowledge that turns into goods for sale” (Skovsmose, 2014, p. 130). This way, mathematical knowledge is involved as part of the foundations of society, making it necessary to question its position in this laborious civilising equation (Civiero and Bazzo, 2020). In this context we delegate some power to critical mathematics education (CME) by considering that it can contribute to the formation of critical individuals by promoting reflection on this process. Bazzo (2019) considers us to experience a civilising equation whose variables need to be discussed in schools." pp.296-297.

"The word citizenship, a contested concept, emerges in different discourses that can hide contrasting interests. Differences in its meanings are enhanced with the changes in society through history. This chapter presents a discussion about mathematics education for citizenship and its outcomes. School presents itself as a stage of dispute and a space for expressing different ideologies that can configure ways of thinking and structuring an education on the topic of citizenship. Mathematics education is shown to be supportive of different citizenship discourses. In a globalised world with deep inequalities, a type of mathematics education for citizenship that matches with inclusion and diversity is required; one which considers global issues. The proposed landscape of investigation Global Visibility Matters is a possible support aid for mathematics classes, based on enabling students to develop global citizenship. By reading and interpreting a social situation as being open to change, it becomes possible for the students to be recognised as—and to act as—global citizens." p.133.

Chapter 8 Global Citizenship, Manuella Carrijo, pp. 133-147.

Chapter 18 Critical Mathematics Education in Action:  To Be or Not to Be. Paula Andrea Grawieski Civiero and  Fátima Peres Zago de Oliveira. pp. 295-321.

Penteado, M. & Skovsmose, O., editor. (2022) Landscapes of Investigation: Contributions to Critical Mathematics Education. Cambridge, UK: Open Book Publishers. [Pdf] Retrieved from the Library of Congress, https://www.loc.gov/item/2021385926/

landscape

https://hodges-model.blogspot.com/search?q=landscape

sketch

https://hodges-model.blogspot.com/search?q=sketch

'line of sight'

https://hodges-model.blogspot.com/search?q=line+of+sight

HIFA Discussion: Alcohol Use Disorders - Drink Aware and Change

Dear HIFA colleagues,

I would like to invite you to retweet the following that I have just sent on our X/Twitter account:

"Pls RT: I just took the DrinkAware test as if I drank 3 pints a day (well over the recommended limit). The result was "Great news! You are at lower risk of alcohol-related problems". We invite others to check. Thx NPW https://www.drinkaware.co.uk/tools/drinking-check#/ "

You can see the tweet and retweet here: https://twitter.com/hifa_org/status/1762399130154885617

We are unsure why the test - which is taken by 900 people every day - is providing such misinformation.

DrinkAware is funded by the alcohol industry.

Thank you for your help to publicise this issue.

Best wishes, Neil

HIFA profile: Neil Pakenham-Walsh is coordinator of HIFA (Healthcare Information For All), a global health community that brings all stakeholders together around the shared goal of universal access to reliable healthcare information. HIFA has 20,000 members in 180 countries, interacting in four languages and representing all parts of the global evidence ecosystem. HIFA is administered by Global Healthcare Information Network, a UK-based nonprofit in official relations with the World Health Organization. Email: neil AT hifa.org

To which I replied:

RT'd as requested.. 

Reply from twitter ... 

This evergreen article was written 10 years ago
"Be aware of @Drinkaware "https://t.co/UGcVFb5gFB via @peter_g_miller et al

— Ash Paul (@pash22) February 27, 2024

McCambridge J, Kypri K, Miller P, Hawkins B, Hastings G. Be aware of Drinkaware. Addiction. 2014 Apr;109(4):519-24. doi: 10.1111/add.12356. Epub 2013 Oct 28. PMID: 24164565; PMCID: PMC3992896.

UPDATE 10th March

Dear HIFA colleagues,

Further to our discussions on HIFA, in the past week DrinkAware HAS CHANGED THEIR ADVICE to people who drink 42 units per week (3X the recommended maximum). Questions remain about how many people were misled by previous advice, whether that advice was deliberate, and whether WHO's AUDIT test (currently used as the basis for the DrinkAware test) should continue to be used by anyone as an unsupervised self-evaluation tool.

BACKGROUND On 22 February 2024 I reported on HIFA an apparent problem with DrinkAware, the UK's largest alcohol charity, funded by the alcohol industry. https://www.hifa.org/dgroups-rss/alcohol-use-disorders-79-role-alcohol-industry-10-alcohol-industry-and-misinformation

I took their Drinking Check. I posed as a man who drinks 42 units per week (3X the recommended maximum) and DrinkAware told me: "Great news! You are at lower risk of alcohol-related problems. This means you are at lower risk of serious diseases such as stroke, heart and liver disease, and seven types of cancer and may already be noticing the benefits of lower risk drinking such as deeper sleep, more energy and brighter moods."

There was no advice to reduce my consumption.

This test was repeated by other HIFA members in subsequent days, with the same results.

On 4 March 2024 we reported our findings to the World Health Organization.

CHANGE IN ADVICE Today, 10 March 2024, I took the test again. As before I posed as a man who drinks 42 units per week. This time I got a different result:

"You are on the right track. You are at lower risk of alcohol-related problems... To keep your health risks low, the UK Chief Medical Officers advice is to drink no more than 14 units a week. If you are regularly drinking above 14 units per week there are tips and advice below about how to cut down."

INTERPRETATION Prior to 4 March 2024, DrinkAware was encouraging many heavy drinkers (up to 42 units per week) to continue drinking as they are.

DrinkAware claims that its Drinking Check tool was used by 250,991 people in 2021, so it appears that potentially tens or even hundreds of thousands of people drinking 14-42 units per week may have been misinformed.

At some point between 4 March and 9 March, Drinkaware changed their Drinking Check tool so that heavy drinkers (up to 42 units per week) are now advised to cut down.

SHOULD WHO's AUDIT TEST BE USED AS AN UNSUPERVISED SELF-EVALUATION TOOL?

Previous messages on HIFA have suggested that AUDIT should only be used as a clinical tool by health professionals, and not as an unsupervised self-evaluation tool. WHO's AUDIT manual notes: 'Care must be taken to tell patients why questions about alcohol use are being asked and to provide information they need to make appropriate responses. A decision must be made whether to administer the AUDIT orally or as a written, self-report questionnaire.' https://iris.who.int/bitstream/handle/10665/67205/WHO_MSD_MSB_01.6a-eng.pdf

NEXT STEPS

How many people were misled by previous advice, was that advice deliberate, and should WHO's AUDIT test (currently used as the basis for the DrinkAware test) continue to be made available as an unsupervised self-evaluation tool?

I invite HIFA members to suggest next steps. Are you a health journalist (or do you know a health journalist) who might be interested to look into this in more depth? Please pass this on and/or contact me: neil@hifa.org

Meanwhile I shall report this new finding to WHO.

I look forward to your comments and suggestions: hifa AT hifaforums.org

Best wishes, Neil

Finally ...

Dear HIFA colleagues,

We now enter our 6th and final week of the deep-dive into Alcohol Use Disorders, where I invite you to reflect on what has been discussed so far (and what has not been discussed). In your view, what is the key learning in relation to the 5 questions we have explored:

1. Do people understand the health, socio-economic and environmental harms of alcohol? What matters to them? How can they be better informed? How to reduce stigma? 2. Do health workers have adequate knowledge to prevent and manage alcohol use disorders among their patients? What matters to them? How can they be better informed? 3. What is the role of the alcohol industry? What can be done to address misinformation from the alcohol industry? 4. Do public health professionals and policymakers have adequate knowledge to prevent and treat alcohol use disorders in their country? What are current national policies and what more can be done to fully implement those policies? 5. How can we define and measure alcohol use disorders?

To help with this, I have prepared a full compilation of our discussion so far (205 pages):

https://www.hifa.org/sites/default/files/publications_pdf/Alcohol_Use_Disorders_Compilation2.pdf

I shall now work on an edited version (selected text organised under subheadings for each of the 5 questions and for other topics) and will get this to you asap.

Many thanks, Neil

Publication list - Peter Jones

Previously, I used to maintain a publications list, one that runs from the year 'dot' (ego eh!). The bibliography in the blog's sidebar serves this purpose, also being (much) enriched by other papers that use/cite Hodges' model. 

I decided to revisit the exercise. Successful at interview late in 2019, for a part-time (variable hours) tutoring role, no teaching opportunities followed as COVID intervened.

Invited now to f/w an updated CV and covering letter, I realise that apart from several recent papers I did not include a 'comprehensive' list - as I'm sure is the custom in academe; no doubt listings with many more entries. Here's the list:

Publications by Peter Jones (#1-4 software; #37 website; #40 this blog)

1. 1982 CAPA: COMPUTER AIDED PATIENT ASSESSMENT, Sinclair ZX81, advertised in Nursing Mirror (see below) provided on audio cassette tape.
2. 1983 THE NURSING PROCESS – Computer Aided Learning program, BBC Micro, published by Open Software Limited (OSL)
3. 1984 HAEM. Blood Groups Computer Aided Learning program, BBC Micro – (OSL). (see below)
4. c.1989 SHADES OF GREY, Computer Aided Learning program, BBC Micro. Simulation of nuclear weapons, Based on Fanchi, J. Local effects of nuclear weapons, BYTE, Volume 11. Issue 13. Dec., pp. 143–155. Computer Aided Learning program, BBC Micro, published by Open Software Limited. (see below).
5. Jones, P. (1986) Computing in Nursing NEWS. Computerised Patient Assessment. Nursing Times. 85: 5. Sep 3-9;82(36):63-5. PMID: 3532039 (Describes 'CAPA', a BBC microcomputer program for student nurses.)
6. Jones P. 1988 Thunderbirds are Go? (Impact of technology in society, disasters, macro-engineering). Popular Computing Weekly.
7. Jones, P. 1989 Modems are Cheap, it's the phone bills that hurt. Popular Computing Weekly.
8. Jones, P. (1989) Computers in Nursing NEWS. Creating a Program. Nursing Times. Feb 1-7;85(5):66-8. PMID: 2648342 (Describes 'HAEM', a BBC microcomputer program for student nurses on blood and blood groups.)
9. Jones, P. (1989) Information Technology is Good For You! (Effects of information technology) IT in Nursing, BCS-Nurs. Specialist Group. 1,1
10. Jones, P. (1990) Creating a Community Mental Health IS (Creation of a community mental health resource centre - a multidisciplinary research project). IT in Nursing and Paper at BCS NSG Conference. 2,4
11. Jones, P., Beckingham, D. (1991) The Ins and Outs of a small mental health Information System. Healthcare Computing 91 Conference Paper.
12. Jones, P. (1992) Nursing: All in the mind and machine? (Models of nursing and computing). British Computer Society -Nursing Specialist Group Conference Paper
13. Jones, P., Beckingham, D. (1992) Community Mental Health: IT in the Buffer Zone. Healthcare Computing 92 Conference (Poster).
14. Jones, P. (1993) Computerised Models of Nursing. (Data types in nursing - opportunities and problems). Healthcare Computing 93 Conference Paper.
15. Jones, P. (1993) Using a Semantic Network to Represent Nursing Terminology (project for B.A. (Joint Hons. Computing / Philosophy). Supervisor J Kirby - Medical Informatics Group. University of Manchester). BCS-NSG Conference Paper.
16. Jones, P. (1993) Nursing: All in the mind (and machine?). IT in Nursing, 5,4.
17. Jones, P. (1994) An Enthusiast's View of CAL. (Problems in production of CAL - Simulation effects of Nuclear Weapons - conversion of GWBASIC to BBC BASIC from BYTE - with original author's permission - J Fanchi). IT in Nursing. 6,2.
18. Jones, P. (1994) IT with Records in Mind (Mental Health CPA and Record types - idealised, cognitive, CBR, Distributed), IT in Nursing. 6,4.
19. Jones, P. (1996) Humans, Information, and Science, Journal of Advanced Nursing, 24(3),591-598.
20. Jones, P. (1996) An overarching theory of health communication? Health Informatics Journal,2,1,28-34.
21. Jones, P. (1996) Nursing Technology and Elephants - Part 1: Technology as a beast of burden. IT in Nursing. 8,1,4-6.
22. Jones, P. (1996) Nursing Technology and Elephants - Part 2: Technology as a serpent. IT in Nursing. 8,2,5-7.
23. Jones, P. (1996) Nursing Technology and Elephants - Part 3: Technology rope to save humanity and health care, IT in Nursing. 8,3,5-7.
24. Jones, P. (1997) Providing Mental Health Care: Getting A Purchase On Information. IT in Nursing. 9,3.
25. Jones, P. (1997) IT: The ubiquitous Research Tool (The use of IT in research - to access; transform; transcribe and disseminate information). IT in Nursing. 9,4.
26. Jones, P. (1999) Visualization in Nursing: Workshop report, IT in Nursing, 11.1.
27. Jones, P. (1999) It's time to master the latest tools and Hodges' Health Career Model, IT in Nursing, 11.2.
28. Jones, P. (2004) Viewpoint: Can informatics and holistic multidisciplinary care be harmonised? British Journal of Healthcare Computing & Information Management, 21, 6, 17-18.
29. Jones, P. (2004) The Four Care Domains: Situations Worthy of Research. Conference: Building & Bridging Community Networks: Knowledge, Innovation & Diversity through Communication, Brighton, UK.
30. 2005. Bursary Award Poster: Introduction and Scope of H2CM. HC2005: Harrogate. With thanks to the BCS Health Informatics Forum and my manager(s).
31. 2005. Mental health and geography: questions and issues for a mental health trust organised using Hodges' four care domains GEOMED 2005. Cambridge – Poster.
32. Jones, P. (2008) Exploring Serres’ Atlas, Hodges’ Knowledge Domains and the Fusion of Informatics and Cultural Horizons, IN Kidd, T., Chen, I. (Eds.) Social Information Technology Connecting Society and Cultural Issues, Idea Group Publishing, Inc. Chap. 7, pp. 96-109.
33. Jones, P. (2009) Socio-Technical Structures, the Scope of Informatics and Hodges’ model, IN, Staudinger, R., Ostermann, H., Bettina Staudinger, B. (Eds.), Handbook of Research in Nursing Informatics and Socio-Technical Structures, Idea Group Publishing, Inc. Chap. 11, pp. 160-174.
34. Jones, P. (2012). Exploring several dimensions of local, global and glocal using the generic conceptual framework Hodges's model. The Journal Of Community Informatics. 8(3). Retrieved from https://openjournals.uwaterloo.ca/index.php/JoCI/article/view/3034
35. Doyle, M., Jones, P. (2013). Hodges’ Health Career Model and its role and potential application in forensic mental health nursing. Journal of Psychiatric and Mental Health Nursing. 20, 7, 631-640. http://onlinelibrary.wiley.com/doi/10.1111/j.1365-2850.2012.01961.x/abstract
36. Jones P. (2014) Using a conceptual framework to explore the dimensions of recovery and their relationship to service user choice and self-determination. International Journal of Person Centered Medicine. Vol 3, No 4, (2013) pp.305-311.
37. 1998-2015 Website devoted to Hodges' model p-jones.demon.co.uk Now on web.archive.org:  https://web.archive.org/web/19990501185433/http://www.p-jones.demon.co.uk/index.htm
38. Jones P. Exploring the relationship of threshold concepts and Hodges’ model of care from the individual to populations and global health. Rev Cuid. 2017; 8(3): 1697-720. http://dx.doi.org/10.15649/cuidarte.v8i3.464
39. Jones P, Wirnitzer K. Hodges’ model: the Sustainable Development Goals and public health – universal health coverage demands a universal framework. BMJ Nutrition, Prevention & Health 2022;0:e000254. doi:10.1136/bmjnph-2021-000254
40. 2006- Ongoing This blog - Welcome to the QUAD.

10th Biennial Threshold Concepts Conference: July 2-4, 2025

Save the date!

As a scholar who is active in Threshold Concepts, you may be interested to know that the biennial conference on Threshold Concepts will be held at the University of British Columbia in Vancouver, BC, Canada on July 2-4, 2025. More information on the call for proposals and conference logistics will be available in the late spring. But for now, follow us on X (formerly Twitter) @ThresholdConcep and join our Linkedin group (Threshold Concepts Conference 2025) to get the most up to date information.

Conference Invitation

Dear Colleagues,

As you may know, the biennial conference on Threshold Concepts will be held at the University of British Columbia in Vancouver, BC, Canada on July 2-4, 2025. As a scholar who has been active with Threshold Concepts in the last few years, we hope that you will consider submitting a proposal and attending the conference. The call for proposals will be open October 15 – December 20, 2024. 

Please check out the conference information on our website (https://thresholdconcepts.home.blog/) and reach out if you have any questions.

All the best,

Julie

Email: julie.rattray AT durham.ac.uk

Prof. Julie Rattray
Professor of Higher Education and Director of EDI at School of Education
Chair of Durham Disabled Staff Network
Durham University
Confluence Building
Stockton Road
Durham
DH1 3LE

 

Book: Landscapes of Investigation [open access]

"Creating landscapes of investigation is a primary concern of critical mathematics education. It enables us to organise educational processes so that students and teachers are able to get involved in explorations guided by dialogical interactions. It attempts to address explicit or implicit forms of social injustice by means of mathematics, and also to promote a critical conception of mathematics, challenging the assumption that the subject represents objectivity and neutrality. Landscapes of Investigation provides many illustrations of how this can be done in primary, secondary, and university education. It also illustrates how exploring landscapes of investigation can contribute to mathematics teacher education programmes. 

This edited volume is the result of a collaboration established through the Colloquium in Research in Critical Mathematics Education, which took place in 2016, 2018, and 2019 in Brazil. Its twenty-eight contributors are young researchers from Brazil, Chile, Colombia, India, Mexico and the USA, who are dedicated to the further development of critical mathematics education. 

Organised in eighteen chapters, the volume presents examples of engaging students from a diversity of social and economic backgrounds, age ranges, and abilities across different countries. The chapters present original findings on the social aspects of all levels of mathematics education. Landscapes of Investigation is of particular relevance to those with an interest in the potential of mathematics education to challenge social injustices."

Penteado, M. & Skovsmose, O., editor. (2022) Landscapes of Investigation: Contributions to Critical Mathematics Education. Cambridge, UK: Open Book Publishers. [Pdf] Retrieved from the Library of Congress, https://www.loc.gov/item/2021385926/

Review:

David M. Bowers
"Book Review: Landscapes of Investigation: Contributions to Critical Mathematics Education (2022) (M. G. Penteado & O. Skovsmose, Eds.)". Journal for Theoretical & Marginal Mathematics Education, vol. 2, no. 1, 2023. doi:10.5281/zenodo.10440243

My source:

https://x.com/dylanwiliam/status/1602776823225540610?s=20

Previously

https://hodges-model.blogspot.com/search?q=mathemacy

Funded PhD in Empathic Healthcare (the only one in the world!)

 Artificial Empathy

Qualification: PhD



Department: School of Healthcare

Application deadline: 7 April 2024

Start date: 23 September 2024

Overview (referenced - see main)

Supervisors

Professor Jeremy Howick (jh815 AT leicester.ac.uk)
Dr Josie Solomon
Dr Amber Bennett-Weston

 
Project description

Empathic healthcare improves patient quality of life and satisfaction with their care while reducing their pain.1,2 Higher levels of practitioner empathy are also associated with lower mortality among diabetic patients.3 Empathy can also reduce practitioner burnout.4,5 Despite its importance, the extent to which patients report that their practitioners are empathic varies widely,6 and medical student empathy appears to decline throughout medical school.7 To address this problem, the Stoneygate Centre for Empathic Healthcare are developing and implementing a revolutionary evidence-based empathy curriculum to the Leicester Medical School, and also to healthcare professionals in the NHS and beyond.

Aims

To develop, deliver, and evaluate research-based educational empathy interventions to medical students and healthcare professionals. 

[NB: While hosted in a medical school, this is not a medical education project per se. The PhD candidates will focus on the research to underpin an evidence-based curriculum.]

continued ...

My source and image:

https://x.com/Empathy_Centre/status/1760690291726762402?s=20

'Writing Samer'

Molly Fairhurst

 

... across the domains

"Diagnosed with a terminal cancer, Samer Iskandar couldn't find the words to describe what he was living through. Instead, he proposed an unusual collaboration." p.33.

 

Individual
   |

      INTERPERSONAL    :     SCIENCES               

HUMANISTIC  --------------------------------------  MECHANISTIC      

 SOCIOLOGY  :   POLITICAL 

|

Group

"Samer's cancer^ is like all cancers in that it pitches the self into a battle against the non-self, - * "Memory, language, attention and cognition all erode to ultimately leave you somewhere east of your prior self and west of someone new." p.34.

- atavistic alien cells invading their host from within. But it is unlike most cancers in how directly this cellular plunder correlates to the personal one."  It is like all cancers in that its lexical field is that of topography, malignancies spreading, diffusing and gaining ground. It is unlike them in that these movements are finally technical, gears cramped within the clock of a terminal diagnosis." p.34.

^glioblastoma

*discuss

Youmna Melham Chamieh, Writing Samer, FT Weekend Magazine, 24/25 February, 2024, Issue 1,062, pp.32-37.

Illustrations by Molly Fairhurst

https://mollyfairhurst.com/Financial-Times (above source).