Webinar “From Global to Local: Enhancing the UK Healthcare System with Lessons from CEI in LMICs” 10 February, 3–4PM (GMT)

The NIHR Patient and Public Involvement and Engagement (PPIE) team are pleased to invite you to our fourth webinar in the PPIE/CEI Bidirectional Learning Series “From Global to Local: Enhancing the UK Healthcare System with Lessons from CEI in LMICs”.

Date: 10th February 2026

Time: 3.00–4.00 PM GMT, London UK (Online via zoom)

Join us to explore how Community Engagement and Involvement (CEI) approaches developed in Low and Middle-Income Countries (LMICs) are actively shaping health research and service delivery in the UK. This session will demonstrate how global CEI principles —collaboration, equity, and shared learning - can be translated into local action to build trust and create more responsive healthcare systems.

What you will hear about:

- Global to local CEI strategies: Insights into how CEI strategies from LMICs can be used to strengthen community relationships and healthcare practice in the UK. 
- Driving Innovation through Reciprocity: Discover how a "virtuous circle of learning" between global and local systems enriches inclusion and equity. 
- Translate Insight into Action: Practical examples and expert perspectives on turning global health CEI approaches into practical, equitable healthcare solutions within the NHS.

Speakers include: - Farrah Lunat (Research Operations Manager at Lancashire & South Cumbria NHS Foundation Trust and Joint Lead Author of the NIHR ROSHNI-2 study) - Professor Nusrat Husain (Professor of Psychiatry and Director of Global Health at the University of Manchester and NIHR Senior Investigator) - Dr. Matthew Harris (Clinical Senior Lecturer in Public Health at Imperial College London and Honorary Consultant in Public Health Medicine)

Submit your questions & register via Eventbrite: 

https://www.eventbrite.com/e/from-global-to-local-cei-lessons-from-lmics-enhancing-the-uk-healthsystem-tickets-1976864265233?aff=oddtdtcreator

Sarah Betts

*Programme Manager (PPIE)* | NIHR Coordinating Centre

My source: HIFA

Postdoc “Citizen Science” (V25.0121) at Univ of Groningen

We're hiring:

Postdoc in Citizen Science at the University of Groningen

Are you passionate about public engagement with science and citizen science? Do you want to develop and work on projects that connect academia with society and make a real impact? We have an exciting Postdoc position available in our Citizen Science team!
Please note: You should be able to speak Dutch...

📅 Apply by March 23, 2025
🔗 Learn more & apply here: https://lnkd.in/emsFzdgJ

Feel free to share in your network.

Cheers,

Henk

Dr. Henk A.J. Mulder
Master Science Education and Communication &
Bèta Wetenschapswinkel (Science Shop @ Science LinX),
Rijksuniversiteit Groningen (University of Groningen)
Dr. Henk A.J. Mulder
Energy Academy/IREES
kamer/room 5158.0222
Nijenborgh 6
9747 AG Groningen
The Netherlands

h.a.j.mulder AT rug.nl
http://www.rug.nl/staff/h.a.j.mulder/
http://www.rug.nl/society-business/science-shops/
http://www.rug.nl/masters/educatie-en-communicatie-in-de-wiskunde-en-natuurwetenschappen/

Individual

|

      INTERPERSONAL    :     SCIENCES               

HUMANISTIC  --------------------------------------  MECHANISTIC      

 SOCIOLOGY  :    POLITICAL 

|

Group

my ACADEMIC CAREER my LANGUAGE SKILLS my LIFE EXPERIENCE my PASSIONS	SCIENCES - ENGINEERING 'LIVED EXPERIENCE' Enthusiast-Expert [patient, swimmer, x,y,z ...] local, regional, national, international
PUBLIC UNDERSTANDING OF SCIENCE PUBLIC ENGAGEMENT COMMUNITY ISSUES/AWARENESS COMMUNICATION	CITIZENS EVIDENCE-BASED POLICY PUBLIC PRIORITIES POLICY PRIORITIES

n.b. No endorsement of Hodges' model should be construed from inclusion of #h2cm above.

Developing NIHR guiding principles for Community Engagement and Involvement - have your say!

Dear HIFA colleagues,

Today we launch a public consultation on our guiding principles for community engagement and involvement in health research (CEI). We are aiming to build consensus by seeking feedback on the principles, their descriptions and how they could be implemented in diverse local contexts.

Here's the link to the survey: - now closed.

It should take around 15 - 20 minutes to complete, and it closes on 1 December.

The survey is open to everyone with an interest in CEI, and all HIFA members are welcome to participate. Please do share widely with colleagues, networks, and friends. If you have any questions, email ceiglobalhealth AT nihr.ac.uk.

** Rationale and more detail:

The NIHR expects Community Engagement and Involvement (CEI) to be integrated in the full spectrum of the research it supports. NIHR has both a vision and goals for CEI. However, we wanted to bring together wider work on the foundations of good CEI in research and present these key attributes in an accessible way. These new guiding principles aim to help clarify the expectations of CEI by: - providing stronger guidance for the global health research community in developing CEI plans that are robust, appropriate, and effective for both the local context and for the study design. - being useful to research funding committee members, providing them with a framework and criteria to carry out more robust assessments of research proposals.

The principles are not a set of rules but more conceptual and will be realised in practice in many ways, reflecting the huge contextual variation in global health research.

To date, we have carried out a rapid scoping review of literature, which, along with previous development work, aimed to identify CEI principles related to how researchers and communities interact within the global health research context. Earlier feedback on the emerging principles was sought from a group of CEI Leads across NIHR awards and from an independent group of CEI experts formed to advise on the work.

**

Best regards, Patrick Patrick Wilson Head of Global Health Communications & Stakeholder Engagement National Institute for Health and Care Research (NIHR)  📨 patrick.wilson AT nihr.ac.uk🌐 www.nihr.ac.uk/globalhealth Subscribe to our NIHR Global Health Research monthly newsletter 📝 https://www.nihr.ac.uk/about-us/stay-up-to-date.htm#six

HIFA profile: Patrick Wilson is Head of Global Health Communications & Stakeholder Engagement at the National Institute for Health and Care Research (NIHR), UK . Professional interest: Global health research. @NIHRglobal 

My source: HIFA

New animated film Social Care Future - #SocialCareFuture

Individual

|

     INTERPERSONAL    :     SCIENCES               

HUMANISTIC --------------------------------------  MECHANISTIC      

SOCIOLOGY  :   POLITICAL 

|

dyad / couple  family  group COMMUNITY population

	Government(s) politics power policy social care funding integration of care

"Watch our story

Without big changes to the way we think about social care, we and the people we care about face losing control of our lives and contact with the people and things that make our lives worthwhile. It doesn’t have to be this way.

Watch our new film, narrated by actress, comedian, broadcaster and international disability rights activist Liz Carr and directed by multi-award winning filmmaker Yoav Segal.

View accessible versions, including BSL, subtitles and comic book."

 

Animating our #SocialCareFuture – the story behind our animated film

My source: 

https://x.com/socfuture/status/1714909895416242221?s=20

Share your thoughts: Health Research & Community/Public Engagement

Dear HIFA Community,

As part of a multi-country scoping study commissioned by Wellcome Trust 

https://www.linkedin.com/company/wellcome-trust/

Pivot Collective: https://www.linkedin.com/company/pivotcollective/

- is conducting a rapid survey to better understand community/public engagement and knowledge exchange in health research.

*The Ask:* Provide your insights, thoughts and perspectives - click the survey here: 

https://lnkd.in/dgR6Wak3

This should take 15-30 minutes to complete, and data will be anonymised.

Please complete the survey by Wednesday 17 May 2023.

Thank you!

As background, this survey is part of a larger project that aims to identify more effective routes for communities to be involved in research, with *an ultimate goal of understanding how communities can play a genuinely meaningful, inclusive, and reciprocal role in the research ecosystem.

The project is led by Pivot Collective: https://www.linkedin.com/company/pivotcollective/ in partnership with - 

Eh!woza: https://www.linkedin.com/company/eh-woza
citiesRISE: https://www.linkedin.com/company/cities-rise
Restless Development: https://www.linkedin.com/company/restless-development
Vocal, Praxis, and Fiocruz.

If you'd like to learn more, please don't hesitate to reach out.
We are grateful for your time and insights, and would love to talk.

Best wishes,
Claire B. Cole

Co Director Pivot Collective Consulting +1 917.523.6523
claire AT pivotcollective.org
pivotcollective.org
27 Palmer Road, Muizenberg, 7945 

https://www.facebook.com/PivotCollective/
https://www.linkedin.com/company/30643635
https://www.instagram.com/pivot_collective/

HIFA profile: Claire Cole is Co-Director and Senior Technical Advisor at Pivot Collective USA. Research interests: Participatory and applied research; Sexual and reproductive health and rights; Adolescent health and development; HIV and AIDS; Marginalized and underserved populations; Adaptive management and adaptive implementation; Responsive health systems; Resilience; Implementation science.

My source:
You are receiving this message because you are a member of the community -
HIFA - Healthcare Information For All.

LMIC: Opportunity to get involved with the National Institute for Health and Care Research, UK

Hello,

We have an exciting opportunity for people with lived experience based in low and middle income countries to get involved with the National Institute for Health and Care Research (NIHR) as funding committee members and reviewers, and we’d very much appreciate your help.

The NIHR is funded by the UK government and is a major funder of high quality global health research. Our next research programme is the Research and Innovation for Global Health Transformation (RIGHT) Call 5 , which is focused on strengthening health service delivery and resilience in low and middle income countries (LMICs) in the context of extreme weather events.

Would you be interested in joining us and giving your recommendations on which research proposals to fund? We are looking for people with lived experience of extreme weather events. Your insights and ideas can help shape research that is important to people living in LMICs, and improve healthcare services for some of the most vulnerable and marginalised communities.

The role of public committee member or reviewer involves reading funding proposals and providing a written summary of reflections. We pay a fee for involvement as a way of thanking you for your support. 

Please complete the Expression of Interest Form and submit this to us by Monday 16 May 2022.

If you have any questions or would like to discuss this in more detail, please get in touch with Razina Hussain at ccfcei AT nihr.ac.uk. 

Thank you and best wishes,

Razina

Razina Hussain

Programme Manager, Community Engagement and Involvement | PPI and Engagement | NIHR Central Commissioning Facility (CCF)

e. razina.hussain AT nihr.ac.uk

Central Commissioning Facility

Grange House

15 Church Street

Twickenham

TW1 3NL

My source: HIFA

National Day of Arts in Care Homes

 

 

Not long to go now until the second National Day of Arts in Care Homes, which takes place on Thursday 24 September.

During lockdown, we have seen a wealth of amazing activities and projects take place in care homes across the UK, including corridor choirs, garden concerts, socially distanced art sessions, online ceramics tutorials, live streamed concerts and dance, pen pal projects and postal art initiatives. Care settings have used the arts to raise morale, keep residents and staff stimulated, keep in touch with friends and loved ones, express worries and fears and also to celebrate birthdays and other occasions. 

Please show your support for the provision of arts activities in care homes on 24 September by organising an event, sharing stories and spreading the word.

 

Continued...

Expression of Interest to Join the Global Planning Committee

 

Expression of Interest to Join the Global Planning Committee

Unlocking Potential: Prioritizing Child & Adolescent Health and Well-Being in the New Decade

CORE Group Global Health Practitioner Conference (GHPC)

For over two decades, CORE Group has hosted a Global Health Practitioner Conference featuring skills-building sessions, recent evidence on cross-sectoral technical areas, and dialogue on community health. We have a unique opportunity this year to connect even more organizations and professionals around the world with our new digital format, and this year is particularly important as we set the stage for future investment and innovation in child and adolescent health and well-being.

CORE Group and its membership will engage government, ministries of health, policymakers, practitioners, academia, civil society, private sector, global and local organizations in this virtual conference on December 8-10, 2020. This Conference positions itself as a sharing platform for promising practices and innovations, ongoing challenges, and lessons learned in child and adolescent health and well-being worldwide; and as a convening space for various stakeholders - from community health workers who perform work on the ground to government policymakers who draft national policies - to discuss current opportunities and challenges for policy making, implementation, and partnership and draw consensus on key steps to move the needle forward.

CORE Group is convening a Global Planning Committee with various interested stakeholders to provide input on conference themes and objectives and to support the creation of a multi-day, interactive agenda. Being a committee member is a volunteer position* and will require up to 6 hours per month in planning calls and agenda input, outreach to speakers, and more. If interested in participating in the Global Planning Committee, please complete the form below by Friday, August 21, 2020, COB. *A stipend will be provided to young people in the committee, CORE Group is committed to meaningful youth engagement and aims to include 50% of young leaders in this committee.

Join the Global Planning Committee

My source: Ados May, hss AT lists.coregroup.org

Study: Do you have lived experience of emotional distress, neurodivergence, and/or behavioral health treatment? ...

... Are you a Mad Pride, neurodiversity, or psychiatric survivor activist?

A mental health advocate?

WHO: We’re seeking participants who have lived experience of “mental difference,” i.e. characteristics, traits, states, and phenomena that have been categorized as symptoms of mental disorders or developmental disorders, and/or lived experience of behavioral health treatment, and who have engaged in any form of advocacy.

WHY: To help researchers better understand how experiences of mental difference and behavioral health treatment impact activist involvement.

WHAT: A voluntary research study. This is an online survey lasting approximately 20-25 minutes. Participants will be asked questions about their mental health related experiences, involvement with activism, and viewpoints on sociopolitical issues within the mental health arena. Every 30^th participant will receive a $50 gift card up to five cards.

HOW: Contact Emily Cutler at ecutler@mail.usf.edu or click on this link to directly access the survey: https://usf.az1.qualtrics.com/jfe/form/SV_acaniQNBp7Z7f81. The study’s protocol number is #00035052.

Nev Jones PhD
Assistant Professor
NIDILRR Switzer Research Fellow '17-'18

Department of Mental Health Law & Policy
Louis de la Parte Florida Mental Health Institute
University of South Florida
e: genevra AT usf.edu
t. @viscidula

12th May Lancaster, Workshop: Patient knowledge and involvement in healthcare

An event I am looking forward to: 

Royal Institute of Philosophy Workshop
Storey Institute, Lancaster
Monday 12th May

In recent years great efforts have been made to listen to “patient voices” in healthcare practice, research, and policy, but such initiatives have met with mixed success and many patients continue to feel that their view are overlooked (sometimes despite the best efforts of health care professionals). In this workshop we consider whether and why patient views matter. We ask what factors act to limit the possibilities for communication between patients and professionals, and consider how they might be overcome.

• 10-10.40 Chaos, conflict and cooperation. Havi Carel, Senior Lecturer in Philosophy, Bristol University
• 10.40-11.20 Silencing the sick. Ian J. Kidd, Addison Wheeler Fellow in Philosophy, Durham University
• 11.50-12.30 On trusting and being trusted. Garrath Williams, Senior Lecturer in Philosophy, Lancaster University
• 2-2.40 Patient advocacy challenged: The case of ME/CFS. Nancy Blake, Patient activist and PhD candidate, Lancaster University
• 2.40- 3.20 Medical paternalism and the right not to know. Emma Bullock, Postdoctoral Fellow “Concepts of Health”, King’s College London
• 3.50-4.30 Negotiating as individuals and groups. Rachel Cooper, Senior Lecturer in Philosophy, Lancaster University

Organisers: Ian J. Kidd and Rachel Cooper

Budgeting for Public Involvement in Research

Dear Colleagues,

INVOLVE and the Mental Health Research Network teamed up to produce a new resource to help with budgeting for the costs of public involvement in research. It can be used for everything from putting together an involvement budget for an entire study to working out how much it will cost to run a one-off consultation event.

The first part of the resource is a guide which:

• provides practical advice on what costs are associated with involvement in research
• includes a step-by-step process for identifying the associated costs and planning the budget
• presents examples of research projects with well-developed budgets for involvement work
• contains tips, links to useful websites, and references.

The second part of the resource is an online ‘involvement cost calculator' to work out the costs for your research study.

Please forward this information to your colleagues and networks.

If you have any questions or queries about Budgeting for involvement please contact:

Thomas Kabir
MHRN Service Users in Research Coordinator ...
To find out about INVOLVE visit www.invo.org.uk

...

My source: Laura Gardner: Research Design Service North West’s e-mail list.

Mental Health at NWHealthHack Knutsford - Prof. Lewis (thank you)

NWHealthHack began with several briefings. These were all excellent in providing both technical and health care insights before projects were pitched in 60 seconds.

Prof. Shôn Lewis set the health agenda in the context of mental health. I'm really grateful to Prof. Lewis to be able to share two slides here. The first speaks volumes not only in the research spend across health care domains but the disability-adjusted life year (DALY):

Over the past 25+ years I'm aware of the change within community mental health nursing. I can summarise this as follows:

• 1985 one of six new community psychiatric nurses - CPNs
• Early 1990s newly built community mental health resource centers
• Mid-late 1990s CPNs criticised for not meeting the needs of the enduring mentally ill
• Early 2000s early intervention services, role of psychosocial interventions
• Mid-late 2000s reduction and closure of mental health day hospitals
• Early 2010s former community mental health resource centers turned to primary care (mental health)

I have mentioned here previously about the need to put the 'mental'' into public - health and the need to put mental health literacy on the map. It will be interesting to watch what happens now that this has landed in a very 'local' way within Local Authorities. Prof. Lewis reviewed the situation in mental health conjoining serious mental illness, services and self-care, making a critical point for those readers working in community mental health teams. This should also give pause for thought for those (like me) working in related services:

Prof. Lewis also shared an app - ClinTouch and reflections on the professional's response to the apps potential and the findings in practice. It's never easy being open to what is new and being ready as a consequence to re-invent yourself. If that's a problem for individuals then for professional groups and multidisciplinary teams it's an even greater challenge. ...

comment - Hodges model in Learning Disability

Denise M posted a comment [Wednesday, December 27, 2006] which I've repeated below with a reply:

"I an currently writing up my literature review for a MSc and is using a combination of Brian's HCM and Maslow's hierarchy of needs model as conceptual framework to structure the needs of people with profound learning disabilities and multi-sensory impairment (PLD and MSI). I am ever so grateful for the numerous resources on the HCM. Like yourself, I was first introduced to the model when I was doing the ENB 806 in 1986. I have used the model in my career as community LD nurse and nurse tutor and has found it useful in assessing people with LD and in teaching as a framework for discussing aspects of care. I normally reference the chapter in Hincliffe's book. I would be happy to discuss what I am doing and when I have completed the writing up, to evaluate the effectiveness of the HCM as a conceptual framework, in combination with another theory."

Denise M
--------
Hello Denise - Happy New Year!

Your comment is very timely at the start of a year that I hope will see increased interest in Hodges' model and other 'global' approaches. Learning Disability is a key care group, one in which Brian Hodges also trained, practised and taught. I am very interested in discussing your work. At a recent NW (England) RCN Older People Nursing Network meeting a speaker highlighted the unique problems and solutions for this client group, in terms of the possible development of dementia, parents getting much older and subsequent care.

To contact me you will find an e-mail address (see biog page for tel:no.) on the main website.

With the Serres-Hodges paper now submitted, I can think about the future of the website and explore the possibility of using a proper Content Management System. (Recommendations most welcome.) So if you or anyone else have any possible material on your work please get in touch. It pleases me no end to hear that the existing references / resources on the site are a help. If I'm honest though, while much of the current content does need to be accessible, some should be 'archived' to make way for contributions that are practice / research based.

Since starting this blog things do seem a bit more dynamic. It is practitioners, students and tutors like you Denise, and the efforts of others such as Claire, Rachael and Shannon who can shape the future of Hodges' model. For Hodges' model to really arrive I would very much like to add the public (patients and carers) and the global health community into the mix. Hodges' model is something that can by its nature engage and involve everyone. The Learning Disability community MUST be included, within day-to-day service provision of course this group can slip through the net.

Your next step about evaluation sounds quite challenging, but fascinating in terms of what methods you may employ and the results that might be revealed. I and many other people would I'm sure be very keen to learn more. If I can assist in some way - just let me know, happy to comment on your text if you wish...

Thanks for your interest and to the others who have picked up the flag. It makes the effort at this end really worthwhile...
Good luck and I look f/w to an e-mail or chat with you soon.
Peter