Rare Disease Day, 29 February 2016
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INTERPERSONAL : SCIENCES
humanistic --------------------------------------- mechanistic
SOCIOLOGY : POLITICAL
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group
What does 'rare' mean here, ...
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... here
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and here? |
Hodges' model is a conceptual framework to support reflection and critical thinking. Situated, the model can help integrate all disciplines (academic and professional). Amid news items, are posts that illustrate the scope and application of the model. A bibliography and A4 template are provided in the sidebar. Welcome to the QUAD ...
What does 'rare' mean here, ...
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... here
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and here? |
Posted by Peter Jones at 9:00 pm | PERMALINK
Labels: #Raredisease , activism , awareness , care domains , comms , disease , EU , functionality , funding , global , innovation , insight , knowledge , media , quality of life , research , understanding , video , well-being
I'm a subscriber to HSJ and greatly enjoy reading it, even if this includes catching up.
The January 13th issue was headlined "2016: THE YEAR OF OPPORTUNITY?"
The editorial/leader A year of opportunities with many unanswered questions (pp. 3-4) spanned more than the usual single page and commented upon:
"For mental health, the question is a simple one. Will the sector see the increased funding long promised?" p.4.Leadership, regulation, workforce, health and social care integration, commissioning ... can all be related to mental health, but with February's news I wonder if mental health can be revisited as a piece of horizon scanning as per the sub-heading? Otherwise, before February is out - is this a case of "job done"?
Posted by Peter Jones at 3:01 pm | PERMALINK
Labels: #mhuk , #NHSChange , #nhssm , commissioning , funding , government , health , holistic , HSJ , integrated , journal , media , mental health , NHS , policy , psychiatry , public health , public mental health , social care , UK
Posted by Peter Jones at 9:10 pm | PERMALINK
Labels: access , accessibility , anxiety , awareness , disability , employment , events , hidden problems , inclusion , mental health , mobility , motivation , policy , self-esteem , socio-technical , support , transport , well-being
Posted by Peter Jones at 8:25 pm | PERMALINK
Labels: activism , children , crime , education , equality , equity , family , health , health literacy , human rights , information , literacy , poverty , quality of life , schools , self-efficacy , socioeconomic , vulnerability , women
Consciousness: | an Integrated Information Theory |
Posted by Peter Jones at 10:17 pm | PERMALINK
Labels: anatomy , bioinformatics , brain , cognition , cognitive sciences , consciousness , information , integrated , measures , media , neuroscience , phi , philosophy , physiology , research , science , systems , theory
This paper by Arends et al. (2015) sheds further light on the use of vignettes and the difficulties (for me) in categorising care phenomena. There is a great deal of overlap in the three domains that the authors apply to patients with arthritis. Their domain-specific focus is also of interest.
Independent functioning extends across the interpersonal and sciences domains of Hodges' model as mental functioning and physical. Sports, holidays, hobbies and other activities while usually social in nature can be solitary pursuits. In this example even if the context is social as per the domain, it is the impact upon the individual that the researcher's note:
"Changes in life domains caused by a chronic disease can have psychological and social consequences for patients and can affect their identity"... (p.1896)In the quote below, copied across the domains of Hodges' model, volunteering is political in nature, but the reward in this instance - voluntary work in a nursing home - could be intrapersonal, derived from the interaction with and making a difference to the residents, staff and visitors.
"The 11 vignettes all have a main character that is diagnosed with RA. In each situation, the impact of the disease on daily life is described as the main character always encounters a limitation or difficulty. The stories are set in three different domains:
the social domain,the leisure activities domain,and the independent functioning domain...
In the independent ... psyche identity | functioning domain, the topics are gardening, household tasks, and running errands. |
Topics of the vignettes in the social domain are activities with partner, children, family, and friends. In the leisure activities domain, the topics are sports, holidays, hobby,
| and volunteering." (p.1900) |
Posted by Peter Jones at 12:39 pm | PERMALINK
Labels: activities of daily living , activity , arthritis , care domains , categories , design , domains , functionality , goals , Hodges' model , methods , papers , patients , person-centred , quality , research , situated , survey , vignette
Posted by Peter Jones at 8:07 am | PERMALINK
Labels: art , exhibition , meaning , nature , Norway , person , self , self expression
"Last year I had what society refers to as a mental breakdown and after coming out the other side I knew I needed to give something back. I started the #itaffectsme campaign to encourage people who have suffered or who know someone who has suffered to post selfies on social media - to help prove that the one in four people who suffer from mental health issues really are everywhere.
#itaffectsme wants to see Mental Health Education put on the National Curriculum. To arm our children with knowledge, understanding and compassion. 1 in 4 people suffer with mental illness and 50% of those are established by age 14. We teach our children symptoms of chlamydia and gonorrhoea so why not depression, OCD and anxiety?"
continued...
Posted by Peter Jones at 6:00 pm | PERMALINK
Labels: #inthemind , #itaffectsme , activism , awareness , change , children , curricula , education , health , health literacy , health promotion , learning , mental health , prevention , self respect , self-esteem , teaching , well-being
Mental health
| 15-20 years shorter life expectancy for those with severe problems |
£105bn cost to economy £9.2bn spent by NHS a year |
Mental Health
esteem
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'Task' - 'Force' Strategy parity |
Posted by Peter Jones at 7:32 pm | PERMALINK
Labels: #inthemind , accessibility , BBC , economics , funding , government , integrated , media , mental health , NHS , parity of esteem , physical health , policy , recommendations , report , risk , services , statistics , suicide
Creative: In this case the organisation itself is the disruptor. For instance, when new start-ups disrupt established players. |
Transformational: These disruptions are planned and internal. An example would be a company turnaround.
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Hostile: These disruptions come from an external source. Examples include cyberattacks, activist investors and hostile bids. |
Posted by Peter Jones at 6:21 pm | PERMALINK
Labels: Boards , business , change , commercial , complexity , creativity , disruption , economics , employment , history , industry , innovation , leadership , life , media , policy , political , society , socio-technical , socioeconomic
As I work on my research proposal this paper (in press) is a very useful and timely reference...
Abstract - Background
The contemporary health workforce has a professional responsibility to maintain competency in practice. However, some difficulties exist with access to ongoing professional development opportunities, particularly for staff in rural and remote areas and those not enrolled in a formal program of study. E-learning is at the nexus of overcoming these challenges. The benefits of e-learning have been reported in terms of increased accessibility to education, improved self-efficacy, knowledge generation, cost effectiveness, learner flexibility and interactivity. What is less clear, is whether improved self-efficacy or knowledge gained through e-learning influences healthcare professional behaviour or skill development, whether these changes are sustained, and whether these changes improve patient outcomes.
Sinclair et al. refer to:
"One suitable framework that is congruent with e-learning research is Kirkpatrick’s four levels of evaluation." (p.53).
I have taken the rest of the paragraph and mapped the stated levels to Hodges' model:
Level two pertains to learning and the evaluation of knowledge. |
Kirkpatrick’s model is hierarchically based with level one relating to student reaction and how well the learner is satisfied with the education program.
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Finally, level four evaluates the impact on outcomes such as cost benefit or quality improvements. |
Peter M. Sinclair, Ashly Kable, Tracy Levett-Jones, Debbie Booth, The effectiveness of internet-based e-learning on clinician behavior and patient outcomes: a systematic review, International Journal of Nursing Studies, Available online 4 February 2016, ISSN 0020-7489, http://dx.doi.org/10.1016/j.ijnurstu.2016.01.011 (http://www.sciencedirect.com/science/article/pii/S0020748916000122)Keywords: e-learning; Systematic Review; Education; Information Communication Technology; Health Care Professional
Posted by Peter Jones at 11:06 am | PERMALINK
Labels: competence , cost , e-learning , education , effectiveness , evaluation , interaction , journal , knowledge , outcomes , papers , patients , professionals , self-efficacy , skills , systematic review , technology enhanced learning
The workshop focuses on concepts and their applications using the theory of Conceptual Spaces (CS), as introduced by Peter Gärdenfors (2000).
Applications of Conceptual Spaces |
Posted by Peter Jones at 7:18 pm | PERMALINK
Labels: actionability , applications , cognitive sciences , concepts , conceptual spaces , dynamics , embodiment , identity , models , papers , reasoning , representation , research , Sweden , symbols , theory , workshop
Some reading while working on my research proposal:
Vignette methodologies for studying clinicians’
decision-making: Validity, utility, and application in
ICD-11 field studies
Abstract
Vignette-based methodologies are frequently used to examine judgments and decision-making processes, including clinical judgments made by health professionals. Concerns are sometimes raised that vignettes do not accurately reflect “real world” phenomena, and that this affects the validity of results and conclusions of these studies. This article provides an overview of the defining features, design variations, strengths, and weaknesses of vignette studies as a way of examining how health professionals form clinical judgments (e.g., assigning diagnoses, selecting treatments). As a “hybrid” of traditional survey and experimental methods, vignette studies can offer aspects of both the high internal validity of experiments and the high external validity of survey research in order to disentangle multiple predictors of clinician behavior. When vignette studies are well designed to test specific questions about judgments and decision-making, they can be highly generalizable to “real life” behavior, while overcoming the ethical, practical, and scientific limitations associated with alternative methods (e.g., observation, self-report, standardized patients, archival analysis). We conclude with methodological recommendations and a description of how vignette methodologies are being used to investigate clinicians’ diagnostic decisions in case-controlled field studies for the ICD-11 classification of mental and behavioural disorders, and how these studies illustrate the preceding concepts and recommendations.
Posted by Peter Jones at 11:44 pm | PERMALINK
Labels: behaviour , classification , clinical , concepts , data , decision problems , design , hybrid , ICD , journal , mental health , methodology , methods , papers , recommendations , research , studies , survey , validity , vignette
The Zika virus, a mosquito-borne disease, has reached epidemic proportions in Brazil and is moving north through Central America and the Caribbean. Several cases have been reported in the US and the World Health Organization estimates Zika will appear in nearly every country in our hemisphere, except the cooler areas of Canada and Chile.
To help people cope with this disease, Hesperian has rapidly developed emergency information on Zika, its symptoms, and how to take personal and community-wide precautions to limit its spread. Now available in English and Spanish, we are working on translations in Portuguese and Haitian Kreyol to ensure this health information reaches the people who need it most.
I hope you find this online, printable resource helpful. Please share it widely with your networks:
English http://en.hesperian.org/hhg/Zika#
Spanish http://es.hesperian.org/hhg/Zika
Best,
Rachel Grinstein
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Rachel Grinstein
Development and Marketing Associate
Hesperian Health Guides
www.hesperian.org
Check out our two new titles:
HIPNet is a practitioner support network. We encourage cooperation and collaboration among members to eliminate duplication of materials, and promote dialogue and use of health information. Join HIPNet at http://knowledge-gateway.org/hipnet
Posted by Peter Jones at 8:11 pm | PERMALINK
Labels: Central America , disease , education , epidemic , global health , health , infants , information , Latin America , maternal health , organisations , prevention , public health , resources , Spanish , virus , WHO
Hechter, et al. (1999) consider values in respect of advanced directives and medical treatment. The authors discuss an old debate in social science that still divides objectivists and subjectivists. Below, with my emphasis the four designated values are mapped to Hodge' model:
(ii) self-concept values involving feelings of dignity, self-control, and/or physical capacity (designated as function);
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(i) hedonic values about pain, aversive physical states, chances for recovery to some minimally satisfactory level, and so forth (designated hereafter as pain);
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(iii) allocentric values referring to concerns with creating an emotional burden for family and/or loved ones (designated as burden)
| (iv) financial considerations (designated as cost) (p.409). |
identity, self-expression (of needs), consistency in expressed wishes, intentionality, mood, alternative-adaptive forms of communication, time - active listening
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distance, logistics (family, friends), what telecare might offer in terms of communication, evidence-based interventions, measures, assessment
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independent advocacy, standards of social care, 'appropriate' placement for ongoing care, social - life history;
| legislation - mental capacity, advocacy, evidence-based care - policy, pension, safeguarding; |
Posted by Peter Jones at 12:53 pm | PERMALINK
Labels: advanced care planning , advocacy , capacity , care , choice , decision problems , dignity , ethics , family , functionality , Hodges' model , law , medicine , objective , pain , research , self , subjective , values , will
Posted by Peter Jones at 3:20 pm | PERMALINK
Labels: #pwd , ability , accessibility , activism , attitude , awareness , beliefs , children , dignity and respect , disability , diversity , empowerment , equality , equity , inclusion , individual , person , policy , population , society
"Definition of a conceptual framework
Anecdotal evidence obtained from numerous discussions with students, colleagues, and the few research design books that address the issue of conceptual frameworks (e.g., Ravitch and Riggan 2012) indicates that the construct conceptual framework is viewed from at least three perspectives. The first, and most superficial, view defines conceptual framework as a visual representation of the structure of the study and its alignment with the relevant theoretical foundations. According to this view, conceptual framework is a figure, typically presented as a concept map, that summarizes all key information presented in the literature review of the study" (p.55).At first it is confusing when within academic writing you have to present your theoretical - conceptual framework. In Hodges' model I already have one. Antonenko is very informative but I don't believe that this first definition is necessarily that superficial. It depends on the context and purpose. There is something in instrumental value that seems closely allied with the visual form and the paper provides an example.
Avoiding getting stuck in a ‘‘no-risk’’ zone (Miles and Huberman 1994, p. 22), a situation where all concepts in the framework are abstract and interconnected. Informed commitments must be made regarding what the researcher finds as most relevant and important pieces of the conceptual framework. The entire point of building a conceptual framework is to be explicit and selective about the focus of the study (p.66).
Posted by Peter Jones at 11:53 pm | PERMALINK
Labels: academia , concepts , conceptual framework , context , definitions , diagrams , e-learning , education , Hodges' model , instrumental , journal , methodology , references , studies , technology enhanced learning , visual
Born in Liverpool, UK.
Community Mental Health Nurse NHS, Part-time Lecturer,
Researcher Nursing & Technology Enhanced Learning
Registered Nurse - Mental Health & General
Community Psychiatric Nursing (Cert.) MMU
PG Cert. Ed.
BA(Joint Hons.) Computing and Philosophy - BIHE - Bolton
PG(Dip.) Collaboration on Psychosocial Education [COPE] Univ. Man.
MRES. e-Research and Technology Enhanced Learning, Lancaster Univ.
Live and work in NW England - seeking a global perspective.
The views expressed on W2tQ are entirely my own, unless stated otherwise.
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If you would like to get in touch please e-mail me at h2cmng AT yahoo.co.uk